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Topic: Alternative Treatment

Forum: Alternative Medicine —

This forum is a safe, judgement-free place to discuss Alternative medicine. Alternative medicine refers to treatments that are used INSTEAD of standard, evidence-based treatment. Breastcancer.org does NOT recommend or endorse alternative medicine.

Posted on: Aug 8, 2011 07:32AM

dougbrimor wrote:

Has anyone used alternative treatments such as Lorriane Day, Chris Beat Cancer, The Hallelujah Diet and skipped the cookie cutter 6 weeks of radiation and five years of Tamoifen?  I am so confused , even the 2011 cancer book that the radaition department gave me in my red folder states that radiation can cause a second cancer, that they are working on improving these satatics.  I read the whole book cover to cover and was just blown away by what they are admitting of these chemicals.  Anyway, would like to know if anyone else is swinging on this bridge?  Thanks

Dx 7/18/2011, <1cm, Stage I, ER+/PR+, HER2-
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Sep 30, 2012 05:24AM abigail48 wrote:

yes.  thinking about you, tillycat

on bing just now, their daily usually wonderful photo, rambutan fruit, a tropical fruit I'd not heard of, tasty & 5 of them a day one of the articles states can seriously reduce the chance of cancer 

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Sep 30, 2012 02:31PM - edited Sep 30, 2012 02:32PM by Tillycat

I am home, it was a lovely sunny day but a bit chilly so I am happy to be tucked up and cozy in my bed.  Feeling pretty good which is nice because I suppose that the last few days have been a bit of a roller coaster ride.  
I dont know about the rest of you but i tend not to think to deeply about things when bad stuff is happening to me I just get on with it - which i guess is why everyone always says how brave we are - I'm sure you all get it as well :-) but after, when thing start to calm down, I think it all through  and feel quite overwhelmed and sometimes quite panicky.  The doctor at the hospital seemed to realise this - he gave me some lorazepam to have at hope 'just in case I needed them'
I also have blood thinning injections which I will need for at least 6 months.  I did the first injection in my tummy this morning and it left a lovely bruise - only another 179 to go.
Colin (the cat) and Harley (our labradoodle) have been my shadows since I got back, they are both asleep on my bed as I write this post
Tillycat xx

Live and love each moment. Stage iv since 2009, liver, bone, lung, lymph and brain mets Dx IDC, Stage IV, Grade 3, 0/16 nodes, ER+/PR+, HER2-
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Sep 30, 2012 02:52PM pip57 wrote:

Oh Tilly, isn't your own bed wonderful after a stay in the hospital.

We all hear you about the overwhelming feelings that creep up on us.  When people tell me how brave I am, I tell them they have no idea how scared I have been.  I just have to keep going.  The other choices do not appeal to me!

I went through the blood thinner injections.  But my clot was only in my arm, not nearly as serious as yours was.  Still, my arm looked like a piece of rotting meat after all the injections.  Eventually, I was able to go on to pills for the last 4 months.

Love pets.  They just know.

Have a great sleep in your own home tonight. 

PIP - multi focal, FEC100/Tax, rads, dble mast with no recon, ooph/hyst, arimidex Dx 2/1/2007, DCIS/IDC, Left, 3cm, Stage IIIB, Grade 2, 9/16 nodes, ER+/PR+, HER2-
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Sep 30, 2012 02:58PM Moderators wrote:

Tillycat, it's good to read that you're home! Harley and Colin must be so relieved too. Smile

There were some recent additions to a thread about those blood thinning tummy injections that might give you some others' insights too. Here's the link.

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Sep 30, 2012 03:09PM Tillycat wrote:

Thank you
That link was really useful - I now have an idea of how/where to give the injection so I don't bruise too much.
Tx

Live and love each moment. Stage iv since 2009, liver, bone, lung, lymph and brain mets Dx IDC, Stage IV, Grade 3, 0/16 nodes, ER+/PR+, HER2-
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Sep 30, 2012 03:31PM DeborahC wrote:

I don't know about the post that said you could inject into your butt - better ask before doing that.  I was told stomach is prefered and I could do fatty part of upper thigh if I was careful not hit muscle.  I just kept moving from side to side.  I am now on warfarin only.

Hodgkin's Lymphoma Stage 2 1992/Stage 2 IDC 2012, 11 Oncotype dx Dx 2/23/2012, IDC, 2cm, Stage II, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 3/22/2012 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 10/15/2012 Reconstruction (left); Reconstruction (right)
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Sep 30, 2012 04:01PM purple32 wrote:

Nice to see you back, Tilly !

Take Care.
BILAT LE! from 5.12.12.LX DX 3/2012 IDC <1 cm stage 1 GR 1 ( 0/2 nodes) ER PR pos HER2- RECURRENCE same breast Jan 2020 LX FEB 2020 . NO rads or hormones. Dx 3/2012, IDC, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2+ Surgery 4/30/2012 Lumpectomy: Left
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Oct 1, 2012 06:17AM NattyOnFrostyLake wrote:

Welcome back to your own bed, Tillycat! Smile Home really is paradise when you've been away.
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Oct 1, 2012 02:24PM steelrose wrote:

So happy to read the post from your home, Tilly! Oh boy do I understand the "getting on with it" through crisis times... Now you need good sleep and lots of spoiling. Sounds like Colin and Harley are looking out for you! Rest and heal...

xoxo

Rose.

Dx 1/22/2010, IDC, Stage IV, mets, ER+/PR+, HER2-
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Oct 1, 2012 05:26PM 1Athena1 wrote:

Tillycat - what the others said! I think when we are in crisis we tend to coast because we are so busy dealing with things - like an airplane that picks up speed and altitude to get through a rough, rainy patch quickly. Then, when there is a moment to breathe, we panic. That's so expected. Glad that your kitty and pup are being great bedmates. I hope the lorazepam helps.

Anyone diagnosed with cancer should learn to have a healthy disrespect for statistics. Statistics are maths. It's the science which still eludes us. Dx 3/2009, IDC, 3cm, Stage IIB, Grade 3, 3/8 nodes, mets, ER+/PR+, HER2-
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Oct 1, 2012 06:03PM HLB wrote:

Welcome home Tilly :-)

Dx 10/2004, IDC, 1cm, Stage IIA, Grade 2, 2/11 nodes, ER+/PR+, HER2- Surgery 10/29/2004 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 11/29/2004 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 1/1/2005 AC + T (Taxol) Surgery 9/14/2005 Reconstruction (left); Reconstruction (right) Hormonal Therapy 7/22/2012 Femara (letrozole) Dx 7/23/2012, IDC, Stage IV Hormonal Therapy 3/31/2015 Aromasin (exemestane)
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Oct 3, 2012 06:37AM Bluebird-DE wrote:

Tilly, hope you are still doing well and resting well.

Abigail, thought of you this morning.  I was taking shower hahaha and needed to do my lymph brushing.  I can never remember which direction, always had to find my paperwork on it.  But I remembered you said, away from the heart.  So simple.  I remembered and did it without getting out, drying off, finding papers and going back in shower.  Started my day off better, as can be imagined.

LOVEEssa

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/5/2017 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Lumpectomy: Right; Lymph node removal: Left Radiation Therapy External: Lymph nodes
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Oct 3, 2012 06:51AM NattyOnFrostyLake wrote:

Thank you Diane and Abigail for the reminder about dry skin brushing.

I had forgotten why I had that brush next to the shower. Embarassed I just got out of the habit my alternative doctor recommended.

It feels so good and makes your face rosy. Brushing must unclog the pores of old skin to help detox --besides the lymphatic boost.

Blessings to all on our journey!

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Oct 3, 2012 07:56AM abigail48 wrote:

but I think it's toward the heart, that makes more sense anyway, or toward the eliminatory organs, but get out your papers on it & tell us for sure.  a bad night last night but I didn't feel like icing, hadn't needed to do that for a long time, (the red is now allover the cyst, & there's a thread in ibc not diagnosed but worried there seems could be like mine.  her theiir doctors said it's not ibc because she's lived so long.)  got out my long handled bathe brush & scrubbed my back with soappy brush.  the lymph massage I do is with hands in bed.  before the brush I put on blackthorn oil & after the hot bath, I didn't wt it, organic rosemary oil.

been googling ellagic acid, & I remember you gave a site for rasberry seeds?  but havn't had time to look for it on your posts. 

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Oct 3, 2012 09:12AM abigail48 wrote:

gary's been talking about ginger root in peer reviewed journals, many many health benefits, esp breast cancer, but it's so woody you need to juice it to get 100% of its benefits:  6 inches of the root with green apple juice & cucumber juice.

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Oct 3, 2012 11:03AM HLB wrote:

hmm that might taste similar to ginger ale. My dad bought nme a hunk of ginger and I did not like it. I do like ginger ale though.

Dx 10/2004, IDC, 1cm, Stage IIA, Grade 2, 2/11 nodes, ER+/PR+, HER2- Surgery 10/29/2004 Lumpectomy: Left; Lymph node removal: Left, Sentinel Surgery 11/29/2004 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 1/1/2005 AC + T (Taxol) Surgery 9/14/2005 Reconstruction (left); Reconstruction (right) Hormonal Therapy 7/22/2012 Femara (letrozole) Dx 7/23/2012, IDC, Stage IV Hormonal Therapy 3/31/2015 Aromasin (exemestane)
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Oct 3, 2012 11:37AM abigail48 wrote:

I put about an inch of fresh ginger in my juice every day.  it makes it a bit hot but with all the other stuff:  lettuce, parsley, cucumber (yes) green apple, pear, organic strawberry tops, (ellagic acis in berries), the rest in my oatmeal, celery, it's not noticable, nice in fact.

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Oct 3, 2012 11:45AM gardengumby wrote:

I put fresh ginger in many things (including juice), plus take ginger supplements.  It helps the stomach (which is needed with most of the BC medications, if you take them), helps counteract constipation, and is an anti-inflammatory.  It's great stuff, and I happen to love the taste, which makes it a double plus Laughing.  Most asian markets will also sell young ginger at certain times of the year.  It's not woody at all, but doesn't have the strength of flavor, either.  I don't know if it is as effective.
BRCA1 & 2 negative - 3 family members. Oncotype 14. DCIS 7.5 cm, intermediate Dx 10/28/2010, DCIS/IDC, Left, 1cm, Stage IIA, Grade 2, 2/19 nodes, ER+/PR+, HER2- Surgery 12/20/2010 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (right): Tissue expander placement
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Oct 3, 2012 01:54PM abigail48 wrote:

& it's so not expensive.  I also put watercress in the morning juice, wrapped in the lettuce leaf along with curley parsley, strawberry tops, celery & the ginger piece.  still have some from this morning, ate too much salt today, gonna have a glass of that now cold juice now

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Oct 3, 2012 02:21PM Bluebird-DE wrote:

The ellagic acid you buy is synthetic.  Will not work for breast cancer.  No.  Please.  What you need is the red and black raspberry seed powder (Meeker variety or highly comparable) which when taken turns into ellagic acid within body.  That is only way it works.  The body makes the ellagic acid from the nutrition and the cancer cells stop multiplying and soon after they begin their natural death process. Isn't nature miraculous?

Abigail - thanks for input.... and hahaha now I have to remember where the info is.  I have picture from someone on how to do, cannot even recall who gave it to me.  darn it.  Perhaps a web search, but only stopped in for a minute to drop off hug pic on another thread, back to work asap.

I make ginger tea fresh from grated root, it helped my tummy upset when cancer was active in the late spring.  Needed it badly back then.  Wish I could put Aigail in my pocket to show me all these juices and recipes and poultices.

Abigail, please share again the poultice Joy told you about that helped the pain.

Later

LOVEEssa

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/5/2017 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Lumpectomy: Right; Lymph node removal: Left Radiation Therapy External: Lymph nodes
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Oct 3, 2012 03:23PM abigail48 wrote:

YES rasberry seed powder, esp black ras I should think.  perhaps gggling that would get to somewhere other than seed packets for 5 bucks for a few seeds to plant.............

It wasn't joy gave me the homeopathic protocol, but another naturopath I came in contact with a year ago when I decided I must do something.  It's very very messy, but I've kept it up, once a week, 45 minutes, soak a cotton cloth, I've cut up a white sish cloth, in castor oil & apply it.  washing the packs out is also vv messy.  but the lesion (hate that word too) hasn't broken since joy worned that it would get infected:  it didn't, but I don't irritate it no matter how uncomfortable it gets.  keeping an eye on the thread about the ladies who seem to have what I have 

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Oct 3, 2012 07:56PM graced wrote:

I started dry brushing after I read about it in one of the crazy sexy cancer books.  There were a few useful nuggets in there.  She said towards the heart so that's what I've been doing. 

Dx 5/1/2012, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/22/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 7/8/2012 Breast
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Oct 4, 2012 05:14AM abigail48 wrote:

good to hear.  & from the face & neck & shoulders, pretty much no other way to go.  & the legs & arms & sides too, the free radicals arn't going to fly off your toes & fingers I'd think

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Oct 4, 2012 07:22AM abigail48 wrote:

or perhaps the lower belly & lower back away from the heart.  the lymph system is circulatory but not connected to the veneos/arterial systems (??).  I wish I could remember how gary did it on that sleepaway, at the time I had no idea why he was doing it, or what had happened 

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Oct 4, 2012 09:28AM - edited Oct 4, 2012 09:28AM by NattyOnFrostyLake

I see there are a lot of dry brush massage videos on Youtube. I had no idea there were so many diifferent techniques. The original technique I learned was massaging in circles.

I think I may get a smaller brush. One of the therapists says it's an immune stimulant and to do this if you're going to be around people with colds. Also, I see I've missed brushing my hands and feet.

 Gee, it would be nice to have a massage therapist do this! I get relaxed just thinking about it.

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Oct 8, 2012 06:06AM - edited Oct 8, 2012 06:07AM by purple32

RE:  GSE

Ok ladies, I need your help.

Before this  damn LE went wild, I was looking into a  PARTICULAR GSE for the BC .  The brand used in the studies,.  Now I cant remember squat!  Lymphedema has taken the front burner over the BC for sure.

Can anyone help ?

I am hearing this GSE can help with edema>

Many thanks to you all ...pls feel free to PM/  its faster !

BILAT LE! from 5.12.12.LX DX 3/2012 IDC <1 cm stage 1 GR 1 ( 0/2 nodes) ER PR pos HER2- RECURRENCE same breast Jan 2020 LX FEB 2020 . NO rads or hormones. Dx 3/2012, IDC, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2+ Surgery 4/30/2012 Lumpectomy: Left
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Oct 9, 2012 01:32PM 1Athena1 wrote:

Not sure how many of you have seen this - chillipadi is now an angel:

http://community.breastcancer.org/forum/8/topic/794574?page=1#idx_24

She fought for wellness, and so bravely. Neither conventional nor alternative tx have a prayer next to her disease. This is a time for humility. Chillipadi did both types of treatment.

Anyone diagnosed with cancer should learn to have a healthy disrespect for statistics. Statistics are maths. It's the science which still eludes us. Dx 3/2009, IDC, 3cm, Stage IIB, Grade 3, 3/8 nodes, mets, ER+/PR+, HER2-
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Oct 13, 2012 03:51PM Bluebird-DE wrote:

You're right, Athena.  Doesn't matter what we choose, but that we are doing for ourselves what we believe is best to the end.  Chillipaddi was a sweetheart on earth and is with us still.

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/5/2017 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Lumpectomy: Right; Lymph node removal: Left Radiation Therapy External: Lymph nodes
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Oct 13, 2012 03:54PM 1Athena1 wrote:

I am sad that she was bullied off of BCO. To any arrogant person who thinks she died because of the tx she did: you are wrong. Stage IV cancer kills 100 percent of its victims - when chemo and rads don't, that is.

Anyone diagnosed with cancer should learn to have a healthy disrespect for statistics. Statistics are maths. It's the science which still eludes us. Dx 3/2009, IDC, 3cm, Stage IIB, Grade 3, 3/8 nodes, mets, ER+/PR+, HER2-
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Oct 14, 2012 05:01AM suzieq60 wrote:

Athena - she chose to not undergo surgery when she had a local recurrence, electing instead to try alternative treatment in the form of the Budwig protocol - that was her mistake. She was very brave and I am saddended by her passing.

2nd diagnosis October 2010 - IDC 5.8mm node negative - missed on mammogram in October 2009 Dx 10/13/2009, ILC, 1cm, Stage I, Grade 3, 0/5 nodes, ER+/PR+, HER2+

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