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Topic: Vitamin 17

Forum: Alternative Medicine —

This forum is a safe, judgement-free place to discuss Alternative medicine. Alternative medicine refers to treatments that are used INSTEAD of standard, evidence-based treatment. Breastcancer.org does NOT recommend or endorse alternative medicine.

Posted on: Oct 23, 2011 07:09PM

Hindsfeet wrote:

http://www.youtube.com/watch?v=JGsSEqsGLWM

This was sent to me. Anyone here try the vitamin b-17 therapy?

Dx 6/13/2014, IDC, 1cm, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Oct 23, 2011 10:39PM chillipadi wrote:

Yes, I did the whole protocol. Didn't work at all for me. Remember what was said about Steve Jobs, when his pancreatic cancer was first diagnosed it was early stage and slow-growing. Surgery should have been sufficient to cure him then. But he wanted to try alternative therapy first. So for the next 9 months that's what he did. Nothing worked. He lost precious time and by the time he agreed to do conventional treatment, his cancer was too advanced to be cured.

Same thing happened to me, so think carefully Eve. 

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Oct 23, 2011 11:23PM princess123 wrote:

chillipadi what does the whole protocol consist of? Did you recieve intrevanous laetrile B17?  Also, I think Steve Jobs should have done the surgery right away.  But, I'm confused. Someone correct me, if I'm wrong.  Didn't he live 8 years after being DX?  I read that the average life expectancy for someone with a metastatic neuroendocrine tumor is only around two years. See "Did Alternative Medicine Kill Steve Jobs?"ca.news.yahoo.com/did-alternative-medicine-kill-steve-jobs-2042046... And which protocol did he follow?
"Be patient. God is using today's difficulties to strengthen you for tomorrow. He is equipping you. The God who makes things grow will help you bear fruit." Max Lucado
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Oct 24, 2011 09:22AM chillipadi wrote:

No I didn't have intravenous B17. It's virtually impossible to find anyone who will administer it. I took the tablets with a host of other stuff listed in the protocol. Google it and you'll probably find something.

As for Steve Jobs, whether alternative therapy helped or hindered him is being debated ad nauseum, so I'm not going to bother with that here. He had a slow-growing cancer when he was first diagnosed. Eve has an aggressive cancer, so time is a luxury for her. Everyone must make a choice which they're comfortable with, after doing extensive, well-documented research. Going by anecdotal claims alone is very risky.

Despite combing intensively through this board and others, I have never found any personal testimonial for an alternative cure for cancer which really and truly works. Have you? I know that some other members of this forum have also been searching for a purely alternative, sure-thing cure, but they haven't found it either. I've been there and done that -  oh so many protocols. tonics etc. your head would spin like Linda Blair - and I've been totally disillusioned. My biggest regret is that I didn't give conventional medical treatment a chance until my cancer was advanced.

Learn from other people's mistakes. 

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Oct 24, 2011 10:17AM princess123 wrote:

Chillipadi, I tried googling it and didn't find much. I'll check to see how it's administered in Mexico. I believe their hospitals use laetrile alongside conventional medicine. I read that many years ago.

I don't believe that simply taking a few apricot kernels every day or drinking Essaic tea etc. will cure anyone of cancer. That's misleading.  I eat the seeds from fruits occasionally, but  I'm not putting all my eggs in that basket.

I think many of the alternative protocols namely those that involve a holistic approach and, when needed, incorporate conventional treatments have more potential. 

I'm strongly in favor of people doing their own research and using experienced naturopathic oncologists / integrative oncologists (i.e. The Block Centers cancer treatment clinic.) to avoid making irreversible mistakes. 

"Be patient. God is using today's difficulties to strengthen you for tomorrow. He is equipping you. The God who makes things grow will help you bear fruit." Max Lucado
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Oct 24, 2011 10:21AM impositive wrote:

I have read that B17 as well as vitamin C infusions will not work if taken orally. The body just cant assimilate it well enough that way.  It must be infused directly into the bloodstream and according to what I've read of Linus Pauling's research, levels must be maintained within the bloodstream.  As a matter of fact, when the Mayo Clinic tried to duplicate his study, they used high dose oral vitamin C instead of the infusions Pauling used and announced that it's no better than the placebo.  Pauling called the study "a fraudulent misrepresentation"  because they didnt "duplicate his study". 

It's so unfortunate (verging on criminal) that treatments that have shown promise are not available to those who want them much less not covered by our insurance companies.  You can go to pubmed and type in many different natural compounds and cancer (ie. chaga mushroom and cancer) and find studies that have shown success but no one will pay to have them carried out on humans in clinical trials.  So all we have are anecdotal claims and misinformation.  I have read that chemo's overall success rate is about 3%.  I would venture to guess that if stats were kept on alternatives, we would probably find at least that. 

I am so glad you are now having success with conventional treatment chilipadi.  I know you have had a rough road.  If I were where you are I too may be disillusioned and give conventional meds a chance.  As I've said before, desperate times call for desperate measures and someday I may be right there with you.  Unfortunately, there is no "sure thing cure"...in conventional medicine nor alternatives. 

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Oct 26, 2011 04:50AM thats-life- wrote:

hi eve,

chillipaddi..i am interested in your story. Did you really do alternatives first? that is a brave move. From all the alt info I read..alot of them say that the majority of people who come to their clinics have exhausted orthodox options...and by then their bodies are compromised. If you feel like it, would you tell me what your position was when you first started the alt treatments?

Although I would love to hear from people who can say that they have no evidence of disease after alternative treatments, Im not sure we are going to either. People ask these questions on the alt thread I started for stage IV, and the crickets can be heard chirping....no one has come here and said alt treatments worked. I have even excitedly asked scan results of some who have had alt treatments...and silence again.so maybe we have to give up on waiting for testamonials.and go on stats, any documented evidence for both chemo/hormonals/ and alt therapies. we can find. Thats what im doing anyway. Chemo has put some women here into a NED state!. . The protocol Im beginning to follow is by an Australian man who had stage IV bone cancer. He is disease free now. His book, was not so much about curing, (though he thinks you can) but healing, whether we beat the disease in our bodies or not. It' s called 'you can conquer cancer'. It saved me, and helped me come to terms with this disease as nothing else has...so I will publicly recommend it. It is mainly about diet, and meditation (coffee enemas aside Wink) and peace with life, and joy...anyway, the author is Ian Gawler. No IV's, No strange substances...just a way of living ...I hope your treatment is going well for you, and wish you success :) Thing is, for us at stage IV, its sometimes about quality, and not quantity isnt it, but I understand why you want to warn evie to go for it...Im tempted too. Though I remain sus of chemo :)

Evie: Im sure you will make the right decision for you. just do your research. x

It is the opportunity to build what one loves into something permanent that makes this very difficult game worthwhile. mets skull, rib, hip, spine. Dx 8/2010, IDC, 1cm, Stage IV, mets, ER+/PR+, HER2-
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Oct 26, 2011 07:39AM - edited Oct 26, 2011 08:04AM by princess123

That's Life, I read Ian Gawler's "You Can Conquer Cancer" after you mentioned it on your thread. (I loved it!)  Are you still meditating 3 hours per day? When I read that I was so inspired and started meditating for a longer period of time.  I think most people underestimate how important quieting the mind for extended periods of time is for the body to heal.

I'm curious to know why you'd omit the coffee enemas. Do you think they are harmful, or just gross? (lol) The Gerson protocol, and others, strongly suggest doing them to help detox metabolic waste.:)   

Impositive, I've been thinking a lot about about B17 and vitamin C infusions. I don't doubt that they attack the tumors, but I  believe what Dr. Gonzales said, "that they are not a cure, but a support". He said, the first priority is to rebuild the body's system with detoxification and a customized nutrition and supplement plan.   

"Be patient. God is using today's difficulties to strengthen you for tomorrow. He is equipping you. The God who makes things grow will help you bear fruit." Max Lucado
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Oct 26, 2011 09:55AM thats-life- wrote:

princess, lol...I have an issue with 'extremes' i suppose...extreme levels in supplements, extreme treatments that damage the body, and coffee enemas (which, um, scare me because i think its extreme to put coffee in the bowel).... to compensate, I take about 5 coffee's a day orally....lol.(which some might think extreme).. I havent mastered 3 hours meditation a day yet!...but i understand his and ainsley meares discovery of it's healing potential, ..but as he said in his book..you cant do everything well all at once. focus on one thing that is important to you, master it, and then move onto the next. (unless your situation is critical) I have incorporated some meditation, but i can see how 3 hrs+ a day is needed, with him being given only a few weeks to live as a prognosis, imagine how much discipline that took.... To calm your body in the face of life/death...I know the protocols i mentioned suggest enemas too....I was hoping to ignore that element. Undecided Im looking at less dramatic ways to detox..using lemons...broccoli etc for dead cell elimination...and having teeth pulled that contain mercury etc. With all the reading ive done, my sense, for me anyway, is rebooting the immune system as naturally as possible. de stressing, emotional healing, pleasure in life etc. Ive been thinking alot about B17 and VITC too coincidentally...reading heaps on it. Is it not possible to get enough from nature? strange as it may sound, i go for minimal risk: "is this capable of killing me before cancer kills me?" is my motto...dont know if its rational, its just how Im making decisions right now :) Im so glad you read it...isnt he inspiring..

thinking of you evie :)

It is the opportunity to build what one loves into something permanent that makes this very difficult game worthwhile. mets skull, rib, hip, spine. Dx 8/2010, IDC, 1cm, Stage IV, mets, ER+/PR+, HER2-
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Oct 26, 2011 10:25AM - edited Oct 27, 2011 12:59AM by vespersparrow

Hi, I have heard a personal testimonial to the laetrile, a friend's grandfather... he told me that his dad was diagnosed, went with chemo and was dead within months, but his grandpa was diagnosed with lung ca, given 6 months to live, took laetrile and died 10 yrs later of something else.   He remembers his grandma going to Mexico to get the stuff.  I do not know how it was administered though.

That's-life, I don't think that there are very many hardcore alt people on this board so it's hard to compare the success rates... I think it's a tough road no matter which way you go.  :(

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Oct 26, 2011 11:48AM MariannaLaFrance wrote:

That's Life- thanks for the book recommendation. I need to check that book out. Bravo that you are trying to nourish your immune system with those methods like meditation, de-stressing, good foods. It's really all we have control over, when you think about it. I will try to get a copy of that book, as it sounds interesting.

Life life fully, do not stress, eat well, have healthy activity and exercise, enjoy your days and nights. That's about all the influence we have personally in the battle. 

As for the laetrile, don't know much about it, except that it was tried in the 1970s as a cure, but hasn't been proven statistically to reduce cancer. Is B17 beneficial? Probably, but we still don't know how those damned cells start "turning on" to begin with. If we ever discover the process of gene mutation, we could probably figure out what triggers the cancer gene to turn "on".

Eveberry, best to you in your decisions on treatment. I have heard that Cancer Centers of America does offer holistic treatment (conventional included) for cancer patients. It is supposed to be pretty pricey, however.

Dx 1/26/2010, DCIS, <1cm, Stage 0, Grade 1, ER+/PR+, HER2-
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Oct 26, 2011 12:34PM - edited Oct 26, 2011 12:40PM by Hindsfeet

I'vejust learned that there are clinics in the U.S. who do the laetrile and vitamin C infusions...you do it everyday for 3 weeks (also diet) with incrediable results. The biggest problem for me is insurance doesn't cover alternative medicine. There are other alternative websites, where people give testimonies of cancer recovery even from late stage cancers.

I am forunate in that I found my original cancers at an early stage, and viligent screening hopefully again found the cancer I now have before it has spread beyond the breast. The biopys after surgery of course will give me a clearer picture of any possible further invasion. For this reason right now a mx may be preventive enough. If I learn that the cancer I now have has gone beyond the breast area, I will seriously check out the vitamin b-17, vitamin c infusion therapy. I struggle with any treatment that will harm or suspress the immune system.

Dx 6/13/2014, IDC, 1cm, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Oct 26, 2011 12:45PM - edited Oct 26, 2011 12:46PM by jyg

evebarry - incredible results? Can you provide links please?

BMX 5/26/2011. Incisions revised 6/14/2011 for skin necrosis. Silicone implants 9/28/2011. writingtowellness.wordpress.com Dx 4/27/2011, DCIS, 1cm, Stage 0, Grade 2, 0/3 nodes, ER+/PR+
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Oct 26, 2011 08:46PM - edited Oct 26, 2011 08:51PM by princess123

Oasis of Hope Hospital uses laetrile therapy, vitamin c therapy, nutritional therapy, metabolic therapy etc . www.oasisofhope.com  
"Be patient. God is using today's difficulties to strengthen you for tomorrow. He is equipping you. The God who makes things grow will help you bear fruit." Max Lucado
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Oct 26, 2011 09:20PM - edited Oct 26, 2011 09:46PM by Hindsfeet

This Post has been removed by the Community.
Dx 6/13/2014, IDC, 1cm, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Oct 29, 2011 11:50AM Hindsfeet wrote:

Ok...I would like to know why the community deleted my last post. There was nothing personal on it...just a link to hear a conference on alternative medicine. Doesn't matter because the conference is over and you can't link onto it anymore. 

Remember ladies this is an alternative thread. Although I am not a supporter of chemo, I'm not about to delete threads that support chemo. I support my bc sisters no matter what choices they make because I know we are all in the same boat fighting for our lives.

Dx 6/13/2014, IDC, 1cm, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Oct 29, 2011 11:57AM impositive wrote:

What! They deleted your link?!

How does this work? What has to happen for the community to delete a post?  Does it take a certain number of people to "report" or what?

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Oct 29, 2011 08:50PM - edited Oct 29, 2011 08:51PM by Hindsfeet

I got wind that my post was deleted because someone actually thought I was making money when someone clicked onto the link. This is ridiculous! I am not selling anything or advertising anything at bco. I just heard about the conference earlier this week and posted the link on this tread because it was interesting.

So...if you think it is true that I am making money, I ask you to prove it. If you thought I was doing something against bco policy, why not report it, or send me a pm. Find out the facts before judging. I am hurt that someone would do something like this. :(

I am here at BCO for support, and to learn. I don't think right now I need to be harash by women whose job it is to police the alternative threads. I am going through enough right now in making tough decisions, and a upcoming mastectomy.  

Don't you think my recent cancer dx is enough to deal with?

Dx 6/13/2014, IDC, 1cm, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Oct 29, 2011 09:28PM thats-life- wrote:

I know you are under stress eve, waiting to know the extent of your dx.  Im sure your interest is much like mine...a possibility, a hope, for a treatment that will work in the future. but something that has to be researched thouroughly. I had no idea what affiliated meant. Have a look at the page link on the 'turnip' post to get a better idea of how it works....thinking of you as always, n.

It is the opportunity to build what one loves into something permanent that makes this very difficult game worthwhile. mets skull, rib, hip, spine. Dx 8/2010, IDC, 1cm, Stage IV, mets, ER+/PR+, HER2-
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Oct 29, 2011 09:58PM Hindsfeet wrote:

I will try to find the site's address and look at it again. I copied the links address from the video I saw of the lectures. If anyone listened to the lectures, you would have learned it represented alternative speakers representing different alternative viewpoints. Some were alternative, and conventional doctors, doing both. Anyone could had listened to these incrediable speakers free, no charge. The conference wasn't pushing anyone alternative approach...just letting you know the wide variety of choices that are out there. I don't know who put the conference on. I didn't notice a network marketing scheme.

Thanks n, for your gentle words. I appreciate it.  

Dx 6/13/2014, IDC, 1cm, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Oct 29, 2011 10:38PM Kaara wrote:

evebarry:  I appreciate that you posted the site because otherwise I would not have known about it or had the opportunity to listen to so many excellent speakers on integrative and alternative medicine.

Like you, I am new to this journey, waiting for a diagnosis, and exploring my options from a conventional, integrative, and alternative approach.  I'm not willing to just accept a doctor's word for what is best for me...I must be comfortable with my decision.

All the best to you, and don't let another's ill placed thoughts take up space in your head.  We need all the energy and clear focus we can get to fight this challenge. 

Kaara Dx 11/14/2011, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Oct 29, 2011 11:51PM princess123 wrote:

Evebarry I posted information about the conference after Althea did. And "the community", whoever they are, assumed that we were making a profit and had the information removed. 

Because I didn't recieve a PM from a BCO rep, I did not think BCO had a problem with the event. So I just ignored the tasteless comments.  After all, the online event was free. Why would anyone be offended by a free event.  Like you, I never noticed an opportunity to become an affiliate or was told of any during the registration process. I was just happy it was free. How often do opportuinities to learn about alternative and integrated treatments from the best in the field come along?  

Tonight I went back to the site, looking for the information about being an affiliate. If you go to the bottom of the page, you could click on 'affliate' and there is in fact instructions on how one could become one. The organizers did a poor job of promoting that. All three of us missed it. Then again, unlike "the community" we weren't looking for  an excuse to casually dismiss an important event.

I'm so sorry that this silly drama is adding to your stress. The only thing I can say is ignore it. You have more important things to worry about right now.

Also, I'm really sorry that you missed the first night. It was packed with information. Dr. Gonsalez spoke a bit about laetrile therapy.

BTW thanks for letting us know that there is an  anti-alternative medicine "community" specially assigned to harass the women on the alternative forums. That's good to know. It was nice chatting with you all.   Take care of yourselves.

Big Hugs,

Sharon

"Be patient. God is using today's difficulties to strengthen you for tomorrow. He is equipping you. The God who makes things grow will help you bear fruit." Max Lucado
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Oct 30, 2011 12:42AM Seashellie wrote:

Evebarry,

I'd just like to say thank you for passing on the link to the free online lectures. I've been listening daily and learning a lot from the different speakers. These boards are for sharing and I appreciate the opportunity to learn of any free events such as this. 

Warmly,

Shelly

BMX 6/30/11, DIEP 11/28/11, No chemo/rads, Femara Dx 6/16/2011, ILC, 1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Oct 30, 2011 01:23AM impositive wrote:

I listened to the event.  There was valuable information there so I too thank you eve!  We are experiencing right here on BCO just a glimpse of what some of these courageous doctors face in their everyday lives...censorship and bias.  

I have recently learned that my cancer has moved to my lymph nodes.  I am moving forward with an alternative treatment that includes intraveous DMSO, high dose vit C and laetrile.  With the research and free information posted here by all you forward thinkers, I can be confident I am making informed decisions and choosing what's right for me.  Keep posting the info ladies.

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Oct 30, 2011 12:51PM Ang7 wrote:

I have been on this site since 2009.  I enjoy reading both conventional and alternative information.  I am not aware of there being "an anti-alternative medicine community specially assigned to harass the women on the alternative forums." 

Can't we all just get along?

Very pleased Penguin Cold Cap user Dx 5/25/2009, IDC, 2cm, Stage IIA, Grade 2, 1/4 nodes, ER-/PR-, HER2+
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Oct 30, 2011 01:32PM - edited Oct 30, 2011 01:36PM by Hindsfeet

Ang7.... I'm not aware of anti-alternative community either...but have heard that there are those who look for opportunities to find fault with those who support alternative medicine. Believe me, mostly I ignore them... it was that they put up a thread leading others to believe that there were some of us who were profiting from the free lectures which wasn't the case. We just wanted those interested in alternative medicine to hear the free lectures...nothing more than that.

Their thread was removed because it became personal against us...so we're moving on, and hopefully they do as well.

Dx 6/13/2014, IDC, 1cm, Stage IV, Grade 3, mets, ER+/PR+, HER2+
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Nov 7, 2011 03:13PM macygrace wrote:

My mom believe's in the B17 and has been pushing me to take 1 tbs. a day mixed in with 1/4 cup of cottage cheese. I was leary of it for months as too much of this can become toxic to your system. I know a few people who do take it and have for years. One is a breast cancer patient and her cancer has never returned nor has she had problems. I have a mechanical heart valve and take coumadin, a blood thinner. I figure at this "stage" in the game what could it hurt to take it 2 days in a row and off 2 days ...rotating in that fashion.

A few months back I saw a woman in the news who has fought several rounds of cancer. Her book is now out. It's called...LOL...Kicking Cancers Ass. I remember she was really into meditation, exercise, and veggies.

ER+/PR+ HER- Stage IV Met to hips, spine, sternum, sacral, Diagnosed 12/30/10
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Nov 7, 2011 07:45PM impositive wrote:

I am currently taking B17 intravenously with Vit C and DMSO.  I'm not sure of the amount. I will have to ask tomorrow but I am sure it's more than 1 tbs per day so I wouldn't be too worried.  

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Nov 8, 2011 11:23AM Kaara wrote:

impositive:  I am very interested in your journey.  I would also entertain the idea of becoming a patient of Dr. Lodi should my diagnosis warrant.  I should know something by next week.

I wish you all the best.  Sending you prayers and positive healing energy! 

Kaara Dx 11/14/2011, IDC, <1cm, Stage I, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Nov 8, 2011 11:29AM geewhiz wrote:

I did the vitamin c therapy once every 2 weeks for about a year...I was supposed to do dmso, I just needed a breather.
Laetrile can be ordered and self injected. I do it with iscador, but havent done laetrile....YET!

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Nov 9, 2011 02:16AM impositive wrote:

Kaara, I will definitely let you know how it goes.  My next PET (post treatment) will be in sometime in December.  So hopefully, I will ring in the new year with renewed hope!!

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