We are 189,077 members in 81 forums discussing 141,608 topics.

Help with Abbreviations

All TopicsForum: Alternative Medicine → Topic: Treating estrogen responsive cancer naturally

Topic: Treating estrogen responsive cancer naturally

Forum: Alternative Medicine —

This forum is a safe, judgement-free place to discuss Alternative medicine. Alternative medicine refers to treatments that are used INSTEAD of standard, evidence-based treatment. Breastcancer.org does NOT recommend or endorse alternative medicine.

Posted on: Aug 6, 2012 09:37PM - edited Aug 8, 2012 01:31PM by Natkat

Natkat wrote:

Hello please post here ONLY if you are researching or using natural tx to address hormone responsive cancer. Please stay on topic - no posts about standard drugs or ovary removal. No posts about general anti cancer. Thread for people who need alternatives SPECIFIC to hormone responsive cancers

Will share my own research and looking foward to hearing about yours
Thank you

Dx 6/2012, ILC, 4cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+
Log in to post a reply

Page 65 of 67 (1,996 results)

Posts 1921 - 1950 (1,996 total)

Log in to post a reply

Jan 29, 2017 05:10PM sarahrae wrote:

Gardengypsy~

I have taken NAC as well as sublingual Glutathione. Yes, it is one of the best antioxidants around and offers huge liver protection/support. I feel like my liver needs as much love as possible with this cancer diagnosis.

fyi, the sublingual form can be kinda intense to take, sulfur taste and size of tablet. but, worth it IMO

hugs!

sarah rae Dx 2/19/2016, IDC, Right, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/9/2016 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy Whole-breast
Log in to post a reply

Jan 29, 2017 07:51PM gardengypsy wrote:

sarahrae

Did you stop taking it? If so, why?

Dx 10/29/2015, ILC/IDC, Left, 5cm, Stage IIIA, Grade 3, 1/1 nodes, ER+/PR+, HER2- Surgery 12/3/2015 Lymph node removal: Sentinel; Mastectomy; Reconstruction (left): Tissue expander placement Chemotherapy 1/9/2016 AC + T (Taxol) Surgery 5/23/2016 Hormonal Therapy 5/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 6/6/2016 Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Jan 29, 2017 08:03PM gardengypsy wrote:

Very determined~ I am on your island. Stopped Tamoxifen after only 7 months.

I want to be able to take supplements that were not ok with the Tamoxifen so trying Letrozole.

Right now, I am consulting with as many alternative practitioners as possible. Plus, a second opinion with an MO.


Dx 10/29/2015, ILC/IDC, Left, 5cm, Stage IIIA, Grade 3, 1/1 nodes, ER+/PR+, HER2- Surgery 12/3/2015 Lymph node removal: Sentinel; Mastectomy; Reconstruction (left): Tissue expander placement Chemotherapy 1/9/2016 AC + T (Taxol) Surgery 5/23/2016 Hormonal Therapy 5/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 6/6/2016 Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Jan 30, 2017 01:23PM BlueGirlRedState wrote:

For those who take aromatase inhibitors or have been prescribed AIs has anyone had a meaningful discussion with the DR on side effects, monitoring side effects, "safe" levels of estrogen, alternatives to AIs, foods/products to avoid that may have synthetic estrogen (BPAs, others?) ? AI is being prescribed, but I have not started. I am concerned about risks to heart/heart disease, osteoporosis, arthritis, and myalgia - many of these already a problem for postmenopausal women. Some of the side effects sound as if they stop once the drug is no longer taken, but others sound as if they could be permanent. I exercise regularly and usually keep to a fairly healthy diet.

Log in to post a reply

Jan 31, 2017 09:44AM dtad wrote:

Bluegirlredstate...tried to have a meaningful discussion with my MO about the SE of aromatase inhibitors but when she told me there are none the discussion ended! How could she possibly say that? So I did a lot of research and talked to my BS who was much more forthcoming. I have decided to refuse anti hormone treatment for now. I have multiple reasons if anyone would like to discuss further feel free to PM me. Good luck to all navigating this disease.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
Log in to post a reply

Jan 31, 2017 01:19PM BlueGirlRedState wrote:

dtad - how could your DR say there are no side effects from AIs ? Even the drug manufacturers don't claim that. AI was delayed for me, because radiation was being considered and now is ruled out because of radiation 7 years ago. I see my Oncologist today. She has been easy to talk to, and will discuss side effects, and has never ended the discussion because of my questions. She even changed the initial chemo cocktail when I expressed concerns about the third drug being added to the TC cocktail. She is an advocate of healthy lifestyle/diet (Mediterranean), organics, and activity/exercise. I'm not sure if I will refuse the Rx or not, but I am interested in learning about experiences of others, alternatives, and mitigating potential side-effects.

Cancer treatment seems to be change as more is learned, and ever cancer and every person can be unique. But it seems as specialists have nothing else to offer, and that they feel that the risks from cancer/recurrence outweigh potential or even likely side effects from Rx. AIs concern me because of possible bone thinning, osteoporosis, arthritis, joint pain, and heart problems. These are already concerns for me since I am almost 60. Sometimes an Rx will be changed because of side-effects, other times another drug is used to chase the side effects (UGH). I will get my Vitamin D (important for calcium absorption) checked today with the regular blood work done for post chemo. I do take Curamin (tumeric) for joints as well as adding tumeric to food, and I think it helps.

Log in to post a reply

Feb 1, 2017 09:16AM dtad wrote:

bluegirlredstate....Exactly my point! After she said that I had no use for her....

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
Log in to post a reply

Feb 2, 2017 06:53PM Mini1 wrote:

Blue girl - I was prescribed 2 aromatase inhibitors. I had to stop one after about 10 days. The second was about a month. I had horrible SE's. Bone pain, insomnia-6 hours of sleep in 3 nights with a sleeping pill - falling, loss of balance, memory loss, extreme mood swings, loss of appetite and many other minor SE's. Most subsided after I got off of them, but it took many months, and more than a year of yoga classes to regain most of my balance. I will never take another AI, but I know some women that were able to tolerate it. I don't have many SE's on Tamoxifen, but I still haven't decided if I will take it beyond the 5 year mark.

Good luck with your decision making.

Blessings

"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." - Jeremiah 29:11 Surgery 4/16/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Feb 16, 2017 12:35PM mapat wrote:

A series of talks some of you may be interested in;


http://squareone.chrisbeatcancer.com/module-1


Log in to post a reply

Feb 24, 2017 10:57PM Cath78 wrote:

Me too. Agree totally. We have to do what feels right. We made educated decisions.

Believe , do research and be positive.

Log in to post a reply

Mar 6, 2017 11:39AM mapat wrote:

This was an interesting topic, considering one of the benefits of eating organic.

Reminds me of exposing children to 'dirt'/etc to build up a healthy immune system. And another reason why so many of our fruits and veggies may not be quite as nutritious/healthy as they may have been in previous generations.
Perhaps for prevention organic may not be necessary, but considering that I am fighting active cancer, for me, organic may be a better choice.
Really interesting and makes sense; now I'm off to do more research...

"Salvestrols are plant derived compounds (phytonutrients) essential for wellbeing that cannot be made in the body and must therefore be supplied through our diet. As a group, these substances are chemically unrelated but nevertheless confer their benefits in a similar manner by reacting with a particular enzyme. This enzyme converts salvestrols into a form that is toxic to malfunctioning cells"

" The team has now shown that these important substances are produced by plants to protect themselves from pests and disease in a similar way that mammals have evolved to use them. However, the use of many modern fungicides and crop protection chemicals means that plants which are not organically grown will not express high concentrations of salvestrols because they are never exposed to the attacks which cause the plant to produce them at such levels! About 100 years ago it is estimated that we would have consumed about 10 times the amount of salvestrols in our diet as we do now."

http://www.salvestrol.ca/diet.asp




Log in to post a reply

Mar 6, 2017 02:25PM abigail48 wrote:

and the fruits have been modified for convenience....ever eatern a real orange??many seeds,impossible topeal without a knife, skin tough and the green liquids from the skin very strong and probably very good for you

Log in to post a reply

Mar 6, 2017 05:56PM abigail48 wrote:

there's a site bembu.com/estrogen rich foods

Log in to post a reply

Mar 7, 2017 03:21AM Momine wrote:

Blue Girl, My docs always ask how I am doing with the AI. They are very aware of the side effects and the fact that many women "cheat" because they can't deal with it. At the same time, my main doc told me that it wasn't useful to discuss specific SEs ahead of time, because it varies greatly from patient to patient. He told me to start, and let him know what I encounter. I was DXed at stage 3B. Long-term survival is not great with this DX. So, in my case, the inconvenience of the SEs is worth it.

So far (5 years in), my main SE is foot pain. It comes and goes and is usually more of an annoyance than an outright pain. It is like arthritis, so moving helps. However, I have given up heels. In general, with all the SEs associated with treatment, I have found exercise to be the #1 antidote. #2 antidote is mindset. You can choose to make SEs the focus of your life or you can choose living your life as the main focus. #3 is diet. Eating a decent, healthy diet high in veggies and fibre, with lots of herbs and spices etc. can help reduce inflammation and just generally promotes well-being and maintaining a healthy weight.

Dx 6/1/2011, ILC, 5cm, Stage IIIB, Grade 2, 7/23 nodes, ER+/PR+, HER2- Chemotherapy 6/20/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 9/13/2011 Mastectomy: Left, Right Radiation Therapy 1/9/2012 Surgery 3/8/2012 Prophylactic ovary removal Hormonal Therapy 4/1/2012 Femara (letrozole)
Log in to post a reply

Mar 7, 2017 03:20PM mapat wrote:

abigail48 " and the fruits have been modified for convenience....ever eatern a real orange??many seeds,impossible topeal without a knife, skin tough and the green liquids from the skin very strong and probably very good for you"


I look in every store I go into, trying to find those REAL oranges, nope, all I ever see are naval, maybe occasionally tangerines, or mandarin oranges. I think real oranges also have better flavor--would really love to find some. Most fruit from any store is also unripe/hard, and last peaches I bought rotted before they ripened. :(

Just have to wait for the fresh fruits of summer I guess...

Log in to post a reply

Mar 7, 2017 05:30PM abigail48 wrote:

I got the orange I'm talking abou t in jamaica 1965plus/minus may not be there any more either but I expect they're trees still with them at least


Log in to post a reply

Mar 7, 2017 05:36PM - edited Mar 7, 2017 05:37PM by abigail48

I was in jamaica several years 1965 to 1970, can't remember which year I got the orange, not the last year I was there, one of the earlier years, never tried to get another, they had only that kind and impossible to managewithout a knife

Log in to post a reply

Mar 7, 2017 06:28PM - edited Mar 7, 2017 06:34PM by Icietla

Naranjas. Likely from the Chiriqui area. They are oranges, just oranges, and except for being oranges, they are unlike the varieties more familiar to us here in North America. They are fine for fresh-squeezed orange juice, but not nearly as good for that use -- not nearly as juicy and not nearly as sweet -- as Valencia oranges. Yeah, they are different. As far as I know, nobody eats them -- folks just cut them into halves for squeezing. Navel oranges, mandarin oranges, blood oranges, Cara Cara oranges, and tangerines are all great for eating.

Dx 2/12/2016, ILC, Right, 2cm, Stage IIA, Grade 1, 0/13 nodes, ER+/PR+, HER2- Surgery 2/19/2016 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy 4/1/2016 Femara (letrozole) Surgery 4/26/2016 Prophylactic ovary removal
Log in to post a reply

Mar 11, 2017 10:26AM mapat wrote:

Has anyone tried or done any research on salvestrols?

It makes a lot of sense to me.

http://www.salvestrol.ca/aboutsalvestrols.asp

http://www.ijopt.org/IJOP_SPRING_2013.pdf

http://mcr.aacrjournals.org/content/4/3/135


Log in to post a reply

Mar 11, 2017 02:04PM labelle wrote:

http://undergroundhealthreporter.com/salvestrols-a...


Dx 9/29/2014, IDC: Tubular, Left, <1cm, Stage IIA, Grade 1, 1/11 nodes, ER+/PR+, HER2- (FISH) Surgery 11/13/2014 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy Whole-breast: Breast
Log in to post a reply

Mar 14, 2017 09:51AM - edited Mar 14, 2017 09:54AM by mapat

When salvestrols come into contact with the CYP1B1 inside human cancer cells, they become "activated"—and cause the cancer cells to stop growing or die. http://undergroundhealthreporter.com/salvestrols-a...

Salvestrols are generally lacking in commercially grown and fungus/herbicide/pesticide covered foods; much more abundant in organic fruits and veggies. Perhaps why some people respond better to a whole-food plant based diet--if they use organically grown foods. (Or extreme amounts of organic foods)Also, exposure to environmental chemicals or cig smoke can interfere with salvestrols. Also, foods that are allowed to ripen fully before being picked are much higher in salvestrols, and we all know how very unripe fruits and veggies in the supermarket generally are! And hybrid varieties are engineered to contain less salvestrols (because they can contribute to a bitter/tart flavor).


Another reason to consider organic foods:

Glyphosate induces human breast cancer cells growth via estrogen receptors.

http://www.greenmedinfo.com/article/glyphosate-ind...

I think it is important to be eating fresh, whole, naturally grown (organic) foods with the enzymes, etc ('life force') still intact.

Log in to post a reply

Mar 15, 2017 09:32AM mapat wrote:

BPA increases estrogen receptor-positive breast cancer tumor maintenance through enhanced cancer stem-like cell activity

http://www.greenmedinfo.com/article/bpa-increases-...


Log in to post a reply

Mar 18, 2017 09:37PM gardengypsy wrote:

Mapat~

"Yes" to salvestrols, "no" to BPA (don't even think of touching a cash register receipt!).

Dx 10/29/2015, ILC/IDC, Left, 5cm, Stage IIIA, Grade 3, 1/1 nodes, ER+/PR+, HER2- Surgery 12/3/2015 Lymph node removal: Sentinel; Mastectomy; Reconstruction (left): Tissue expander placement Chemotherapy 1/9/2016 AC + T (Taxol) Surgery 5/23/2016 Hormonal Therapy 5/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 6/6/2016 Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Mar 25, 2017 03:47PM mapat wrote:

found this today, one more reason to avoid that fatty peanut butter?

https://eatandbeatcancer.com/2014/11/10/breaking-a...

https://www.immunodiet.com/evidence-for-peanut-avo...


Log in to post a reply

Apr 12, 2017 02:23PM Artista928 wrote:

Momine- I agree with what you wrote about stage 3B and what you are doing. Combo of hormone therapy and eating well for us stage 3ers. The pattern I see with folks going all natural to try to decrease estrogen is they are all stage 1. For us higher stages, unless Tamox and AIs all make life miserable with no relief from advised supps and exericse, it would be a larger risk.

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Apr 12, 2017 08:52PM gardengypsy wrote:

Artist: Don't forget exercise on that list!

Dx 10/29/2015, ILC/IDC, Left, 5cm, Stage IIIA, Grade 3, 1/1 nodes, ER+/PR+, HER2- Surgery 12/3/2015 Lymph node removal: Sentinel; Mastectomy; Reconstruction (left): Tissue expander placement Chemotherapy 1/9/2016 AC + T (Taxol) Surgery 5/23/2016 Hormonal Therapy 5/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 6/6/2016 Whole-breast: Breast, Lymph nodes, Chest wall
Log in to post a reply

Apr 13, 2017 09:41AM dtad wrote:

Artista...I completely agree. It's much easier for those of us who are stage 1 to refuse the anti hormones. That's one of the main reasons I want us to speak up for better treatment options. There are just too many of us that feel they have to use the big guns to survive and many of them are suffering the SEs. Good luck to all navigating this complicated disease.

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
Log in to post a reply

Apr 13, 2017 12:30PM CeliaC wrote:

dtad - Happy to hear from another stage 1 that has kindred feelings about the anti-hormones. Just began on 1/2 pill on 4/5/17 and will start in on whole pill on Sat. Went round and round with MO in two separate visits as very skeptical about the side effects vs benefits. Ultimately, the thought of BC metastasizing elsewhere, and being more difficult to treat, drove me to "accept" the AIs. That being said, am still going with anything more "natural" that I can throw at the Beast. MO did agree that if taking AIs means Quality of Life is suffering badly, that I could stop, but should at least "try" first.

Dx 12/2/2016, DCIS/IDC, Left, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 12/21/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/21/2017 Whole-breast: Breast Hormonal Therapy 4/5/2017 Arimidex (anastrozole)
Log in to post a reply

Apr 13, 2017 12:46PM Butterfly1234 wrote:

I'm in agreement as well. I'm starting Arimidex when my rads are completed in early May. There's been some discussion on the Armidex thread about name brand vs generic anastrozole. Several ladies have said they have fewer side effects on the name brand and some have said they do better with the generic brand manufactured by Teva and not the other manufacturers. I don't think there's been a study on this, but I do give some credence to anecdotal evidence. I too, am very concerned about potential SEs. I already have slight osteoporosis. This is not in any way an endorsement of one med over another. I'm just trying to find my way through this BC maze

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/26/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2017 Whole-breast: Breast Hormonal Therapy 5/8/2017 Arimidex (anastrozole)
Log in to post a reply

Apr 13, 2017 04:38PM movingsoccermom wrote:

I did a 10 day trial of Arimidex. I had night sweats, difficulty sleeping, nightmares, severe hip pain, vertigo, mood swings, and exceptional headaches that would not respond to treatment. I quit with no regrets and have no intentions of trying again. My Oncotype was very low, so very little risk of recurrence regardless. I have resumed some exercise but am hampered by the long term irritation from the sentinel node biopsy, and the lingering hip pain. Instead I have am taking Metformin and Diclofenac to address both the metabolic syndrome (no weight loss), pain and inflammation. I really appreciate all the information gathered here. Best wishes to everyone.

Dx 3/3/2015, IDC, Right, 2cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 4/1/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 5/27/2015 Whole-breast: Breast, Lymph nodes

Page 65 of 67 (1,996 results)