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Nov 19, 2014 02:26AM
Nov 19, 2014 02:26AM
I wanted to add that on the original site for this protocol, the site that music lover posted, they go to some length to explain that in addition to the "product" (the content of which is not really explained from what I can see), the protocol includes a number of other interventions, many of which (they say this themselves) are also used by doctors. They specifically mention B12 vitamin sometimes being helpful in Parkinson's. They keep emphasizing that any improvement is likely to be from the supplements, not the "product."
So it sounds to me as if they have collated a number of supplementation and diet approaches that are commonly used for various diseases and then they have added their super-duper, mystery-magical product to the mix, which is what suddenly bumps the cost up to 17K. In other words, a good dietician, open-minded onc or other practitioner could probably suggest the same supplements etc. and for a lot less money.
3 years of living with this stupid disease has, however, also made me understand why we cancer patients are so vulnerable to these kinds of promises. The total randomness of the disease is conducive to magical thinking. People used to have rain-making rituals, because without rain they would die, and rain was unpredictable. To feel a semblance of control over such an important matter, we started dancing rain dances.
I really fervently hope that one of these days we will have a true "magic potion" that can either eradicate the cancer or else keep it permanently in check. I keep having the feeling that we are currently only hacking at the corners of the cancer, sometimes more successfully than others, and that we are still missing some key piece of the puzzle.
Oh, and also what Caryn said.
6/1/2011, ILC, 5cm, Stage IIIB, Grade 2, 7/23 nodes, ER+/PR+, HER2-
6/20/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
9/13/2011 Mastectomy: Left, Right
3/8/2012 Prophylactic ovary removal
4/1/2012 Femara (letrozole)