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Topic: Did someone tried B17 or GCmaf?

Forum: Alternative Medicine —

This forum is a safe, judgement-free place to discuss Alternative medicine. Alternative medicine refers to treatments that are used INSTEAD of standard, evidence-based treatment. Breastcancer.org does NOT recommend or endorse alternative medicine.

Posted on: Mar 19, 2018 09:15PM - edited Mar 19, 2018 09:16PM by Noba

Noba wrote:

Did someone tried B17 or GCmaf?

I'm thinking on going with alternative medicine only. My doctor says that my only option is chemo,but i can't take it anymore. I already had 14 on the past. I would love to hear your stories, please!!

Thanks a lot

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Dec 4, 2018 09:00PM - edited Dec 5, 2018 03:23PM by KeepingitSimple

Noba

I have been on both for over a year, with great success. I was diagnosed 21 months ago, triple positive, grade 3, stage 2 when diagnosed @ 2.4cm. I successfully shrunk tumor into stage one 1.8cm (by the time surgery came about) using keto diet, GcMaf and B-17, boswellia, CBD, along with a few other integrative treatments like high dose Vit C Iv's. Mostly I trusted God to guide me to make the best decisions.

My oncologist of course told me it would come back in six months, and I'd be dead in 18-24 months if I didn't do the standard chemo, rads, surgery, herceptin, hormone tx. I declined all but surgery. I was my own advocate and researcher, but have three friends that I respect who also gave input: a retired oncologist, an active oncologists' nurse and a pediatric doctor. Outside of the office/patient setting, they each confided that sometimes the treatment is worse than the disease. Of course, I already knew that; two of my best friends died of chemo, NOT cancer. Another friend died of a heart attack after receiving herceptin (which causes heart damage). I have a heart issue (AFIB) already, and was told I'd likely have a heart attack during some of the 27 treatments recommended but they would "revive" me. 27 times? No thanks.

I know conventional tx works for some, but I wasn't willing to be in the statistic that it doesn't work for. So, I declined all toxic treatment, accepting my fate either way. Long journey, but I am approaching two years now and doing great.

Pet Scan confirmed no recurrence OR mets as of two months ago.

I feel better than I have in years. Lost 35 pounds, my hormones are balanced, and no matter what -- I know I made the right decision for me.

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Dec 5, 2018 12:07PM edwards750 wrote:

Ladies -it’s your call and your life. Losing friends from the treatment not the disease is horrific. I didn’t have chemo but I did have radiation. Chemo was on the table temporarily because of a micromet in my SN. I had the Oncotype test done and my score came back @11 so I dodged chemo but I’m not sure I would have done it anyway. I too had heard horror stories about it.

I really resent the way doctors shove treatment down your throat along with an expiration date if you don’t have them. Such compassion and understanding. Not. They are no longer the last word. They can advise but they can’t coerce. I’m sure they believe their word is gospel but while we appreciate their expertise they are still human and not infalliable.

Do what it’s best for you. Don’t be swayed by their dire predictions of death. Frankly that’s a cheap shot.

Diane

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Aug 24, 2019 03:08PM - edited Aug 24, 2019 03:22PM by KeepingitSimple

I know this is an old post, but I thought I'd update for those who wonder how effective Integrative & alternative treatments are. Of course, it varies, and depends on how diligent a person is committed to their protocol.

That said, I'm 30 months out from the dreaded "you'll have 18-24 months to live if you don't do chemo" prognosis. The prognosis I was given with toxic treatment was 5 years. Well, I've already given myself half that using integrative methods, and without all the nasty side effects of chemo and drugs. The Integrative doctor I chose is wonderful and has 30+ years experience.

I feel great, and do not regret my decision(s) to forgo toxic treatments. I've continued with natural immunotherapy which includes B-17 and GcMaf, boswellia and CBD. Of course no sugar, maintaining a balanced PH, a modified keto diet, plus light exercise. Instead of drugs to block my estrogen, I balanced it with EstroDim. Many, many supplements and other things but these are the main ones.

This protocol has worked for me, with positive benefits and results. Not a single negative side effect. I credit this to many things: I trusted my instincts, did hundreds (if not thousands) of hours of research. I consulted with retired (conventional) doctors who openly shared their knowledge about mainstream treatments, and guided me to integrative & alternative treatments they knew showed great promise. I was fortunate enough to meet a few other women who also refused toxic treatment and were having success. It was difficult but the biggest hurdle was to let go of the fear. After that, things started to become easier.

Once a person fully understands how a body works internally, and how God intended it to heal itself, I let my faith and own common sense intelligence guide me. Mostly, I fully believe(d) in the methods (treatments) I ultimately chose; the mind in itself is a powerful tool.

There is a documentary on Netflix called "HEAL" which showed the power of believing. It referenced conventional studies on drugs, and how the same % of improvement happened with patients given a placebo. Belief can become reality. But that is only one tiny component, believing with all your heart and soul.

All of you here know Cancer is a life altering wake up call. A person can choose to let it control them, or can see it instead, as a gift to use for betterment. We all have limited time here on earth. I chose to make my journey with BC a positive one. I'm grateful for the way it bettered my life. I am in remission now, and feel I have many years left -- as long as it's in God's plan. I know it will be a life long commitment to stay healthy. But that's okay with me. :)

I hope this helps - for those of you struggling with seemingly impossible decisions. Have faith in yourself, don't let fear rule your decisions, and believe & trust in God's plan for you!




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Aug 24, 2019 04:38PM exbrnxgrl wrote:

Super! Whose G-d are you referring to and what about our dear sisters who are atheists or agnostics?

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Aug 24, 2019 07:23PM MelissaDallas wrote:

You do realize that the non-toxic B-17 is effectively cyanide, right

LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
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Aug 24, 2019 07:38PM - edited Aug 24, 2019 07:40PM by Olma61

I was diagnosed as Stage 2, HER2+ and my doctors told me it was curable.

I doubt any doctor told anyone that they had five years to live after treatment for Stage 2 breast cancer, aggressive or not.

Also, Herceptin does absolutely not cause you to have a 'heart attack' while you are sitting in the infusion chair. It can cause a patient to develop heart failure, which is different than a heart attack, but no one would need to "revive" you from that 27 times. This is a serious side effect, no doubt, and it occurs in a minority, but a significant number, of patients. The percent of people who develop it is around 28%. When it does develop, you go off the medication.

If you had a pre-existing heart condition, it is possible that Herceptin would not be indicated for you and doctors would not try to talk someone into it if they are not healthy enough for it.

I (and everyone who gets Herceptin) had to undergo an ecocardiogram before starting treatment. If your heart function is not good enough, you can't start it.

And, we in Stage IV get periodic ecos to make sure we are still fit enough for the treatment.

Having surgery is conventional treatment so this "story" is one of complementary therapies, not alternative.

I agree with not making decisions out of fear. Fear of chemo or Herceptin based on misinformation is also fear.

Indeed, we should do our research and make our decisions on correct information, not on unverified claims made on message boards.

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
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Aug 24, 2019 08:04PM KeepingitSimple wrote:

Exbrnxgrl. The documentary I mentioned was not religious based; it was data based on the power of belief in our own minds. I once was agnostic. Through meditation, experiences, and study, I came to believe in a universal higher power (regardless of any name that gets attached to it) long before my diagnosis.

Women suffering from breast cancer go through a tsunami of stress and emotions. I've been there. When I first was diagnosed, I read dozens of posts that left me hanging ... never knew if the person is still alive, or if they had a recurrence, if treatment worked, etc.

Regardless of individual beliefs; agnostic, atheist, or a believer; the purpose of my post was to provide updated information to BC patients considering integrative or alternative care, specifically GcMAF.

Keeping on topic, Noba originally asked about GcMAF, so I posted to verify it is part of my protocol. After 30 months, I am still alive, in remission, and doing well.

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Aug 24, 2019 10:08PM KeepingitSimple wrote:

Olma61. You said you were HER2+, were you triple positive? DCIS or IDC? What grade? Any heart conditions? How was your blood count? White Cell count? Pre or diabetic? Hypertension? What meds were you on? How were your liver, kidney, pancreas, functions? any chronic issues? Osteoporosis? All these things can influence a patients chances of getting through chemo and herceptin.

Each patient is different and entitled to make their own choices; clearly you support mainstream treatments. I respect that, but this post was in the alternative medicine forum, please don't post if you are trying to hijack the topic or dispute opposite views.

Respectfully, you weren't there by my side, so your unfounded statement seem to be an attempt to validate your views. I did not tell a "story", I shared facts. A close friend was with me during many of my appointments, and was equally alarmed at the detached replies given to many of our questions.

My oncologist did indeed tell me that heart attacks usually happen within two hours of receiving herceptin, therefore I would be kept to monitor for at least 2 hours. She also said not to worry, a team would be available to revive. I remember this specifically because I asked what happens if a heart attack occured later, at home, when I was 60 minutes from the nearest hospital? (no reply) And how much heart function could be left after 27 treatments? (no answer). It is well noted that heart failure is realistic side effect of herceptin, which may take time to develop, and if caught early can be reversed with discontinuation. But heart attacks are not uncommon either, especially with pre-existing heart conditions.

The same doctor also told me 5 years would be what she could give me with chemo. Perhaps she considered all my health conditions and knew more than what she cared to reveal? A second oncologist told me I'd have 18-24 months without chemo. You state surgery was the treatment, what I chose was simply complementary. I disagree. If I could survive on surgery only plus what you consider complimentary treatment alone, why did my oncologist ever recommend chemo, rads, drugs, and the other give me such a dismal outlook in the first place?

Let me also clarify, it was not fear of chemo or herceptin that influenced me. I wanted the best chance at life. PERIOD. Initially, I considered chemo and traditional treatment fiercely. But the more research I did, and the more I spoke to doctors, the more I learned of short term possibilities, the lingering side effects, and the long term trade offs.

A substantial influence was when I met with a retired oncologist who told me "the treatment is sometimes worse than the disease". His words, not mine. It was after his review of my medical history, he honestly stated that doctors, while actively practicing, cannot discuss certain things with patients. His honesty and advice was paramount, and I respect him immensely. Another factor, I also consulted with a close friends oncologist nurse, who said if she ever got cancer, she would take GcMAF, not chemo. All the homework and information I gathered ultimately led to my decision to only have surgery and decline the rest.

There are no regrets except that I'm tired of defending my choices to close minded individuals. I'm alive and well, that's all that matters to me.

Either way, I will not be posting anymore. Everything I posted is factual. What I'd hope would help women seeking information on GcMAF, somehow turned into a religious debate, a conventional medicine defense forum, and self justifying accusations. I've been through enough. Don't need this!

For the silent women out there considering Integrative treatment, I hope you keep an open mind, do your own research and find the courage to make the right decisions for YOU - whatever that may be!

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Aug 24, 2019 11:08PM Olma61 wrote:

You're trying to interrogate me about my diagnosis as if I was the one who made outrageous claims. Funny. Info about my diagnosis is in my signature.

Let me ask another question - did you have an ecocardiogram while being considered for herceptin? Because if you didn't, that is highly unusual. I realize I may not get answer. Just throwing that out there.

I'm glad you didn't go through with Herceptin if you did indeed have a doctor so reckless that she would give that drug to someone who didn't have normal heart function. That's not the normal protocol. That is not what other people should expect when they are HER2+ and see their oncologists.

Nowhere did I say your choices were wrong -- I said that your post contains misinformation and it does.

As far as the location of this post in the alternative forum and you telling me not to question you because of it -

I don't think you read the disclaimer at the top of this forum. Here's what it says:

"The alternative medicine forum is be a safe place to discuss alternative treatments for cancer. This, however, does not imply that members cannot bring up question the data, science, or the mention of potential abuses from industry and/or misinformation. "

Wish you the best and may you continue to be happy with your choices.

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
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Mar 19, 2020 07:59AM NatalieHope wrote:

Hi,

I love your choice and I'm so proud of you and thank you for sharing it! I am a similar journey and only see light with the alternative treatments. I'm stage 1, IDC, small tumor, low growth. Did you do any surgery? I'm praying that everythign i have started shrinks my tumor and I don't need surgery.

Thank you!

Natalie

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Nov 6, 2020 12:37AM Ttlili wrote:

Hello, where did you purchase GCmaf & what is the cost? I’m stage 4 MBC needing all the help I can get

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Nov 19, 2020 01:54PM ribz99 wrote:

Hi! I just read your post about successfully treating yourself with B17 and GCmal and other supplements. I’m overwhelmed with your success. May I ask if you are still on this protocol or have you made new adjustments. Are you still feeling well?

You are an inspiration.

Robi

Dx 11/12/2013, DCIS, 5cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+ Surgery Mastectomy: Left, Right Radiation Therapy Breast

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