Aug 30, 2018 04:58PM AliceKo wrote:
Wow, thank you for sharing your story. Stay well. I will be reading the website.
This forum is a safe, judgement-free place to discuss Alternative medicine. Alternative medicine refers to treatments that are used INSTEAD of standard, evidence-based treatment. Breastcancer.org does NOT recommend or endorse alternative medicine.
Posted on: Aug 30, 2018 09:29AM - edited Aug 30, 2018 09:30AM by KatRNagain92
I have been reading in this category: "Why isn't there anyone who has survived from an alternative treatment come forward? Why do they only write a handful of posts and then disappear?" or: "If I had a miracle, I would be working my connections like crazy to get the scientific evidence out there."
Well, here I am! Some of you might remember me and some of you might be brand new, but I am a solid success story. I started Protocel in March of 2012 (right here on BCO) because of a raging recurrence after bilateral mastectomies with Tamoxifen in 2010. The comeback of my ER+ PR+ and HER2- cancer presented as multiple lesions and nodules throughout my body and lymph nodes. I tried chemo (Taxol) but only 3 short infusions later, I grew a new lesion and went off to have my ovaries removed. Shortly thereafter, I was supposed to start some horrid-wretched experimental oral therapy (afintor and aromasin) but I bailed at the last minute when I was introduced to Prayer and Protocel…and the rest is history. I was declared NED (no evidence of disease) 8 months later!!!
Today, it's been over 6 years on alternative Protocel and I've had a few bumps in the road, but everything is pretty much smooth sailing with no signs of being worse for the wear. I haven't had to stop living any type of normal life and no one ever had to know I took Protocel for cancer maintenance unless I told them. I was (and am) the picture of health. in 2015, I was full steam ahead with changing lives and adapting to a divorce, relocation, career, culture…most everything….and I still got along quite nicely for 4 years. However, the beast did come back……but truly, it was only one little slow growing malignant marble in my Para-spinal space that seemed to be resistant to Protocel. It never really hurt me or limited my functionality at all. It was probably more emotional than anything.
The 'marble' got pretty big, and it scared me, I'm not going lie. I researched and went forward with 10 palliative radiation sessions to the area (Sometimes you have to recognize when your therapies need a conventional boost) and I am once again, enjoying another radical remission!
My story is featured on my website: Beating Cancer without Breaking a Sweat which is a free, complete, 3 part chronicle of what it's like to live a Prayer and Protocel lifestyle. And as the name infers...its pretty easy. I do not sell Protocel...as a matter of fact, I pay full price just like any other consumer.
My mission statement is to give all the glory to God and His son Jesus Christ for this miracle and to share my testimony of Prayer + Protocel as a kinder, gentler, non-toxic, less expensive, alternative cancer treatment that has truly been effective for me and so many others for >60 years.
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Aug 30, 2018 04:58PM AliceKo wrote:
Wow, thank you for sharing your story. Stay well. I will be reading the website.
Aug 30, 2018 10:53PM oxygen18 wrote:
I am so glad you are doing well, and I wish you much continued good health.
There are occasional cases of spontaneous remission and it looks like you were the beneficiary of such a case.
Protocel is a very expensive placebo that has been marketed for decades under a variety of brand names, and has been claimed to cure everything from AIDS to zits.
It is fine to take inexpensive harmless placebos, provided one also receives MD prescribed treatment tested via proper clinical trials.
Again, it's great you are doing well, but nobody should be treating cancer with placebos instead of getting real treatment. It is a game of Russian roulette.
Be well, take good care of yourself.
Aug 31, 2018 08:20AM Georgia1 wrote:
Kat, I'm so glad you are doing well. But others should know that the FDA advices against protocel and the manufacturers have done zero peer-reviewed studies. So the FDA and NIH consider it neither effective nor proven as safe.
Aug 31, 2018 09:18AM exbrnxgrl wrote:
Very happy to hear of your continued good health, but I most agree with some of the previous posts. Protocel has been around for ages and known by various names ( Jim’s juice being one I remember). Two glaring red flags; claims to cure a multitude of illnesses, no peer reviewed studies, should serve to remind folks that snake oil still exists. Additionally, while I respect an individuals faith, I am also suspicious of “cures” which encompass prayer as part of treatment. Prayer is important to those who believe in it, but a true cure would be open everyone, whether they pray or not.
I wish you continuing good health!
Aug 31, 2018 10:50AM KatRNagain92 wrote:
Thanks everyone for your input and well wishes!
"Jim's Juice" (an endearing name actually) is a result of a dream James Sheridan had from God to create this formula and I encourage you all to google the history of this man. It did go through many name changes, that part is true, but the founding principle of targeting anaerobic cells (those fueled by sugar) and starving them is real by any name...whether it be Protocel, Entelev (that part of man known only to God) or even Cancell.
The 'claims to cure other disorders' is somewhat accurate as well. Because there are so many diseases that are caused by anaerobic cells (like viruses and other auto-immune disorders) that yes, there are documented results with Protocel. It is a powerful antioxidant, but it won't do anything at all for the likes of osteoporosis or heart disease...and it doesn't have any antibacterial properties and it certainly doesn't act as an anti fungal...you still need some discernment. (and educate yourselves!)
Prayer is a personal and intimate relationship that one has on their own and is no way required for Protocel to work. I found my connection to Jesus only helped strengthen my ministry to fulfill my promises of sharing my story and publishing His work to help others.
I guess the bottom line is I'm alive and enjoying a 100% awesome quality of life as result of Protocel 23 melting away my cancer and according to ALL the doctors out there, I shouldn't be.
Aug 31, 2018 03:00PM 1redgirl wrote:
kat - well I do not know your story as my second cancer in March brought me here. Fact is, you are still alive. You apparently have used both conventional and “alternative” treatments. It would be interesting to know if you would still be alive had you continued with only a conventional treatment. Survivors would of course defend and support medicines that allowed then to take another breath regardless of quality of life. I never question anybody’s choices.
My parents were both Christian Science followers. They did not make their children do the same. One time, My dad fell off our back steps into a rock garden and broke his arm in many places. He refused medical help. That went on for days. He looked just awful. Eventually he went to the hospital and they rebroke that arm and pinned it etc. I should mention my dad and mom survived a horrific auto accident some years earlier that hospitalized them for many months, so he was no stranger to pain. However, no amount of praying was going to heal that arm so he could use it again. Some months later, my mom became very ill. Again, refused to see a doctor. The reader came every day. No change. My mom stuck to her guns, and eventually recovered. I have no idea what was wrong. My parents rarely saw any doctor. My mom carried her little bible in her purse. She never spoke about her beliefs, but at the end, we would read to her from her little bible. It was her personal journey. She was to be respected.
I feel similar. I do not have a bible, but my faith in a divine power is strong. I have refused conventional therapies most of my life for various issues. I did so with bc 20 plus years ago. I am doing so now. However, I am doing much, just taking a different path.
Kat - so happy for you. May you continue in good health. Thank you for sharing your journey
Aug 31, 2018 07:25PM KatRNagain92 wrote:
I believe my destiny has always been to have conventional medicine so I would be able to say: "I did have surgery and I took tamoxifen and that didn't work...so I started chemo and only after I was found to have progression is when He chose Protocel for me." I think it adds credence to the miracle!
That's the reason I am so devoted to this treatment modality. I'm clearly not dead, and God's gifts to me are are so plentiful...good health, this voice, this platform, the experience of going through it too...but above all that, the proof that Protocel is actually working.Good luck to you too redgirl!
Aug 31, 2018 08:07PM - edited Aug 31, 2018 08:11PM by exbrnxgrl
Again, I'm glad that you are doing well. Nothing and I mean nothing, I've read about about Protocel, Cantron etc. points to it's efficacy, save for anecdotal evidence.
The above is one of many to be found on this so called “miracle
BTW, my aim is not to bash Protocel or those who use it. I just hope folks do some thorough, scientific based research and then make their own decisions
Aug 31, 2018 08:20PM - edited Aug 31, 2018 08:22PM by exbrnxgrl
A short, easy read by Dr. Andrew Weil
Sep 1, 2018 07:31AM KatRNagain92 wrote:
Let's not do this exbrnexgrl…we are old friends with similar timelines. I joined in 2010 and you in 2011. I could start listing links about the dangers of Arimidex and Femara but why would I do that? You're living proof those therapies worked for you just as I am living proof mine did for me!
This is the alternative section and I'm posting my Alternative Protocel success story. Protocel may not work for everyone and it certainly doesn't work at the 11th hour, but it does work. All that anecdotal evidence that is out there? You're right, that is something to take notice of…Mine included. Everyone gets to decide for themselves.
Just like getting a blood transfusion in the late 1800's…what if you were one of the lucky ones to be the universal recipient receiving blood from a universal donor before they even knew about type and cross matching? Hmmmm.
Sep 1, 2018 10:23AM exbrnxgrl wrote:
Yes, this is the alt forum, but I believe that if one is respectful and has information to offer, there is nothing wrong with including it, so anyone considering this treatment can make an informed decision. Surely we all hope that anyone considering tx, conventional or alternative, would do this!
Yes, I agree, aromatase inhibitors do have side effects. These drugs have gone through clinical trials and the pros and cons are well documented. The scientific based studies of these drugs is what allows us to decide if we want to take themor not. I have no reason to hide or deny these studies and I would be very suspicious of treatments (or their proponents) that don’t want folks to read the type of links I previously posted. Let’s be clear, I am not recommending that people take or not take Protocel. I just think they need to have all the facts before making a decision. Remember, anecdotes are not data.
Interestingly, I cannot entirely attribute my many years of NED to my meds entirely. I think, they are a part of it, but the fact remains, that no one knows why exceptional responders exist. I am happy to say, however, that folks like myself are being studied to find out why there are outliers (plug for Metastatic Breast Cancer Project!).
I continue, as always to wish you well and would further like to add that no one should be afraid to post contrary evidence if it is done with respect and civility.
Sep 1, 2018 11:22AM - edited Sep 1, 2018 11:32AM by Icietla
>>I could start listing links about the dangers of Arimidex and Femara but why would I do that?<<
Why not tell us how the *possible* side effects of those life-saving and life-extending medicines are worse than death by cancer?
Sep 1, 2018 11:29AM Icietla wrote:
>>some horrid-wretched experimental oral therapy (afintor and aromasin)<<
More bashing of some life-saving and life-extending medicines by another who has never used them.
Sep 1, 2018 12:06PM wrenn wrote:
I trust that the members here are intelligent enough to make informed decisions by doing their own research. Criticizing others for being enthusiastic about their choices is not helpful and comes across as a little arrogant. It has no place in an "alternative" thread.
Sep 1, 2018 01:02PM exbrnxgrl wrote:
I made no criticism of others, nor did I utter an uncivil word. I posted two links, one Dr.Weil’s opinión, one from the NIH. I am only suggesting that we look at all aspects of our tx and not depend on anecdotes. Yes, most members are very intelligent and do look into all aspects of their disease, but when faced with a serious diagnosis, sometimes our emotions over rule evidence. We would all love a miracle and we all must decide how to pursue that miracle based on learning the pros and cons of any tx, conventional as well as alternative.
If what you read/research about any tx, conventional or alternative, makes you uncomfortable don’t do it, but try to learn about it all, before making a choice. This is what informed consumers do and no one should feel threatened by scientific evidence one way or the other. Look at all the evidence and then decide, that’s the only point I’m trying to make.
As my landsman, Leonard Nimoy would say (in character) live long and prosper.
Sep 1, 2018 01:40PM Icietla wrote:
Apr 28, 2017 07:37AM Moderators wrote:
The alternative medicine forum is be a safe place to discuss alternative treatments for cancer. This, however, does not imply that members cannot bring up question the data, science, or the mention of potential abuses from industry and/or misinformation. Every comment and discussion point however must be made with the utmost respect for the other members, and understanding that if the topic is simply uncomfortable to you, or you flat out disagree with the topic and are only participating to cause debate and disruption, you are advised to block it, or risk a warning or ban with continued disruption.
Sep 1, 2018 01:49PM - edited Sep 1, 2018 06:53PM by exbrnxgrl
Thank you, icetla. That's exactly what I was trying to communicate. This topic does not make me uncomfortable as I would have no trouble accepting the efficacy of ANY treatment, as long as there was scientific evidence to support that efficacy.
BTW: The side effects of Arimidex , Femara, Affinitor etc. are well known and well documented. Anyone considering taking these meds should read all about them and then make their own decisions. Suggesting that folks research all aspects of tx should not be a revolutionary, subversive or offensive idea, no matter what you're considering.
Sep 1, 2018 07:58PM 1redgirl wrote:Kat - I took the time to read all your blogs. Every word. Interesting. Several things you mentioned I am going to research. Many of your experiences you have shared regarding the medical community, I have experienced as well. When I was diagnosed with bc years ago, when I was just 40, my oncologist was horrified I met with him by myself. He immediately recommended that I begin go on an antidepressant drug to deal with my cancer. I asked if that was typical. He assured me that all his cancer patients did so. I declined. I was not depressed. I was trying to get my head around what was happening. Since I refused radiation, and chemo, he was just beside himself. I think nobody had ever questioned his protocols. As it would turn out, I would move to another city due to a job transfer, and had to find new doctors. When doctors found out I refused treatment, some declined to take me on as a patient. That was surprising to me. It was for me a really bad turn of events because it made me hostile towards my own care. I did go for yearly mammograms, but never bonded with another doctor. One medical person noticed I had refused treatment and commented that I should have been followed all those years. She felt I did in fact make the right choice when I was 40, as now we know protocols were too aggressive for many with DCIS.
Sep 1, 2018 10:05PM KatRNagain92 wrote:
Thanks for reading my story redgirl! I'm so sorry about your best friend and your current friend and that you continue to struggle and suffer with all of this. I hope whatever path your taking continues to bring you personal success and good health!
I work in the medical community and doctors refuse patients all the time…refusing care is a big liability for them and in some ways I understand. I'm in the geriatric field where refusal is the number 1 reason for decline. I feel more discriminated against because I'm stage IV and I don't feel like I'm stage IV and I want to be re-staged but of course, that will never happen. I also don't feel as though I get the standard of care but that may just be a result of my new demographic situation and a different branch of medicine. I'm not in Kansas anymore that's for sure.
Protocel is a great option if you're single, live alone…don't have a big support system and because you feel so good, you're able to work and can get benefits and continue to live a full life and no one ever has to know unless you tell them. I'm that person, so I'm glad it works for me. My daughters are states away and my friends and work are my family. I understand that with a lot of people, cancer treatment is their whole life. My kids don't even want to discuss it let alone live it out like that, so again, I'm glad Protocel works for their Mom so they don't have to!
On the upside of the naysayers…it sure helps keep the price down! I like to work just enough hours (30ish) to keep my insurance for scans and the like but Protocel is not covered by insurance and it is about 120/month.
And hi to you Meow…I also use CBD/Hemp oil (Charlottes Web Advanced) and that's not covered either! :P anywhere from 100-150.00/month….so it does add up…but oh so worth it! :)
Sep 2, 2018 07:23AM 1redgirl wrote:I believe strongly that refined sugar is the enemy. Eliminating it is tough as it is in so many products. Sugar is often added to cover up salt. I was a big soda drinker, and baked everyday. Candy and cookies as well. I also had sleep issues, headaches and joint pain. All that is gone. Can I prove it to the naysayers? Nope. I just know how I feel which is significantly different. Losing 30 pounds has helped joint issues as well. Where is the downside?
Sep 2, 2018 08:01AM KatRNagain92 wrote:
WoW...that's an amazing story about your back!
I am a big campaigner towards a sugar-free lifestyle. The Mediterranean diet probably works best for me...but everyone is different. Some cancers thrive in a neg ph environments and some need high. I believe I'm a much more of an acidic host than most but anaerobic still seems to be the common denominator.
Have a great Sunday everyone. Here's a little something from my daily devotions today: Our thoughts, values and beliefs, will make us or break us. Our mind has incredible power, so we must be careful about what we're thinking. If we think good thoughts, our words will be good. At every point, right living begins with right thinking. Each of us has a unique perception of the world we live in. This is because we have created it - by our past thoughts. ~Lalachan Abraham
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