I was recently diagnosed with Stage IIB ILC in May. I am currently in a clinical trial for the next few months, just taking Femara (the trial was to potentially take Ibrance at a lower stage level, but I got randomized to the group that just stuck with Femara), with a mastectomy planned for December. Luckily, I have had minimal side effects from Femara so far. The blessing of this trial for me is that it has allowed me to have some time to breathe, think and research before I have to make serious decisions, like radiation. Based on the type, level, and size of my tumor, I am fairly comfortable with the idea of surgery, but not keen on other standard of care treatments. Like many here, I have done a ton of research over the past few months, and through that research I have become convinced of the metabolic aspects of cancer. From that research, I began the keto diet in August and I have already seen some tumor shrinkage over the past few months -- of course, not sure if the Femara or the diet, or a combo of both, have contributed to this. I have seen several books, videos, articles, etc., (Dr. Nasha Winters, Dr. D'Agostino, Dr. Harch, etc.) talking about the benefits of doing hyperbaric oxygen treatments WITH Keto, and I would love to try this. I have done a couple of sessions at a local sports recovery place, but the level that they can provide is only at 1.3 atmospheres, and my understanding is that is not really a therapeutic level. I have mentioned the idea of this to my oncologist, and like many things that I have brought up from my research of therapies that are outside standard of care treatments, she basically had no information or interest. I live in Houston and would think it would be easy to access this with our huge Medical Center, but I am finding that is really difficult.
My questions for the forum -- Has anyone implemented HBOT with Keto, not related to chemo or rads issues, and have you had any success? If so, how did you go about getting access to the therapy? What type of doctor were you seeing to get that access? What atmosphere levels were used for your therapy sessions and how many sessions did you do? Has anyone had good success with home level hyperbaric chambers? Has anyone tried EWOT as an alternative and was that successful? Any information related to oxygen therapy, even if it wasn't used in conjunction with Keto, would be welcome! Thanks so much!
5/21/2019, ILC, Left, 6cm+, Stage IIIA, Grade 3, 2/3 nodes, ER+/PR+, HER2-
12/17/2019 Mastectomy: Left; Reconstruction (left): Tissue expander placement
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