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Nov 26, 2011 10:21AM
My family has no history of cancer and I am BRCA negative, although there was a mutation in one spot, they said it was not the mutation that is the BRCA mutation....
I was also diagnosed with BBC. IDC and DCIS in both. However I am confident that they did not start at the same time. I was on an every six month mammo on my right side due to a suspicous area that did not appear to change over time. After two adn a half years of this, they found cancer on the left side during a routine mammo. That prompted an MRI that found the cancer in the lymph node on the right side.
I, too, have perplexed my doctors all through this journey. I have heard, "hmmm, that's odd" and "That doesn't usually happen," along with other comments making me feel abnormal. My case was also taken to the tumor board. When I first met with my oncologist, he said that they had been talking about my case the day before.
It is scary how the cancer can just sit there, undetected for so long. When I went for my MRI, the radiologist who had read my mammo and US said that he was so sure that I did not have cancer in my right breast that he should be fired or quit if it is there. (He did not qut or get fired). Afterwards, I was told that they could not find it (my more advanced cancer) because it did not present itself as cancer.
Since I knew no one else (well now I do) with BBC, I decided that I got the second cancer to save my life, since the doctors were not finding the first cancer that had already spread to a lymph node (4cm node completely cancerous.
I am sorry to see so many of us, but we are 'lucky' to have our treatments for both at the same time. As for the double risk of LE....ugh that is something I am now dealing with. LE on one side and trying to protect the at risk side from all those people who come at me with needles....
Bilateral breast cancer diagnoses within a week of each other.
9/20/2010, IDC, 4cm, Stage II, Grade 2, 1/24 nodes, ER+/PR+, HER2-