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Apr 16, 2013 01:58PM AmieCO wrote:
This is an older post, but I was also diagnosed in late 2012. Had lumpectomy and they are following it closely. No genetic mutation.
Posted on: Aug 5, 2012 10:53AM
sneads999 wrote:
I've been told I'm the 36th case even known with this breast cancer. Trying to see if anyone else has ever been diagnosed and if so what was your outcome. I can find research on 5 known cases on the internet.
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Apr 16, 2013 01:58PM AmieCO wrote:
This is an older post, but I was also diagnosed in late 2012. Had lumpectomy and they are following it closely. No genetic mutation.
Apr 24, 2013 09:13PM Moderators wrote:
Amie, how are you doing?
May 25, 2014 11:35AM MACIE40 wrote:
Hi I am Macie and I have only just found this site. I was DX with Adenosquamous cancer in Aug 2007 with ER+5/8 PR- HER - .I had WLE with radiotherapy followed by Arimadex . Jan 2012 recurrence in sternum bone and soft tissue mass in chest wall this time ER+2PR-HER-so told it was Triple Neg and had Paclitaxol and Epirubicin which was stopped after 12 cycles owing to terrible side effects.
I then had stereotactic RT (cyber knife ) with some success in October 2012
December 2013 saw progression to ribs, and now pleural mets and mediastinal lymph nodes and progression to soft tissue mass in chest while a sternum mets remain stable.
I am currently on Xeloda and Ibandronate acid.
I would dearly like to hear from any one who has the same as I know it is very unusual and I know this is an old site so I hope somebody picks up on it Best Wishes to all love Macie x x
Jun 2, 2014 11:11PM Jeanne55 wrote:
Hi, Macie. I do not know about this type of breast cancer, but I am hoping that someone who does sees your post. I am glad to hear that you had some success with stereotactic RT in October 2012, and I am glad to hear that you are stable. Although I hope you can make contact with someone with this diagnosis, there are many people here who would be pleased to talk with you -- including some folks who have researched breast cancer and are very knowledgeable about many things, including treatments. Jeanne
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