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Jul 28, 2014 06:30PM
Hi folks- I had bilateral cancer diagnosed in 2012. A small 0.4 cm mass found in my left breast that was IDC. They did an MRI of the other breast and found a larger area of DCIS (1.3 cm). Due to some other major surgery that had occurred around the same time, there was no way I could handle a BMX. So they did double lumpectomy and internal rads on both side. No chemo based on stage, grade and oncotype score.
Cancer on both sides at the same time is very rare. It is usually considered to be genetic, yet I have no real strong history in my family and have had multiple genetics tests that come up negative. My doctors said they treat the higher one (IDC) and project your rates around that. My reocurrence rate is based on the Oncotype score for the invasive side is15%, cut in half on arimidex). DCIS can turn into invasive cancer, but understand it does not always.
I had an older aunt (not blood relative) who had DCIS and they just watched it and never did anything based on her age and the pathology. This was back around 15 years ago. Later she came up with lung cancer and I often wondered if somehow her lung cancer was not related, but never asked the family. The lung cancer took her quickly. She was also a smoker.
I think there is a lot they just don't know about the rarer type scenarios, but know once the switch has been flipped, we are at risk for cancer in either breast again or elsewhere in our bodies, beyond the possibility of mets. So pay attention to everything going on with your body.
I am a year and a half out from treatment and just went through my third six month follow up and doing fine so far. Grateful for each day and trying to take super good care of myself.
9/14/2012, DCIS, 1cm, Stage 0, Grade 1, 0/1 nodes, ER+/PR+, HER2-
9/14/2012, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2-
11/14/2012 Lymph node removal: Right, Sentinel
11/14/2012 Lymph node removal: Left, Sentinel
11/14/2012 Lumpectomy: Left, Right
3/20/2013 Arimidex (anastrozole), Aromasin (exemestane)