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Topic: one rare one not so!

Forum: Mixed Type Breast Cancer — Meet others who have mixed type breast cancer.

Posted on: Feb 15, 2014 10:24PM - edited Feb 15, 2014 10:25PM by bonny10

bonny10 wrote:

I was recently diagnosed with two types of cancer in the same breast...one is Adenoid Cystic Carcinoma (ACC) and the other is DCIS.  Has anyone had this diagnosis?  If so, how was it treated?  

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Feb 16, 2014 12:43PM ziggypop wrote:

Hi bonny, I am really sorry that you have been diagnosed. I have not had this diagnosis but I do know somebody who had ACC, so I can say a couple things about it. The first thing is that ACC is not a form of breast cancer - rather it is a type of cancer that can be found in the breast (sort of like how breast cancer can be found in bones). The general treatment is surgery to extract the tumor followed by RADS. In one sense, this is probably a good thig because the general treatment for DCIS is generally either a MX (with no RADS) or a lumpectomy (followed by RADS). 

I'm not a doctor, and I'm only going by very limited info, but based on that info, it seems like you might end up with basically the same treatment plan as if you had either one or the other type of cancer going on. 

Dx 5/2012, IDC, 6cm+, Stage IIIA, 5/14 nodes, ER+/PR+, HER2- Surgery 8/31/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement
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Feb 16, 2014 01:25PM Morwenna wrote:

Just reading up on this, it appears that ACC has a fairly optimistic prognosis. Despite being triple negative it is slow-growing, and unlikely to spread to the lymphatics, so that is good news! 

http://www.medscape.com/viewarticle/732750

DCIS, of whatever type, is confined to the duct so contained, so that is also encouraging news for you! Good luck in your "journey" xxx

Dx 11/8/2012, IDC, 6cm+, Stage IIIA, Grade 3, 1/11 nodes, ER-/PR-, HER2- Surgery 11/23/2012 Lumpectomy: Left; Lymph node removal: Left Surgery 12/12/2012 Mastectomy: Left Chemotherapy 1/9/2013 AC + T (Taxol) Radiation Therapy 7/22/2013 Breast, Lymph nodes Surgery 1/6/2015 Prophylactic mastectomy: Right; Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap
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Mar 2, 2014 04:12PM - edited Mar 2, 2014 04:13PM by bonny10

Thanks so much.  From what I've been told, it is VERY rare to find the two types in the same breast and I'm not having any luck finding anyone who has ever had the same diagnosis to get an idea as to how I can expect it to be treated.  There is very little information available due to the rarity of the case.  I will know once I'm able to meet and discuss it with Oncology but was hoping to get some advance information.  

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