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May 6, 2020 01:17PM
For anyone watching this thread-
cross posting because I'm so excited that my local therapy worked and for the first time my systemic therapy Afinitor/Faslodex/Sandostatin, seems to be working and it includes the novel use of sandostatin shots in breast cancer for the Neuroendocrine features
MY Great news! 🙌🏻 RESPONSE AND SHRINKAGE of current liver tumors and they did not light up on PET which means they are not active. These are the ones that had Y-90 and bland embolization. 1 small lung nodule weakly lit up that was seen on previous MRI- we will be watching it.
Home MO recommends I not pursue the PUT-NET trial at this time a just stay on current medications. So good to be able to say that for the first time! 😉We will need labs to watch WBC and ANC, probably weekly.
Sending scans to MD Anderson and will have video call with her after she reviews them. Their reports are much more detailed than my home clinic. So I am hoping those diffuse small mets that were previously reported on MRI andCT are just plain gone since nothing lit up Or showed beside the one in the lung.
Next scans in 3 months. Hopefully in TX but we will be smart.
PRAISE GOD. This is a such a joy to report to you all.
Now COVID has to go so I can see my kids and grandbaby again.
Primary neuroendocrine breast cancer, on SERD trial ARV-471, failed Pfizer’s CDK 2/4/6 trial after 8 weeks
5/23/2013, Right, 1cm, Stage IIB, Grade 2, 1/22 nodes, ER+/PR+, HER2- (FISH)
7/29/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
4/2019, Stage IV, metastasized to liver, ER+/PR+, HER2-
Arimidex (anastrozole), Aromasin (exemestane), Fareston (toremifene), Femara (letrozole)