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Topic: Invasive Ductal Carcinoma with Neuroendocrine differentiation

Forum: Mixed Type Breast Cancer — Meet others who have mixed type breast cancer.

Posted on: Dec 30, 2014 04:52AM

Ellageneve wrote:

I was diagnosed with Invasive Ductal Carcinoma with neuroendocrine differentiation in July 2014. Is there any one out there with this diagnosis? Little is known about it, as few of these cases have been diagnosed. I am getting my last chemo treatment today. I am frightened that it may come back somewhere else in my body, and if it does will I know before it has spread. I would very much like to hear from anyone who has information. I live in Utah.

Dx 6/2014, IDC, <1cm, Stage I, Grade 2, 0/0 nodes, ER+/PR+, HER2- Dx 6/9/2014, IDC, <1cm, Stage I, Grade 2, ER+/PR+, HER2- Surgery 7/9/2014 Lumpectomy: Left Chemotherapy 9/9/2014 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Nov 1, 2016 05:37PM poopysheep wrote:

Hi... not sure if you're still on these forums, but I have an IDC NOS also with neuroendocrine differentiation. I haven't had a meeting yet with my oncologist - it's just on my pathology report. I'm also stage 1/grade one but triple positive.

how are you doing?

Dx 9/1/2016, DCIS/IDC, Right, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 10/4/2016 Lumpectomy: Right; Lymph node removal: Sentinel
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Nov 2, 2016 11:49AM - edited Nov 2, 2016 12:15PM by BarredOwl

Hi poopysheep:

You raise a good question about grade 1 and HER2+ status. Does your pathology report indicate 1+, 2+ or 3+ (if HER2 status was determined by IHC) or other information (if determined by FISH)? Also, was the HER2 status determined from a minimally-invasive biopsy specimen or a surgical specimen?


Stage IA IDC, 9/2013 BMX. Right: IDC (1.5 mm, grade 2) with DCIS (5+ cm), 0/4 nodes, pN0. Left: DCIS (5+ cm), 0/1 node, pN0(i+).
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Sep 18, 2017 12:37AM Moppitt wrote:

I had lobular, ductal, and neuroendocrine back in 2008 locally advanced stage 3 but so close to 4 my Dr could not say for sure not 4. It is all treated as same cancer. Most I can say was diagnosed stage 4 in 2010 still here and have a normal life with treatments.

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May 14, 2019 10:54PM Trixie13 wrote:


I was diagnosed with invasive ductal cancer this last 11/18 along with neuroendocrine differentiation after a second lesion was found on MRI in the same breast I had a previously undergone a lumpectomy in 7/18 which showed invasive cancer. I just learned today that the tumor with neuroendocrine cancer is Stage 3 while the first tumor is Stage 2. I was told by my oncologist that I would need to continue on an aromatase inhibitor. I had been on anastrozole but the side effects were quite bad. Oncologist suggested trying Femara and that this would give me 50% chance of survival. I am ER/PR+ and Her2neu negative. Hoping for the best.

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