Posted on: Aug 7, 2015 12:45PM
I thought I had IDC. After surgery last week, it was diagnosed as Invasive mammary carcinoma with ductal and lobular features. It made sense as the surgeon was surprised with the extensions out of the tumor that they hadn't seen before. I don't see a whole lot about this. Anyone else have it? Or know what the prognosis is? If I had known this before, I would have opted for a mastectomy.
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Aug 8, 2015 01:29PM BarredOwl wrote:
I hate it when the surgical pathology finds other stuff. There was no way for you to know that when you made your decision.
I did not have any lobular component, so I am not sure exactly what they mean by the phrase "with ductal and lobular features".
For example, are they are saying it is a mixture of: (a) invasive ductal carcinoma and (b) invasive lobular carcinoma? If so, the National Comprehensive Cancer Center (NCCN) treatment guidelines (Version 3_2015) include this statement:
"Mixed lobular and ductal carcinoma as well as metaplastic carcinoma should be graded based on the ductal component and treated based on this grading. The metaplastic or mixed component does not alter prognosis."
That sounds good to me, but please don't hesitate to ask your doctors about this to be certain.
I note your comment about the "extensions". Do you know if they got clean margins? Even if it is true that the grade would be based on the ductal component, I would want to know if there may possibly be separate implications from the presence of a lobular component due to its growth patterns or other features. . . Again, please don't hesitate to ask your doctors about this.
Perhaps others with a mixed or lobular diagnosis and more informed than I am can shed some light for you.
Bilateral mastectomy and SNB without reconstruction 9/2013
Dx Right: ER+PR+ DCIS (5+ cm) with IDC (1.5 mm) and micro-invasion < 1 mm; Grade 2 (IDC); 0/4 nodes.
Dx Left: ER+PR+ DCIS (5+ cm); Grade 2 (majority) and grade 3; isolated tumor cells in 1/1 nodes (pN0i+(sn)).
Aug 8, 2015 02:45PM - edited Aug 8, 2015 02:47PM by wrmbrownie
thanks for the great info! And yes, they got clean margins.
Aug 17, 2015 01:41AM powerthruit wrote:Hi wrmbrownie,
Aug 17, 2015 11:34PM wrmbrownie wrote:
They thought it was aappropriately 2.5ish and it ended up being 3.2. Glad to know there is someone else in a similar boat, so to speak. I see radiology oncologist on the 25th and hope to get clarity.
Aug 19, 2015 12:07AM caligirl3 wrote:
I too was diagnosed with mammary carcinoma mixed ductal with lobular features. i was told it is treated as ductal carcinoma. I also had a large area of pleomorphic LCIS, with a bit of dcis thrown in! It made me really nervous at first to have so many different things going on in the same area, but from everything I have read and according to my Onc, it does not change prognosis.
Aug 28, 2015 02:00PM cbm wrote:
I had a mixed tumor in 2008, including IDC, ILC, DCIS, and LCIS. It was 2A, Grade2, triple positive, and I had a bilateral mx plus AC/TH, and later I was in a Neratinib trial. My oncologist said it's usually treated as ductal, though it seemed to have a little of everything.
Though one node was involved and was actually larger than the 1.9 cm tumor, I later obtained an Oncotype dx, on which I scored only a 9.
At the time, most of my references said it was not all that unusual and did not have a worse prognosis than a more streamlined presentation. However, I haven't run across many since I've been dropping in here.
Aug 28, 2015 11:06PM mrskirby wrote:
I too have Invasive Ductal Cancer and Invasive Lobular Cancer, Stage II, and I opted for DMX on August 19, 2015 a day I won't forget. My path report found another lobular tumor and DC In situ and LC In situ. I think I am typing this correct. I am wondering about theraphy? I know I will have something? My worry is chemo? Then side effects?
Nov 2, 2015 11:43PM Merymete wrote:
I was just diagnosed with this, glad to find others here. Just beginning my journey through this
Nov 19, 2015 11:18PM Girl53 wrote:
Have been on boards since summer, and posting mainly to ILC threads, but just noticed something on my path report that had escaped my attention.
In one spot on report, it says "infiltrating lobular carcinoma" (weakly positive for e-cadherin); in other spot it says "invasive mammary carcinoma with lobular features" (which I understand as being mixed ductal and lobular cancer). Have read that e-cadherin status is often used by pathologists to distinguish between ILC and IDC.
Do I need to ask my MO about this? Thanks, ladies.
Jan 2, 2016 07:18PM lscrivy wrote:
My 78 yr old mother was diagnosed with invasive mammary carcinoma on Dec 23 ... Merry Christmas ! Her report also says weakly positive for e-cadherin staining, but mainly lobular features. She has one nodule that is nearly 7cm at the 10:00 position as well as a 5mm lymph node at approx the same position. She has not yet had surgery. We are seeking centers that specialize in older adults to help us make the best decision for treatment. She is in relatively good health now -- she has COPD but is still pretty active. We have an appt at MD Anderson on Jan 11. We are also considering the Moffit Cancer Center in FL. We would really appreciate suggestions for any other experts, regardless of location. Thank you so much in advance.
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