My name is Shivani (33 yrs old) and I am from Bangalore, India. I was diagnosed with breast cancer in 2015 after I found a lump in my right breast which also had spread to my lymph nodes. At the time of diagnosis, my doctors found very tiny suspicious lung nodules.
My ER value is 2 and PR is 7 (in the Allred scoring system), which my doctor says is ER / PR positive but ER is only weakly positive. My HER 2 value is negative.
I received chemotherapy for close to 6 months. My doctor started me on the FEC combination, but discontinued it after 2 cycles because of poor response. Fortunately, after that the drug Paclytaxyl showed really good response and the tumor shrank massively. I also got a lumpectomy done susbequently and received radiation on my breast and underarm.
My doctor also put me on a hormone therapy ( Exemestane ), with which I did not have any major side effects. After a break for treatment, I continued going to my job, and still feel absolutely fine. In all my scans thereafter, there was no evidence of disease and the tiny lung nodules also had disappeared
However, in my latest consultation and scan (almost two years after my first diagnosis), the tiny lung nodules have reappeared. My doctor also can feel an enlargement in a lymph node in my underarm. When my doctor told me this, it felt like a punch in the gut :(
Does anyone have experience with this 'odd' combination of weak ER but high PR ? What treatment options did you get offered ? I also read somewhere that weak ER positive tumors behave more like triple negative tumors. Is this true ?
Worried and confused ...
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