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All TopicsForum: Mixed Type Breast Cancer → Topic: 2 different types of cancer in seperate breasts-anyone else?

Topic: 2 different types of cancer in seperate breasts-anyone else?

Forum: Mixed Type Breast Cancer — Meet others who have mixed type breast cancer.

Posted on: Apr 23, 2017 10:54AM

jworrell wrote:

Hello, I'm new to this and still learning all the abbreviations. In my left I had Stage 1, Grade 3, infiltrating ductal, ER/PR+ and HER 2 negative. In my right breast I had Stage 3, Grade 1, infiltrating lobular, ER/PR+, HER 2 negative. My mammoprint came back at high re-orrurance on the left and low re-occurance on the right. I've already had a mastectomy and I'm waiting on chemo/radiation. I go to my oncologist on May 2nd. Does anyone else have 2 different types of cancer in seperate breasts? I sort of feel like I'm alone since everything I've read focuses on just one or the other type. I really want to know what type of chemo works best in this situation. One doc said ACT treatment, other said CT treatment. ACT seems really scary, and I want to make sure I really need it vs. CT. Any advice?

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Jun 6, 2017 11:40PM pink_is_my_colour wrote:

Well, here goes. Saw the Chemotherapy Oncologist today. Didn't realize there were specialists within Oncology.

Friday, June 16 will be my first round of Chemo. I get three rounds of Fluorouracil, Epirubicin, and Cyclophosphamide. Then after that another three rounds of Docetaxel. CAT scan from last week shows something in my lumber spine. Oncologist thinks it could be a Hemangioma of the vertibrae. One thing she said that I thought was kind of odd was that if the cancer does come back it'll be stage IV.

And so it begins. Hoping that I'll be lucky with few side effects.

pink_is_my_colour Dx 4/4/2017, IDC, Left, 1cm, Stage IIA, Grade 1, 2/6 nodes, ER+/PR+, HER2- Dx 4/4/2017, DCIS, Right, <1cm, Stage 0, Grade 1, ER+/PR+, HER2- Surgery 4/24/2017 Lumpectomy: Left, Right; Lymph node removal: Left, Sentinel Chemotherapy 6/16/2017 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Chemotherapy 8/18/2017 Taxotere (docetaxel) Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes
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Jul 20, 2017 05:01PM jworrell wrote:

I finished my 4 rounds or AC. They were rough, but I survived. Now Im doing 12 weekly rounds of Taxol. I just finished number 11, so 10 more to go. Has anyone else done weekly Taxol? It seems to be less harsh than the AC so far. I'm able to at least function somewhat normally, but I've only had 2 rounds. Not sure how I'll feel as I get more into it. I'm having restless legs, which I've had before, but seems worse with treatments. Any advice?

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Jul 20, 2017 08:47PM avmom wrote:

jworrell, make sure that your nursing and oncology team know about your restless legs. I had leg discomfort so severe when doing Taxol (I did 4 dose dense, on a two week cycle, not weekly) that I was prescribed morphine just to get some sleep. I also ended up with pretty severe neuropathy by the end (both hands and feet) but my feet are still not normal, after more than 2 years I did not ice, but you might ask about whether icing your hands and feet during infusions might help.

AC was rough for me, too. Some things about Taxol that were different from the AC were, for me:

*. I had a bunch or neurological symptoms, including some expressive aphasia (searching for words - chemobrain), some facial tics and eye twitches, some incontinence - by the end, i would joke that I couldn't cough without peeing my pants, and any flatulence was only safely expressed in the bathroom!

*. My tummy tended to be very acid, though that was kept under control with OTC Zantac (300 mg/day). I was still pretty nauseated, so it might have been related to the masses of anti emetic drugs I was consuming

*. Watch your fingernails and toenails. I moisturized mine and kept them polished, but they got pretty loose.

2 down, 10 to go. You've got this!

Donna

Surgery 12/23/2014 Lumpectomy: Right Dx 1/7/2015, IDC, Right, 4cm, Stage IIA, Grade 3, 0/11 nodes, ER-/PR-, HER2- Dx 1/7/2015, DCIS, Right, 6cm+, Stage 0, Grade 2, 0/11 nodes, ER-/PR-, HER2- Surgery 1/12/2015 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Surgery 10/19/2015 Prophylactic mastectomy: Left Dx 10/27/2015, LCIS/DCIS, Left, 6cm+, Stage 0, Grade 2, ER+/PR+ Surgery 5/24/2016 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy AC + T (Taxol)
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Jul 20, 2017 08:49PM - edited Jul 20, 2017 08:59PM by avmom

This Post was deleted by avmom.
Surgery 12/23/2014 Lumpectomy: Right Dx 1/7/2015, IDC, Right, 4cm, Stage IIA, Grade 3, 0/11 nodes, ER-/PR-, HER2- Dx 1/7/2015, DCIS, Right, 6cm+, Stage 0, Grade 2, 0/11 nodes, ER-/PR-, HER2- Surgery 1/12/2015 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Surgery 10/19/2015 Prophylactic mastectomy: Left Dx 10/27/2015, LCIS/DCIS, Left, 6cm+, Stage 0, Grade 2, ER+/PR+ Surgery 5/24/2016 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy AC + T (Taxol)
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Jul 20, 2017 09:35PM Libber wrote:

Hello jworrel and all. Yes I had two different types. On the left side. Stage 1. ER/PR positive. HER2 negative. Grade 1. On the right. Stage 1 grade 3 triple negative. I had 4 A/C dose dense chemo sessions followed by 4 Dose dense Taxol sessions. Had bi-lateral masectomies and 28 radiation sessions on right side. Then 6 months of Zeloda. Also reconstruction with silicone implants this past December. I have been on an AI inhibitor for just over a year now.

I have endured treatment for both. Have worked through all. Has not been fun but doable. I work in healthcare industry. Have had tremendous support through all and I know I am fortunate in that regard. Also DH is retired and played a tremendous role in supporting me through all of this.

SE's can be frustrating but those go away after treatment. I did have neuropathy. A few accupuncture treatments resolved that. I am T1 Diabetes 37 years so have an extra predisposition to that issue.

There are few of us with different types in each breast. But my docs assured me this does not change the outcomes. Focus on treating the more aggressive side/type. I am only about 1 1/2 yr cancer free but no more concerned than others at this point in my recovery.

Dx 10/12/2015, ILC, Left, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 11/4/2015, IDC, Right, 1cm, Stage IA, Grade 3, 1/2 nodes, ER-/PR-, HER2- Surgery 3/25/2016 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 4/1/2016 Whole-breast: Breast, Lymph nodes Targeted Therapy 7/1/2016 Hormonal Therapy Arimidex (anastrozole) Chemotherapy AC + T (Taxol)
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Jul 21, 2017 08:15PM - edited Jul 21, 2017 08:17PM by bareclaws

I have/had three different types of breast cancer: IDC triple positive and invasive mucinous on the left, DCIS ER-, PR-, Her2? on the right. Started with TCHP which made me very sick. Had to start over with AC, then BMX with clear nodes and margins ( no recon, followed by Herceptin and 12 Taxol. I finished the Taxol today-yay! I'll continue the Herceptin weekly to finish a year. Five weeks of rads coming up, then Femara or equivalent for ten years. I hope to do it all. Keep running, keep my weight down. Live my life. MO says I should have at least 75% chance of no recurrence. But with so many variables, it's hard to predict

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Jul 22, 2017 08:27AM obsolete wrote:

Having had incremental BC 3 & 4 years ago, concern & worry have become my "new normal", even though I'm not constantly preoccupied with BC, as I originally had been. One eye, I think, always shall remain open to other possibilities out of fear of the "unknown". Not only with rarer exotic BC subtypes, there are still too many unknowns in BC.

[Multi-centric DCIS grade-III, Mixed Invasive Mucinous grade-II multi-focal, Invasive Solid Papillary grade-II, LX & BMX, hormone therapy, ER/PR+ HER2-]

Never quit believing. Best wishes to all.

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