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Topic: Grade 3 folks, please help!

Forum: Mixed Type Breast Cancer — Meet others who have mixed type breast cancer.

Posted on: Jun 1, 2021 01:47PM - edited Jun 1, 2021 01:48PM by RMC19

RMC19 wrote:

Completely going down a rabbit hole - I was grade 3 mixed. Finished all active treatments (just doing Zometa) and keep being told by folks (not Doctors) that I am high risk as a Grade 3 (Stage 2B clinical stage). I was so positive after finishing treatment, but all I keep hearing (most recently at Mem Day parties) that basically that it is highest risks and is going to come back. Anyone in my situation doing well after active treatment? Haven't slept in 2 nights. I did ACT 3rd gen and Rads x 28. Now on Arimidex. So scared right now and have absolutely no one to talk to about this.

Dx 7/10/2019, LCIS/DCIS/ILC/IDC, Right, 3cm, Stage IIB, Grade 3, 3/21 nodes, ER+/PR+, HER2- (FISH)
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Jun 1, 2021 02:42PM Trishyla wrote:

I'm still here nearly five years after diagnosis. Not only did I have a triple negative, grade 3 tumor, I also had six ( Six!!) hormone positive tumors that were grade 2. As my breast surgeon put it, I seem to be a cancer factory. Did five months of IV chemo, bilateral mastectomy and then five more months of the oral chemo Xeloda. No radiation or AIs, by my choice.

I still have moments of depression, anxiety and the very occasional bout of absolute panic. But mostly I'm okay. I'm trying hard to just live my life and not let the cancer take anything else away from me.

Ignore the doomsayers. Unless they've walked in your shoes, they have no credibility whatsover. If you're really concerned, talk to your oncologist.

Take care.

Trish

Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 8/4/2017 Xeloda (capecitabine)
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Jun 1, 2021 03:03PM ElaineTherese wrote:

I was Grade 3 and did chemo before surgery. The chemo wiped out all the active cancer in my breast and compromised lymph node. My oncologist wasn't that surprised; chemo works best on Grade 3 cancer, which is dividing quickly. Here I am, almost seven years later and still cancer-free!

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/23/2014 AC Targeted Therapy 9/17/2014 Perjeta (pertuzumab) Targeted Therapy 9/17/2014 Herceptin (trastuzumab) Chemotherapy 9/17/2014 Taxol (paclitaxel) Surgery 1/12/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/25/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/9/2015 Breast, Lymph nodes
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Jun 1, 2021 03:17PM moth wrote:

Since you were hormone positive are you continuing with hormonal therapy? Tamoxifen or AI should be part of your treatment for a minimum of 5 years.

Grade and Stage give us indications of how aggressively to treat but the reality is that we don't know who will and who won't recur - we just know large population stats. Individuals can always fall in the wrong side of the curve. There's really no point in stressing about it because it won't change things. Odds are in your favour - esp if you continue hormonal treatment.

I take weekends off

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: https://nevertellmetheodds2017.tumblr.com/

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
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Jun 1, 2021 03:30PM SondraF wrote:

Did they get stage and grade confused? Sheesh - who are these people to rain on your parade? And if they are basing their opinion on something that happened to a friend or a third cousin or whatever, everyone's cancer is different. Everyone's. Mine isn't yours isn't Trishyla's isn't Moth's.

Don't let people and their uninformed opinions live rent free in your head. While there are no guarantees in life, and even fewer guarantees about cancer, there is no point in surviving to live under a cloud of extreme anxiety about recurrence, especially not a cloud caused by other people. All anyone can really guarantee is that IF, a big IF, you recur you will deal with it, just like you dealt with it the first time.

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Hormonal Therapy 11/28/2019 Femara (letrozole) Targeted Therapy 11/28/2019 Ibrance (palbociclib) Surgery Prophylactic ovary removal
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Jun 1, 2021 05:57PM RMC19 wrote:

Thank you so much! I really needed to hear this today - so tired of folks looking and talking to me like I am on the way out.

Dx 7/10/2019, LCIS/DCIS/ILC/IDC, Right, 3cm, Stage IIB, Grade 3, 3/21 nodes, ER+/PR+, HER2- (FISH)
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Jun 1, 2021 05:58PM RMC19 wrote:

Thank you! This helped - I have no one to talk to and everyone here is so nice b/c they "get it". thank you, thank you, thank you!

Dx 7/10/2019, LCIS/DCIS/ILC/IDC, Right, 3cm, Stage IIB, Grade 3, 3/21 nodes, ER+/PR+, HER2- (FISH)
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Jun 1, 2021 05:59PM RMC19 wrote:

Yes, I am on an AI (Arimidex/Anastrozole) for at least 5 - more likely 10+ per my 2nd opinion MO. I've just never had anyone focus so heavily on the grade 3 (except during CT b/c that was their reason to use it - b/c it works so well for fast dividing cells. Thank you so much!

Dx 7/10/2019, LCIS/DCIS/ILC/IDC, Right, 3cm, Stage IIB, Grade 3, 3/21 nodes, ER+/PR+, HER2- (FISH)
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Jun 1, 2021 06:00PM RMC19 wrote:

Thank you! Really needed a fresh perspective today! I like the "don't let them live rent free" part - gonna keep repeating that one :) Thank you!

Dx 7/10/2019, LCIS/DCIS/ILC/IDC, Right, 3cm, Stage IIB, Grade 3, 3/21 nodes, ER+/PR+, HER2- (FISH)
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Jun 1, 2021 06:53PM Rambros wrote:

My stats pretty similar to yours - 3.5 cm, positive node, grade 3, did ACT and 28 rads after a mastectomy and I’m doing well over 6 years out. I’ve taken tamoxifen for 6 months, 5 years of letrozole and now almost 6 months of anastrozole. Planning to get to 10 years of AI’s.

Sounds like you’ve done and are doing all you can, so try to just live your life like it’s behind you for good. Take care

Dx 10/8/2014, IDC, Left, 3cm, Stage IIB, Grade 3, 1/10 nodes, ER+/PR+, HER2- (FISH) Surgery 11/16/2014 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 1/5/2015 AC + T (Taxol) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Surgery Prophylactic ovary removal Radiation Therapy Lymph nodes, Chest wall
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Jun 1, 2021 11:44PM 2019whatayear wrote:

Man what a buzz kill. Who were these annoying people? I'm very annoyed on your behalf. I'm sorry you were just trying to enjoy a lovely day and it got wrecked and now you are worried.

5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020
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Jun 2, 2021 05:55AM Julweed wrote:

I’m recently diagnosed, first time on here. grade 3 mixed IDC, ILC, DCIS, LCIS. Sentinel node negative. I declined chemo and my radiation has been delayed 3 times due to slow healing from surgery. I’m over 9 weeks from surgery now and wondering if it’s even worth doing radiation at this point. Was told I needed to do rad ASAP, esp if declining chemo but they keep pushing it out like it’s no big deal. The next phase will be the meds which also scare me and I’m looking into herbal alternatives. Starting to distrust the medical advic

Dx 3/2021, LCIS/DCIS/ILC/IDC, Left, 4cm, Stage IIA, Grade 3, 0/1 nodes, ER+, HER2- Surgery 3/24/2021 Lumpectomy; Lymph node removal Radiation Therapy Whole-breast: Breast
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Jun 2, 2021 08:27AM - edited Jun 2, 2021 08:30AM by Moderators

Julweed, we're sorry you find yourself here, but glad you found us!

If you are looking into herbal alternatives and want to learn more on that, you might want to check out a forum we have for those contemplating alternative approaches to treatment. There is also a complementary treatment forum, here: Complementary Treatment/Holistic Treatment. Just a reminder that complementary medicine is USED WITH standard treatment, and alternative medicine is USED INSTEAD OF conventional medicine. You can talk and learn from other member's experiences here in the discussion boards, but we encourage you to talk with your doctors about it before making such important decision about treatment.

Hope this helps. Wishing you well and hope to hear from you again soon,

The Mods


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