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Topic: Light from around the world for LongTermSurvivor/Stephanie

Forum: Acknowledging and honoring our Community — Share accomplishments, milestones, goals of community members, family members or yourself. Just finished treatment? Just got married? Watched your child graduate? Ran a big run? Been a huge help to members in our community? Let's honor our members here!

Posted on: Mar 31, 2016 10:57AM - edited Mar 31, 2016 11:22AM by farmerlucy

farmerlucy wrote:

Remember President Bush's Point of Light initiative? That is what Stephanie has been for many of us on these boards. Let's shine the light for her by way of greetings and love from around the world.

http://www.cmt.com/videos/randy-travis/35896/point...


Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal
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Posts 121 - 150 (721 total)

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Apr 27, 2016 05:34PM ruthbru wrote:

Hi from chilly North Dakota!

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Apr 28, 2016 01:21AM SlowDeepBreaths wrote:

Thinking of you, Stephanie.

Japan - From my DD's trip.

Dx 4/2016, TN mets to lung. VATS left upper lobe wedge resection. "Fall seven times, stand up eight" Japanese Proverb Dx 7/2013, IDC, Left, 1cm, Grade 2, 0/0 nodes, ER-/PR-, HER2+ (FISH) Dx 7/2013, IDC, Left, 1cm, Grade 2, 0/0 nodes, ER-/PR-, HER2- (FISH)
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Apr 28, 2016 01:40AM Tomboy wrote:

Stephanie, thinking of you with love and warmth from Los Angeles. I was so happy to see you in my inbox, when I had sent you a private message that one time. I wasn't sure you would respond, because you didn't know me at all! And I was suffused with warmth and gladness to read your response, it was like having a real friend leaning close. And I have read it several times since. It's just that the amount of love you have sent out into the world, has mattered so much to all of us, enough light to warm those cockles of our hearts! So sending some rays back to you. Love

"I will sit right down, waiting for the gift of sound & vision" David Bowie, Rest in pax, my beloved changeling... Dx 6/8/2012, IDC, Right, 1cm, Stage IIIC, Grade 3, 25/30 nodes, ER+/PR+, HER2+
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Apr 28, 2016 10:43AM mara51506 wrote:

Good morning Stephanie. Hope it was sunny out for you this day. I wanted to share some light with you that I also find very cute. Hope you like it.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/21/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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Apr 28, 2016 12:15PM cb123 wrote:

Good morning Stephanie,

Look what some millennial kid posted on my FaceBook! Must be a Bernie or Bust kid?

It never ends does it? Thank goodness.

I hope you're having a peaceful day.

cb

~I have lived a wonderful life and truly haven't missed a thing.~ BRCA1 Deleterious Mutation E1250X (3867G>T) Dx 3/15/2014, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2014 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Dx 1/15/2016, IDC, Right, 1cm, Stage IIIC, Grade 3, 20/27 nodes, ER+/PR+, HER2- Surgery 3/15/2016 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Targeted Therapy Hormonal Therapy Arimidex (anastrozole)
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May 1, 2016 12:13PM - edited May 1, 2016 12:34PM by farmerlucy

Happy May Day to you Stephanie. So glad you are able to take in the wonders of nature. I've always loved May Day. Where I was raised in the Midwest we would pick flowers, put them in a May basket, hang it on a friend's door and then run and hide. I have to admit one year when I was five I picked an armful of flowers from all the neighbors. They were beautiful and they were there. I had some issues understanding ownership at that tender age. I received a heck of a scolding from my dad. So to all you neigbors out there in the universe, "I'm sorry I picked things from your yard I shouldn't have!" Whew glad to get that off my chest.

I'm so glad you have such a great relationship with your oncologist. My brother is an oncologist. Pre-cancer I never understood why he'd set himself up for that career. Now I can see it. It must be such a privilege to walk with another soul in such an important, and often the most important journey of their lives.

My baby chicks have become teenagers. Spike and Boz the roosters have taken a keen interest in them. I may release the teenagers soon and hope the bachelors watch over them.

I hope you are having a peaceful day and that your pain is well controlled. Hugs from my farm to yours.

Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal
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May 1, 2016 01:52PM - edited May 1, 2016 01:53PM by Lily55

Hey Stephanie, sending you loads of thoughts and love from Spain, you are one truly amazing woman, I am not tech savvy enough to post potos

xxx

Dx 4/2012, ILC, 5cm, Stage IIIA, Grade 2, 7/14 nodes, ER+/PR+, HER2- Surgery 5/2/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 8/14/2012 Breast, Lymph nodes Hormonal Therapy 7/18/2013 Aromasin (exemestane) Radiation Therapy 3/7/2019 External: Bone Chemotherapy Taxol (paclitaxel)
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May 1, 2016 02:47PM cb123 wrote:



~I have lived a wonderful life and truly haven't missed a thing.~ BRCA1 Deleterious Mutation E1250X (3867G>T) Dx 3/15/2014, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2014 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Dx 1/15/2016, IDC, Right, 1cm, Stage IIIC, Grade 3, 20/27 nodes, ER+/PR+, HER2- Surgery 3/15/2016 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Targeted Therapy Hormonal Therapy Arimidex (anastrozole)
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May 1, 2016 10:37PM Rosevalley wrote:

Thinking of you Stephanie and hoping your day was comfortable and full of flowers, insects and critters visiting your farm windows. Isn't the weather glorious? So much sun.We went to the Oregon coast and walked along the beach in 75 degree sunny weather in May. I can't believe it. Normally it is cool and cloudy. I am kind of baked and feeling a little stupid. Too much sun and breeze... of course I was wifty to begin with. Loopy

Anyway I thought I would check in and send you love and hugs.

rosevalley

Double mastectomy 07/ chemo ACT, Radiation/ 07 Arimidex, 08 Aromasin, 2012 Faslodex, 2014 Afinitor / mets spine, bones 6/2015 mets to omentum, malignant ascites, lung, liver/ 2016 Herceptin, Doxil, Faslodex. Ibrance, Taxol, Abraxane, Navelbine Dx 1/2/2007, ILC, 6cm+, Stage IIIA, Grade 1, 1/17 nodes, ER+/PR+, HER2- Dx 4/2/2012, ILC, 6cm+, Stage IV, Grade 1, 1/17 nodes, mets, ER+/PR+, HER2- Dx 6/1/2015, ILC, 6cm+, Stage IV, Grade 2, 1/17 nodes, ER+/PR+, HER2+ (FISH)
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May 4, 2016 05:16AM FactoryGirlYogi84 wrote:

you are the best Stephanie. Hope all is well

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May 4, 2016 10:56AM april485 wrote:

For you dearest Stephanie. I read your blog and I know your heart is as big as the world and may this angel keep you from any pain and hurt moving forward. Hugs!

"Fear has been a huge dictator in my life - so I am trying to stage a coup!" ~ a friend Dx 1/30/2013, DCIS, <1cm, Stage 0, Grade 2, ER+/PR+ Surgery 2/20/2013 Lumpectomy: Left Surgery 3/10/2013 Lumpectomy: Left Radiation Therapy 4/21/2013 3DCRT: Breast Hormonal Therapy 6/19/2013 Aromasin (exemestane) Hormonal Therapy 1/1/2016 Femara (letrozole)
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May 4, 2016 07:10PM mara51506 wrote:

I love that angel April Heart


Stephanie, I too appreciate you sharing so candidly your words and perspective on dying. I follow your blog posts on other site, this post and of course voraciously read the Death and Dying thread. I am not allowed to give my regards on that one but I do want to say thank you again for sharing so generously. Loving kindness to you and others on any stage of this thing we call life.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/21/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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May 5, 2016 01:16AM SlowDeepBreaths wrote:

Thinking of you, Stephanie.

Dx 4/2016, TN mets to lung. VATS left upper lobe wedge resection. "Fall seven times, stand up eight" Japanese Proverb Dx 7/2013, IDC, Left, 1cm, Grade 2, 0/0 nodes, ER-/PR-, HER2+ (FISH) Dx 7/2013, IDC, Left, 1cm, Grade 2, 0/0 nodes, ER-/PR-, HER2- (FISH)
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May 5, 2016 09:56AM - edited May 5, 2016 10:15AM by cb123

I started this guy last Stinko de Mayo.

I finally get an avocado to grow and it keeps doing this????

I'm starting some companion trees later today, I'd like to get 2 trees that don't get brown leaves.

~I have lived a wonderful life and truly haven't missed a thing.~ BRCA1 Deleterious Mutation E1250X (3867G>T) Dx 3/15/2014, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2014 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Dx 1/15/2016, IDC, Right, 1cm, Stage IIIC, Grade 3, 20/27 nodes, ER+/PR+, HER2- Surgery 3/15/2016 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Targeted Therapy Hormonal Therapy Arimidex (anastrozole)
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May 5, 2016 10:25PM Longtermsurvivor wrote:

Thank you, everyone!

April, I love your painting...it made me gasp with delight.

cb. I've just discovered avocado smoothies made with milk, avo, ice, a bit of lemon and a bit of sugar. Amazingly delicious and nutritious. Also, thanks for SF, my birth place and favorite city.

SDB. Oh, mountain heights. How I miss the altitudes - too many years SOB from long mets, all I do is dream of the High Sierras and Yosemite. Fortunately many good memories.

Rosevalley, I just sent you a bouquet from my friend's garden. Hope you enjoy those roses. :)

Yogini, your mom and you are in my healing meditations!

Tomboy, we are never alone - I'm glad you reached out and I reached back.

Ruth Bru, thank you for bringing me someplace I've never been in this lifetime. I love to see and feel the world through others' eyes and experiences.

Lily, a warm hug and kiss from California to Spain. Thank you!

Everyone, thank you for your kind words for my healing and in appreciation of what I share. It's important to know that I'm not speaking into an empty room, but that your receive me. I've so often wondered what people think, feel and experience as death approaches. It's good to know that others care too!

Many blessings on this fine Spring evening, Stephanie

Farmer Lucy, here are a couple chickens at Moonlight Farm. The white Delaware in the foreground I call speckle neckle, She's bold and friendly, loves to eat bugs.

Grateful to be here. Advanced breast cancer for 25 years, engage holistic approaches. Am dealing with ascites and many mets. Am on hospice.
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May 5, 2016 10:42PM - edited May 5, 2016 10:45PM by ruthbru

Here's the same river that was in the picture you liked, but in the summer.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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May 6, 2016 03:36PM LaCombattante wrote:

Yesterday, we were flying over Montblanc and I snapped couple of pictures - love and light from Switzerland!


Surgery 6/20/2011 Mastectomy: Left Hormonal Therapy 8/25/2011 Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/28/2019, ILC, Left, Grade 2, 6/8 nodes, ER+/PR+, HER2- Surgery 4/3/2019 Lymph node removal: Underarm/Axillary Chemotherapy 4/29/2019 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxol (paclitaxel)
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May 6, 2016 03:38PM LaCombattante wrote:

one more...


Surgery 6/20/2011 Mastectomy: Left Hormonal Therapy 8/25/2011 Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/28/2019, ILC, Left, Grade 2, 6/8 nodes, ER+/PR+, HER2- Surgery 4/3/2019 Lymph node removal: Underarm/Axillary Chemotherapy 4/29/2019 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxol (paclitaxel)
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May 12, 2016 10:49PM - edited May 12, 2016 11:09PM by Mominator

Stephanie, after your suggestion, I have been reading Sherri Phillipo's blog. I've been working from the oldest dates coming forward. I just got to Dickinson, on page 6, oh my, what a shock for me!

This is one of my favorite poems of Emily Dickinson, and I set it to music back in 1990, along with three other Dickinson poems to make a song cycle. It has only been performed three times: it was premiered in 1990, performed again in 2005 in a new music festival, and most recently at my concert in Madison, NJ on April 14, 2016, which was just 4 days after Sherri Phillipo died.

Of course I wanted to tell Sherri how much that poem resonated with me. Sadly that will have to wait until we meet on the other side.

----------------

Tie the strings to my life, my Lord,
Then I am ready to go!
Just a look at the horses—
Rapid! That will do!

Put me in on the firmest side,
So that I shall never fall;
For we must ride to the Judgment,
And it's partly down hill.

But never I mind the steepest,
And never I mind the sea;
Held fast in everlasting race
By my own choice and thee.

Good-by to the life I used to live,
And the world I used to know;
And kiss the hills for me, just once;
Then I am ready to go!


----------------

Thank you for introducing me to Sherri.


Mominator, BRCA2+, STK-11 VUS. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, passed 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/30/2017 Reconstruction (left): Silicone implant
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May 14, 2016 09:50AM - edited May 14, 2016 09:51AM by Longtermsurvivor

Hi mominator and friends,


Mominator, your message got me thinking about blogs I've followed to the author's death.

Some of the writers continue to live in my heart and imagination.

Since I know others here enjoy poetry and good writing, I'll offer these.

There are many other well written and deserving cancer and death and dying blogs out there - these are just some of my personal favorites.


(Free registration required to access caring bridge sites)


Eva and Ann's are very poetic and descriptive

Eva Saulitis

https://www.caringbridge.org/visit/evasaulitis

Eva's earlier run with breast cancer diagnosis and treatment

http://alaskanincancerland.blogspot.com


Ann Emerson

https://www.caringbridge.org/visit/annemerson/journal

http://clearheartblog.blogspot.com/2010/09/meet-ann-emerson.html


Julia's blog is fun and funny, even as she's dying

http://juliadarling.co.uk/julias-diary/


Terri is the daughter of science fiction authors and a wonderful writer

http://gracefulwomanwarrior.com


Wave's World will break your heart while making you laugh

http://wavesworld.typepad.com


Actually, all these will break your heart wide open. Reading them is reading autobiographies of the recently deceased. You get to know them and to love them knowing that they'll die. Because they're blogs, their deaths are the first things you learn. Then you begin to understand the complexity of their lives, feelings, approaches, souls and spirits.

Enjoy the reads!

May your broken hearts open to reveal new and tender life. May you nurture your heart's wisdom. May you be healed and at peace.

loving kindness, Stephanie

Grateful to be here. Advanced breast cancer for 25 years, engage holistic approaches. Am dealing with ascites and many mets. Am on hospice.
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May 15, 2016 12:06PM Rosevalley wrote:

Good morning Stephanie! I hope you were comfortable last night and are doing well this morning. May the sunlight stream through your windows, the chickens greet you, butterflies dance on the flowers and you be filled with peace and contentment. Blessings your way today.

love rosevalley

Double mastectomy 07/ chemo ACT, Radiation/ 07 Arimidex, 08 Aromasin, 2012 Faslodex, 2014 Afinitor / mets spine, bones 6/2015 mets to omentum, malignant ascites, lung, liver/ 2016 Herceptin, Doxil, Faslodex. Ibrance, Taxol, Abraxane, Navelbine Dx 1/2/2007, ILC, 6cm+, Stage IIIA, Grade 1, 1/17 nodes, ER+/PR+, HER2- Dx 4/2/2012, ILC, 6cm+, Stage IV, Grade 1, 1/17 nodes, mets, ER+/PR+, HER2- Dx 6/1/2015, ILC, 6cm+, Stage IV, Grade 2, 1/17 nodes, ER+/PR+, HER2+ (FISH)
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May 15, 2016 12:29PM mara51506 wrote:

I've just started Julia Darling's diary. It is quite the peek into someone's life. You are right. She is funny as she is dying but I can appreciate the fact she kept her humour. Very good read indeed. Will have to check the others as time allows since I do enjoy the perspective other people. It is helpful to also gain some perspective as to how my own health can go as well. I don't like to hide my head in the ground and pretend I can't have my cancer spread. I don't live with it 24/7 but don't shy away from that truth. Your words from this thread as well as the Death and Dying thread offer some of what can be expected or experienced and I do not shy away from that. Thank you Stephanie. I do hope you are comfortable as well.

2015 chemos AC plus T Herceptin august 12 2016 craniotomy for brain met Sept 23 whole brain radiation November 2016 Herceptin, Perjeta and Taxol. Dec 2016, Dropped the Taxol due to extreme side effects, continuing Herceptin and Perjeta. Dx 3/15/2015, DCIS, Right, Stage 0, Grade 3, ER-/PR-, HER2+ Surgery 4/21/2015 Lymph node removal: Sentinel; Mastectomy: Right Dx 5/15/2015, IBC, Right, Stage IIIB, Grade 3, ER-/PR-, HER2+ Dx 7/29/2016, IBC, Right, 6cm+, Stage IV, metastasized to brain, Grade 3, ER-/PR-, HER2+
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May 15, 2016 02:33PM Mominator wrote:

Thanks, Stephanie, I will look at those as well.

My heart has been being broken now for a while. My friend and neighbor battled breast cancer 3 years ago. I thought she was done. She's so very private, she never talked about her treatments, and she never let her children know that she had cancer, even going through chemo wearing a wig. I only discovered in August, 2015 that she has mets because she happen to mention her new medicine "for her bones."

She's been losing her eyesight since October. She was hospitalized for seizures in January, and came home with only light and shadows for sight. She was hospitalized again in February and came home with no sight. She has been quickly declining, and went on hospice on April 4, 2016.

https://community.breastcancer.org/forum/144/topics/842954

I sang my song cycle on poems of Emily Dickinson as a way of honoring her. Although, when I programmed the songs, I was still thinking her death would be much further in the future (months or years). I'm afraid it's now just weeks away.

I'll put the entire song cycle in its own post. Madelyn / Mominator

Mominator, BRCA2+, STK-11 VUS. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, passed 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/30/2017 Reconstruction (left): Silicone implant
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May 15, 2016 02:49PM - edited May 15, 2016 02:53PM by Mominator



Here are the poems in my song cycle:



The Bustle in a House

The Bustle in a House

The morning after Death

Is solemnest of industries

Enacted upon Earth_


The Sweeping up the Heart

And putting Love away

We shall not want to use again

Until Eternity.


Each that we lose takes part of us

Each that we lose takes part of us;

A crescent still abides,

Which like the moon, some turbid night,

Is summoned by the tides.


All but Death, Can be Adjusted

All but Death, Can be Adjusted_

Dynasties repaired_

Systems_ settled in their Sockets_

Citadels_ dissolved_


Wastes of Lives_ resown with Colors

By succeeding Springs

Death_ unto itself_ Exception_

Is exempt from Change_


Tie the Strings of My Life, My Lord

Tie the Strings of My Life, My Lord,

Then, I am ready to go!

Just a look at the Horses_

Rapid! That will do!


Put me in on the firmest side_

So that I shall never fall_

For we must ride to Judgment_

And it’s partly, down Hill_


But never I mind the steepest_

And never I mind the Sea_

Held fast in Everlasting Race_

By my own Choice, and Thee_


Goodbye to the Life I used to live_

And the World I used to know_

And kiss the Hills, for me, just once_

Then_ I am ready to go!

--------------------------------------------------------------------------

The punctuation, including dashes and capitalization, and word choices are from an unedited edition of Emily Dickinson's poems. Her poems were so unconventional that editors frequently changed punctuation and words before printing. So some of these poems may be a bit different from what you may know.

Madelyn


Mominator, BRCA2+, STK-11 VUS. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, passed 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/30/2017 Reconstruction (left): Silicone implant
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May 16, 2016 10:25AM cb123 wrote:

Good morning from Arizona,

What if, instead of thinking about solving your whole life, you just think about adding additional good things. One at a time.

Spoken like the true hoarder I am. Winking

cb


~I have lived a wonderful life and truly haven't missed a thing.~ BRCA1 Deleterious Mutation E1250X (3867G>T) Dx 3/15/2014, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2014 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Dx 1/15/2016, IDC, Right, 1cm, Stage IIIC, Grade 3, 20/27 nodes, ER+/PR+, HER2- Surgery 3/15/2016 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Targeted Therapy Hormonal Therapy Arimidex (anastrozole)
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May 16, 2016 12:23PM Longtermsurvivor wrote:

cb123,

Thank you for the reminder of the very many ways we can approach living and dying.

I woke up singing this Threshold Choir song, Put Everything in Order by Velma Frye

The local Threshold Choir has been singing for me for four years now. Their songs are truly a refrain for my life. And I think they've helped me to live longer and better than expected.

There are Threshold Choir groups all over the world. Volunteers come to the besides of the dying to sing in small groups of 2-4 members. I love these ladies!

If you'd like live their music at your dying bed or bedside of one you love, contact them.

I hope you enjoy Velma Frye's music. She's an incredible songwriter.

Fortunate are Madelyn's neighbors who enjoy her music and presence. May we all be so well accompanied throughout life.

Many blessings all, Stephanie

Grateful to be here. Advanced breast cancer for 25 years, engage holistic approaches. Am dealing with ascites and many mets. Am on hospice.
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May 16, 2016 03:19PM farmerlucy wrote:

Morning Stephanie - Thank you for telling us about The Threshold Choir organization. It would be a great fit for our church. Hope you are having a peaceful day.

Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal
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May 16, 2016 11:59PM Bestbird wrote:

Stephanie, visiting you here on this special thread just for you is akin to joining a loving family that is celebrating a very special member! Your words and spirit touch people all over the world, and we are so grateful to you for generously sharing your amazing spirit.

Wishing you the sweetest of days!

With gratitude and love.

- Anne

Dx 10/6/2011, IDC, Left, Stage IV, ER+/PR+, HER2-
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May 17, 2016 01:53AM Rosevalley wrote:

Stephanie- When ever I walk through my garden admiring the Irises, foxglove and roses I think of you. You love beauty and nature. Now I have that hauntingly beautiful song stuck in my head! The threshold choir must be so lovely. Kind of like when you have your acupuncture needles in and the low Asian music plays.. relax and let the magic work. Music soothes. Thank you for all you share. I have read, expanded my view on death and dying, learned about other views, music, alternative treatments... shared experiences with ascites and management. Wow... a real education. I am grateful to you for all your sharing. Thank you!

May you be as comfortable as you are able and at peace. Lovingkindness to you. rosevalley

Double mastectomy 07/ chemo ACT, Radiation/ 07 Arimidex, 08 Aromasin, 2012 Faslodex, 2014 Afinitor / mets spine, bones 6/2015 mets to omentum, malignant ascites, lung, liver/ 2016 Herceptin, Doxil, Faslodex. Ibrance, Taxol, Abraxane, Navelbine Dx 1/2/2007, ILC, 6cm+, Stage IIIA, Grade 1, 1/17 nodes, ER+/PR+, HER2- Dx 4/2/2012, ILC, 6cm+, Stage IV, Grade 1, 1/17 nodes, mets, ER+/PR+, HER2- Dx 6/1/2015, ILC, 6cm+, Stage IV, Grade 2, 1/17 nodes, ER+/PR+, HER2+ (FISH)
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May 19, 2016 06:57PM - edited May 19, 2016 07:00PM by cb123

Hi Steph,

I lived in Yuba City/Marysville when I was in college. One day, on my way home from school, I noticed a couple of young girls stuck with car trouble at the post office. I gave them a ride home and their mom, who didn't speak English, gave me a chicken. She insisted.

I let it roam wild and free around the yard for a couple of hours while I made it a 4x4x4 tabletop coup. Then it was time for it to get in it's cage for the night. I must have chased it around the yard for 10 minutes before my little old man neighbor stopped laughing long enough to tell me they just come home by themselves.

I put some chicken food down and came back later to tuck it in. Sure enough, she was in there. The next day, I threw the neighborhood kids in the back of my truck, drove to the feed store and let each kid pick out a chick. I spent the rest of the year enjoying my coffee on the front porch, watching the chickens be mean to the cat.

It was the most perfect way to start my days. Sometimes I'd have a cold one out there with my little old man neighbor in the afternoons. Chickens are incredibly entertaining.

cb




~I have lived a wonderful life and truly haven't missed a thing.~ BRCA1 Deleterious Mutation E1250X (3867G>T) Dx 3/15/2014, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2014 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Dx 1/15/2016, IDC, Right, 1cm, Stage IIIC, Grade 3, 20/27 nodes, ER+/PR+, HER2- Surgery 3/15/2016 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Targeted Therapy Hormonal Therapy Arimidex (anastrozole)

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