We are 187,645 members in 81 forums discussing 141,041 topics.

Help with Abbreviations

All TopicsForum: Acknowledging and honoring our Community → Topic: Would like your quotes about your fears for a new campaign

Topic: Would like your quotes about your fears for a new campaign

Forum: Acknowledging and honoring our Community — Share accomplishments, milestones, goals of community members, family members or yourself. Just finished treatment? Just got married? Watched your child graduate? Ran a big run? Been a huge help to members in our community? Let's honor our members here!

Posted on: May 5, 2017 05:33PM

Moderators wrote:

  • Medicating Breastcancer.org is launching a fundraising and awareness campaign around the fears and anxieties associated with breast cancer. Would you be willing to share your point of view? Your name, image, and powerful quote may be featured in a variety of ways to educate people about the need for more education, support, and access. Thanks for your help!!!

If you'd like to share your perspective, please submit your answer to one of these three questions to ttf@breastcancer.org, post it below, or PM the Mods.

  • What scares you most about breast cancer?
  • How did you manage the fear?
  • How did your support system help ease your fears?

All submissions must include your name, quote (35 words or less), and image (a headshot sized 600x600px, web resolution: 72 dpi).

If you would like to share your point of view but remain anonymous, please send your submission to the mods via direct message. Submissions may be featured in a graphic or video in the future (*username, image will not be used).

Breastcancer.org reserves the right to use language in its entirety or in part. No creative license will be taken. Your likeness and quote will be shown to you before it is used.

Examples of ideal submissions:

What scares you the most?

How did you manage the fear?

How did your support system help ease your fears?

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Page 1 of 1 (24 results)

Posts 1 - 24 (24 total)

Log in to post a reply

May 5, 2017 10:11PM Denise919 wrote:

I was diagnosed with breast cancer in 2016. I was not so much scared, but shocked since I have always been relatively healthy and am not, nor have I ever been on any medication other than daily vitimins, however, my christian faith and my husband and church family were my support system. I prayed a lot, which I do anyway and knew in my heart that whatever happened, my Lord was always there right beside me so I was able to get through the treatments with relative ease. Of course, i was depressed at times and in various degrees. That's when my support system (husband and church members) really encouraged me. My advice to breast cancer patients and survivors is to have a strong faith in God, and yourself and to have a support system in place that you can really count on when the going gets rough, because it WILL get rough and to reach out to any and all forums you come in contact with. It really helps.

Log in to post a reply

May 8, 2017 02:27AM javamama wrote:

My greatest fear was dying and leaving things undone. My second greatest fear was the cancer had spread and I would have to do chemo until the day I died. Interestingly enough, the full body scan after the mastectomy indicated that the rest of me was clean... which allowed me the ability to breath and plan to do the most essential things right away-so I wouldn't ever again feel as if I left something undone. My support system didn't alleviate my fears. They couldn't. But they uplifted me and cocooned me in support so that I could go on until I learned I scanned clean. They helped me live day by day until I could BREATH again.

Dx 8/19/2016, IDC, Left, Grade 1, ER+/PR+, HER2- Surgery 10/17/2016 Mastectomy: Left; Reconstruction (left): DIEP flap Chemotherapy 11/21/2016 AC + T (Taxol) Radiation Therapy 3/27/2017 Lymph nodes, Chest wall Hormonal Therapy 5/5/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

May 9, 2017 10:03PM Moderators wrote:

BUMP! Would anyone else like to contribute and also volunteer to take our survey? If so, please send us a PM with your email address and we'll include you on the survey list. Thank you!!!

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

May 10, 2017 03:38AM Traveltext wrote:

Most people going through cancer diagnosis, treatment and remission are dealing with alternate emotions of fear and hope in a state of anxiety. Fear of test results, fear of income loss, fear of inadequate health insurance, fear of poor medical attention, and fear of recurrence. Worst of all, you fear for your long-term survival chances.

Treatment is a sort of sanctuary, and while you are preoccupied with your condition through this phase, afterwards you have to adjust your brain to contend with a new reality and the sooner you can find a way to allay your fears the better. Meditation or tai chi works for some, others seek distractions in work or play, and/or with friends or family. But fear returns when you are lying awake in the early morning, and your brain reverts to such thoughts as how many treatments are enough, and how can you possibly do enough surveillance? Oh, and Is that a met symptom? Then, waiting for your regular screening results brings on the dreaded scanxiety.

Fortunately, we can push fear aside with that that positive emotion, hope. To live in a state of hope, to have confidence in hopeful outcomes sustains all of us living with cancer. Improved survival rates give rise to further hope. Gradually, as time goes on, you realize your survival odds are really quite good, and fears become illogical. Hope has conquered fear.


One percent of those newly diagnosed with breast cancer are guys. I'm one of those. Recently diagnosed and treated for prostate cancer. Now NED for both. More on Male BC here. Dx 3/6/2014, IBC, Left, 2cm, Stage IIIB, Grade 2, 2/23 nodes, ER+/PR+, HER2- Chemotherapy 3/17/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/28/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 9/14/2014 Breast, Lymph nodes Hormonal Therapy 11/3/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

May 10, 2017 04:26AM - edited May 10, 2017 01:27PM by SSBNewbie

This Post was deleted by SSBNewbie.
ILC Stage IIA on the right, IDC Stage IA on the left. BMX on 3/30/17.
Log in to post a reply

May 11, 2017 04:56AM Jojobird wrote:

What scares me most about breast cancer is death. Dying. Even writing that makes me choke. I've got a 12 year old daughter and husband both of whom I love very much. I grab time in fistfuls and take each day like a feast.

What helped me manage the fear is talking about death and dying. We deny it in this culture, but I didn't hesitate to make arrangements, organize my finances, call on my women friends to help out. I also joined a support group, joined these boards, and this also: after my treatments ended, I wrote letters to the nurses and doctors who helped me, expressing my deep gratitude for their work. I also continue to take antidepressants, hike and run, and let myself say "no" much more often, without guilt.

My husband, daughter, and friends are my support system. They let me cry, vent, nap, eat or not eat, -- all emotions were allowed at the table, all fears, angers, hopes, joys. We made a "Feelings Rights" poster in our house and honored it. Allowing the full experience has been very healing. I've resisted the pressure to be positive and to be strong. I've let myself be weak and angry. Thich Nhat Hanh once said, "No mud, no lotus," and both had, will always have, a space in my yard.




Dx 3/2016, IDC, Right, 6cm+, Stage IIIC, Grade 3, 21/21 nodes, ER-/PR-, HER2-
Log in to post a reply

May 11, 2017 06:07PM gb2115 wrote:

My fear is not being around to see my daughter grow up, get married, and maybe have a daughter of her own. I manage the fear by doing my best to be in the moment when I am with her, to soak it all in, and have her know how much her mommy loves her. I need to do better at staying in the moment, but it's getting a little easier.

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes.
Log in to post a reply

May 11, 2017 07:10PM shelabela wrote:

What scares me the most?

I have always been a very healthy women I am 43 years old and I am the rock in my family. I have always had yearly appointments and 6 months before I found out I had cancer was my last one,. My Dr felt no lump on my breast. I also have done monthly self exams. In Oct 0f 2016 I felt a hard spot on my left breast, the next month it was bigger. When I finally got in to see my dr it had grown to 3 times the size of when I first felt it.

To answer that question of what scares me the most...........

" Is that something can spread that fast that quick and you never know about it."

I never had any symptoms, I have no cancer in my family.

If I had not did self breast exams this would not have been found for another 9 months. It would of spread to who knows where. In 3 months that it grew that big it also spread to my lymph nodes.

Another quote I live by

"One more minute, One more hour, One more day, closer to kicking Cancers butt!" This is how I live my life now. There is no planning farther then an hour later, You never know when that next side effect will catch you.

When I am at work and miserable and want to go home I tell myself that.

Thanks.

Shellie Gossman

Dx 1/10/2017, IDC, Left, 4cm, Stage IIIB, Grade 2, ER+/PR+, HER2+ (IHC) Chemotherapy 2/5/2017 Taxol (paclitaxel) Targeted Therapy 2/5/2017 Herceptin (trastuzumab) Targeted Therapy 2/5/2017 Perjeta (pertuzumab) Chemotherapy 5/1/2017 AC
Log in to post a reply

May 12, 2017 08:29PM Ojttocs wrote:

  • What scares you most about breast cancer?
  • How did you manage the fear?
  • How did your support system help ease your fears?

I've always known that breast cancer could kill me, but I was blessed with 17 years of remission. Seventeen years of quiet, intruded only by that yearly mammogram scanxiety. Then, suddenly, it was back with a vengeance. Now, with bone and skin mets and numbers climbing, I'm facing the worst possible outcome: I really may die. I'm not ready to give up, however, so I still use the same weapon I've always used to battle this horrible disease: Knowledge. I learn everything I can. I read. I consult with experts. I connect with fellow cancer travellers. Breastcancer.org and other forums help me learn from my sisters and brothers about the human aspects of managing our diseases. There is wisdom and comfort knowing that others are here as well.


Dx 12/24/1996, IDC, Left, <1cm, Stage IA, Grade 1, 0/23 nodes, ER+ Surgery 1/18/1997 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Dx 9/14/2014, IDC, Left, 1cm, Stage IB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Chemotherapy 12/16/2014 Abraxane (albumin-bound or nab-paclitaxel), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 12/16/2015 Mastectomy: Right Dx 9/25/2016, IDC/IBC, Both breasts, 1cm, Stage IV, metastasized to other, ER+/PR+, HER2+ (IHC) Chemotherapy 10/18/2016 Navelbine (vinorelbine) Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Surgery Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy Whole-breast Chemotherapy CMF Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy 10/19/2017 Perjeta (pertuzumab)
Log in to post a reply

May 14, 2017 03:37AM Intelligal wrote:

What scares me the most about breast cancer is the suffering-Cancer is a horrible disease and I fear the suffering and pain the most-

I also fear that antiperspirant is causing many of the breast cancers in women today and we are over-looking this problem. I know, they did research, right-I don't believe a word of it-Secret, for example many women use this in America... I really do think we need to stop using antiperspirants-this is from an educated women who did the research, on herself-Period!

God Bless To All of You Beautiful Women who have cancer-Fight, never let cancer win! Period!

Intelligal-BSN RN

Log in to post a reply

May 14, 2017 02:22PM Momine wrote:

Traveltext, completely off topic, but you look so much like people in my family that it is almost eerie :D Any Scandi or German genes?

Dx 6/1/2011, ILC, 5cm, Stage IIIB, Grade 2, 7/23 nodes, ER+/PR+, HER2- Chemotherapy 6/19/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 9/12/2011 Mastectomy: Left, Right Radiation Therapy 1/8/2012 Surgery 3/7/2012 Prophylactic ovary removal Hormonal Therapy 3/31/2012 Femara (letrozole)
Log in to post a reply

May 14, 2017 07:42PM Moderators wrote:

Intelligal - Thank you for your contribution and welcome to BCO, although we're sorry you find yourself with cause to join us. We're sure you'll find support and encouragement in this wonderful community, so please spend some time getting to know some of our other members and threads. Let us know if we can be of any assistance!

Best wishes,

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

May 14, 2017 10:58PM Traveltext wrote:

Momine, none of the connections you mention. English ancestry and six generations in Australia.


One percent of those newly diagnosed with breast cancer are guys. I'm one of those. Recently diagnosed and treated for prostate cancer. Now NED for both. More on Male BC here. Dx 3/6/2014, IBC, Left, 2cm, Stage IIIB, Grade 2, 2/23 nodes, ER+/PR+, HER2- Chemotherapy 3/17/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/28/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 9/14/2014 Breast, Lymph nodes Hormonal Therapy 11/3/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

May 15, 2017 05:13PM Momine wrote:

Traveltext, funny! Oh, well, at least we are BC siblings.

Dx 6/1/2011, ILC, 5cm, Stage IIIB, Grade 2, 7/23 nodes, ER+/PR+, HER2- Chemotherapy 6/19/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 9/12/2011 Mastectomy: Left, Right Radiation Therapy 1/8/2012 Surgery 3/7/2012 Prophylactic ovary removal Hormonal Therapy 3/31/2012 Femara (letrozole)
Log in to post a reply

May 16, 2017 12:45AM Traveltext wrote:

Momine. Yes indeed. And isn't it great having 186,966 siblings!


One percent of those newly diagnosed with breast cancer are guys. I'm one of those. Recently diagnosed and treated for prostate cancer. Now NED for both. More on Male BC here. Dx 3/6/2014, IBC, Left, 2cm, Stage IIIB, Grade 2, 2/23 nodes, ER+/PR+, HER2- Chemotherapy 3/17/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/28/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 9/14/2014 Breast, Lymph nodes Hormonal Therapy 11/3/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

May 16, 2017 02:04PM Momine wrote:

Yes, always some sort of upside ;)

Dx 6/1/2011, ILC, 5cm, Stage IIIB, Grade 2, 7/23 nodes, ER+/PR+, HER2- Chemotherapy 6/19/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 9/12/2011 Mastectomy: Left, Right Radiation Therapy 1/8/2012 Surgery 3/7/2012 Prophylactic ovary removal Hormonal Therapy 3/31/2012 Femara (letrozole)
Log in to post a reply

May 20, 2017 06:02AM Pwnhusa wrote:

I just found out few weeks ago that I had a 5 cm cyst from my mammogram ,they brought me in and showed me the last 3 years how it's got bigger ,so they said should have drained ,so they called today and made the appt but now they said if its thick they might have to do a biopsy ,imam just wondering why they didn't tell me that when they brought me in the room and just telling me now , so now my stress is high over this ,Should I be concerned and has anybody else experience this ,tks

Log in to post a reply

May 20, 2017 06:08AM Meow13 wrote:

My biggest fear after being diagnosed with breast cancer was the TREATMENT.

I managed my fear by talking with others diagnosed with breast cancer and anti anxiety medications.

The best support system was my friends who had been through it. Mostly just listening and talking through my fears. My family wasn't very helpful because they were just as afraid and not very knowledgeable.

Log in to post a reply

May 20, 2017 06:14AM Artista928 wrote:

My biggest fear was my family finding out, aside from my bro. Don't get me wrong, they are kind and loving but way over the top anxieties. They are also Dr Phil and Dr Oz experts from having watched the shows. I already have anxiety issues that have been at bay since I've cut them out of the loop. Thankfully none of them live close so it's easy to hide. I've been locked up before due to anxiety and they don't want to see that for me again so I play that card if someone says they are coming to visit fam and want to see me too. 3 years. Works great. Emails is how I keep in touch.

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

May 28, 2017 06:00AM txharleygal wrote:

Fear: a feeling that is part of life just like joy and sorrow is. Without fear we would never be able to find out just how damn strong we are when we have to be.

June 3, 2016...a day that I remember quite vividly. Out of work for 2 plus years, at the end of March I had just started a brand new job and was so excited. But God had other plans for me as I had found a lump and was going in to have it checked. As I finished double checking my history on the iPad they gave me at check in, I hesitated to check yes or no on the very last question "has anything changed since your last mammogram"...I checked yes and that was the start o(r detour) on my current journey.

I am the don't make waves, don't get in trouble, the "little middle kid" that flies under the radar person. Breast cancer doesn't allow that to happen to you.

Without my faith in God, the support of my husband and family and a whole lot of prayer I am where I am today. Does it suck - sure it does. I had days where I cried, screamed and hated every single moment of that particular day . I also had "ok" days and counted on those days to make the bad ones manageable. I learned a whole lot about people along the way as well which is a whole other story. Do I dwell on it - absolutely not.

I ride my own Harley. I have a patch on my vest that says "Put your big girl panties on and biker up!"

In life all we need to do is hang on for the ride! God's got it all!!


Dx 6/3/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 0/8 nodes, ER+/PR+, HER2- Surgery 7/20/2016 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/18/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/12/2016 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 11/29/2016 Arimidex (anastrozole)
Log in to post a reply

May 28, 2017 07:54AM artistatheart wrote:

My biggest fear is that my DH will decline a lot without me. Start drinking more, not know what to do with the finances, get in a crummy relationship where the new woman takes him for a ride. Not that he is helpless or dumb. I just love him so much I don't want to see him hurting for even a day.

Dx 7/22/2015, ILC, Left, 4cm, Stage IV, Grade 3, ER+/PR+, HER2- Hormonal Therapy 8/9/2015 Femara (letrozole) Targeted Therapy 8/25/2015 Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

May 28, 2017 07:45PM Lalajordan7 wrote:

Hello everyone I am in tears as I read all of your post of unsupported husband. I'm not sure how I am feeling I was Diagnosed stage 3 breast cancer in Jan. Me and my husband planned the perfect wedding in the park...then I found out I had breast cancer. So April 6th 2017 we got married at the court house never got to wear my beautiful wedding dress. I am 48 years old 4 grandbabies n I'm scared to death...my husband has been by my side everyone thinks he is so amazing n yes I do too but emotionally I'm not allowed to be afraid...I feel like I'm not allowed to be afraid and yesterday they put my port in I'll start Chemo on the 5th of June. When I talk about how afraid I am he says things like it won't be that bad you'll be fine. I worry about everything this is so scary for me but if I bring it up he shuts me down. He does not realize how serious this is...he does not understand. We got in a big argument today we have 2 pit bull puppies who are out of control he works all day and I have to take care of them and once I start chemo it's going to be so hard. I told him today we should think about finding one of them a home. He flipped out and said he is moving out and I'm selfish. I am so afraid of what I am going to go through and his loyalties are literally to his dogs before me. I feel like he should be more concerned with my health. Yesterday after my port got out in he was at work and as bad as I felt I had to tend to the dogs and the male is so strong he almost knocked me down. What am I gonna do once I start Chemo? I have to deal with caring for the dogs or lose my husband. I don't think he realizes what I am emotionally going through. He famous words are.... you can't do anything about it so don't let it consume you, It breaks my heart. I feel like he should be putting my health first. He acts as if cancer is not that serious. I'm sorry I been holding all this in and have no one to talk to because I don't want to involve my family because everyone thinks he is so amazing since all this cancer stuff. I just want to be stress free and I want him to see how all this is effecting me. When I am scared of the unknown he says I have nothing to worry about. Do I have the right to be afraid? Or should I hold in my feelings? I'm am so afraid! So many things crossing my mind like after all the chemo will it come back? Is this cancer gonna be the cause of my death. I don't know I'm just so sad. I feel so alone right now. I just needed to vent since I can't do it anywhere else. Thank you and God bless all of you!

Lorrie M Jordan
Log in to post a reply

21 hours ago Traveltext wrote:

I wouldn't mind those puppies if I was well, let alone starting bc treatment. If your new husband doesn't understand your situation enough to prioritise you while you go through this, then I see a big red flag this early in the marriage. You really do need to sit down with him now and set some protocols that work for you both, because you'll be too tired to manage the dogs during the days after each chemo treatment.


One percent of those newly diagnosed with breast cancer are guys. I'm one of those. Recently diagnosed and treated for prostate cancer. Now NED for both. More on Male BC here. Dx 3/6/2014, IBC, Left, 2cm, Stage IIIB, Grade 2, 2/23 nodes, ER+/PR+, HER2- Chemotherapy 3/17/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 7/28/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 9/14/2014 Breast, Lymph nodes Hormonal Therapy 11/3/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

13 hours ago Meow13 wrote:

Does your husband ever go with you to doctor's appointments? Maybe if a nurse or doctor talked to him about the seriousness of your health and the toll of the treatment he may understand. I know when my doctor talked about taking at ease after my surgery my husband definitely took in more seriously. My husband at first did not want me to stay with my mother while recovering he thought I would be ok alone during the day. After my doctor talked to him he realized that I would be better at my mothers.

Sometimes social workers are there to help find counselling for couples affected by cancer.

Page 1 of 1 (24 results)