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Feb 26, 2016 12:39AM
JoAnn and ronqt1, I'm so sorry you have such troubles with the loaf. Ronqt1, I hope the lymphedema PT gives you some relief.
JoAnn, is the pain with the scar always a burning one? Do you ever just have tightness and pulling? Or is it always pain?
You've probably already tried this, but in case you haven't....the gentlest thing I can think of for the back spasms is a simple exercise my PT gave me. It is just crossing one's arms across one's chest and gently leaning side to side.
My back scar pulls in a specific spot. My PT can see and feel it. I have started aggressive rib remobilization and a technique called the Graston Technique, which uses metal tools to mobilize scar and tight fascia. Sounds worse that it is. I also started some more orthopedically based PT exercises. Those things combined with a new compounded cream (which gives me a rash in two of the three spots tried, so I only use it in one spot and only once a day, not 3x as rx), are propelling me forward after a four month plateau at PT.
Massage made things worse for me too, but I wonder if some sort of scar release technique would help you.
I can't use any sort of rub with menthol either. I'm also allergic to sulfer. The last time I used a menthol based rub, I developed a rash which my onc deemed "impressive".
Percocet actually makes me feel worse. I am not taking anything orally right now.
Dx June 2007, age 38, Stage IIa 2.7 cm pleomorphic ILC, ER+/PR+ HER2-, CAFx6, rads, Tamox, Zometa, Oncotype 18, Local recurrence April 2015
6/7/2007, ILC, Left, 2cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (FISH)
7/19/2007 Lumpectomy: Left; Lymph node removal: Sentinel
4/24/2015, ILC, Left, 1cm, Stage IA, Grade 2, 0/10 nodes, ER+/PR+
5/15/2015 Mastectomy; Reconstruction (left): Latissimus dorsi flap
Whole-breast: Breast, Chest wall
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)