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Nov 12, 2012 06:09PM
Nov 12, 2012 06:18PM
I just chopped mine up to nerve damage from the SNB and scar tissue adhesions that keep coming back on the chest. I call mine post mastectomy pain syndrome.
I have been seeing a pain clinic since June or July 2011.This is what I am taking for meds everyday:
Amitriptyline 25 mg Tablet 1 Tablet by mouth once daily at bedtime for sleep and pain(This is an antidepressent that has shown to have some effects on pain for some people)
Gabapentin 600 mg Tablet 1 Tablet by mouth 3 times daily and ½ at HS for neuropathy
Metaxalone(Skelaxin) 800 mg Tablet ½ Tablet by mouth(400 mg) up to 3 times/day (I normally only take Metaxalone at bedtime) Belive it or not, I can tell the difference when I stopped taking this muscle relaxer. Rarely, I will take it during the day.
Tramadol 50 mg Tablet 1 Tablet by mouth every 4-6 hours as needed for acute pain Sometimes Tramadol doesn't work as good, so I take the Vicodin combination when I can take another pill.
Hydrocodone-Acetaminophin 5-325mg Tablet 1 Tablet by mouth every 4-6 hours for pain
At first the pain clinic gave me Stillete Ganglion nerve block shots to the neck, but I didn't get much more than 3 weeks pain relief from that.
During the summer of 2011, I also saw a pain psychologist who was utterly wonderful at helping me learn how to live with chronic pain.
So now I get every 6-10 weeks I go to the pain clinic for an IV Lidocaine Infusion, where they give me a bag of Lidcaine straight into the vein. They last up to 6 weeks or so. Howevere, they will lose their effectiveness. After 15 months of them, I can tell they are slowly losing their effectiveness.
My pain doctor now wants to put a wire up my spine that will send tingles into the nerves that think there is pain when there isn't. It is supposed to block the pain. I have decided that I am not going to get this done. I have enough problems without having something go wrong with that surgery. I hear that it can really work well.
I have had hyperskin sensitivity on my chest, sides of chest, around the sides of the back, upper back of arms,severe pain, uncomfortableness, those electrical shocks, since the moment I awoke from surgery on 1/11/11. Granted it is a little less than when I first awoke, but it is still bad enough that it interferes with my everyday life.
Doctors can't even begin to guess who will get it and when you will get better. It is impossible to predict when and how much one will (or if) one will recover from nerve damage. It varies unpredictably from person to person.
I have also had months of occupational therapy. There are many women who have benefited from it. Some get it for reducing the amount of skin hypersensitivity. My partner, Brian, actually started it last year without us knowing what we were doing. He lightly rubbed his fingers over the sensitive parts. Kind of starting to retrain the nerves. There is OT/PT for this as well.
Mastectomy without reconstruction was NOT the worst or only available option. I chose it and am happy with my decision.