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Topic: Shoulder Blade Pain

Forum: Pain — Share important questions and provide support to others experiencing breast cancer and treatment-related pain.

Posted on: Mar 25, 2013 10:58AM

alilou7497 wrote:

I has a right breast mastectomy in January, 2012.  An expander was put in but I got infected and it was removed in April, 2012.  I then had radiation which ended in September 2012.  I have since developed this excutiating pain on my right shoulder blade that radiated to my neck, shoulder down to my elbow and hand.  Dr. keeps saying its fine and that women can feel pain for two to three years after but sometimes this pain doesn't let me sleep.  Has anyone else experienced this pain.  I am still pre-reconstruction because I am so tired of doctors I haven't gone back to try.

alilou7497 Dx 7/27/2011, IDC, 6cm+, Stage IIB, Grade 3, 0/8 nodes, mets, ER+/PR-, HER2- Chemotherapy 8/8/2011 AC + T (Taxol) Surgery 12/8/2011 Lumpectomy: Right Surgery 1/31/2012 Mastectomy: Right Radiation Therapy 7/7/2012 3DCRT: Breast, Lymph nodes Dx 7/1/2013, 6cm+, Stage IV, Grade 3, 0/8 nodes, mets, ER-/PR-, HER2- Radiation Therapy 7/10/2013 3DCRT Chemotherapy 8/19/2013 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 8/30/2013 3DCRT: Brain
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Mar 25, 2013 11:43AM marymoir wrote:

hi allilou. I debated before responding cuz I didnt want to scare you, but i had right-side shoulder pain that was dismissed for too long by an orthopedic surgeon and my breast surgeon. Nothing showed up on regular X-rays, so they just said oh well (despite my history of BC). It's a long story (you can PM me if you want to know more), but it turned out to be mets to shoulder blade and/or referred pain from liver mets - they werent sure which cuz i do have a met in that scapula, but i also have liver mets that can cause referred pain to the right shoulder, neck, and arm). Even though it's VERY unlikely in your case, with a history of BC I would insist (politely, of course!!) that your doc investigate this further. Do you have a medical oncologist or just a surgical one? If you have a med onc I'd try there first as mine has been much more proactive than my surgical onc in invesetigating things like this.

As I said, In your case it's more than not that your doc is right that it's left over from surgery and radiation as that I understand that is VERY common post-mastectomy. But, even if that's the case, your doc shouldnt just dismiss it. Although i had a lumpectormy & rads, not a mastectormy, I also had post surgery pain/tightness/tingling in the scapula, shoulder, and arm on my "bad boobie" side (left in my case). my med onc sent me to a physical therapist who specializes in breasts cancer patients who really helped with my pain and range of motion. She was a miracle worker!!! She said it was good that I came when I did because I was on the road to developing a frozen shoulder, which is REALLY hard to treat once it gets to that point.

Good luck to you! And don't let your doctors dismiss your concerns! Take care!

Mets to liver and multiple bones. Dx 11/19/2008, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 12/9/2008 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 1/7/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/26/2009 Breast Hormonal Therapy 6/5/2009 Dx 11/3/2012, IDC, Stage IV, Grade 3, mets Chemotherapy 11/16/2012 Doxil (doxorubicin) Hormonal Therapy 3/13/2013 Faslodex (fulvestrant) Chemotherapy 9/8/2013 Xeloda (capecitabine)
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Mar 25, 2013 12:49PM alilou7497 wrote:

Thank you marymoir for responding to me.  I guess that is my greatest fear.  As it is I wasn't diagnosed when I should have been because of the "oh its nothing" comments.  I will take your advise.

alilou7497 Dx 7/27/2011, IDC, 6cm+, Stage IIB, Grade 3, 0/8 nodes, mets, ER+/PR-, HER2- Chemotherapy 8/8/2011 AC + T (Taxol) Surgery 12/8/2011 Lumpectomy: Right Surgery 1/31/2012 Mastectomy: Right Radiation Therapy 7/7/2012 3DCRT: Breast, Lymph nodes Dx 7/1/2013, 6cm+, Stage IV, Grade 3, 0/8 nodes, mets, ER-/PR-, HER2- Radiation Therapy 7/10/2013 3DCRT Chemotherapy 8/19/2013 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 8/30/2013 3DCRT: Brain
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Mar 25, 2013 06:14PM Lily55 wrote:

I have constant paín shoulder, neck and arm but only since rads not before it IS common and because nerves and muscles are all connected in that área...

Dx 4/2012, ILC, 5cm, Stage IIIA, Grade 2, 7/14 nodes, ER+/PR+, HER2- Surgery 5/3/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 8/15/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2013 Aromasin (exemestane)
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Mar 26, 2013 10:21AM marymoir wrote:

Lilly, my surg and rad onc's echoed what you said. Apparently when u add rads on top of surgery, the scar tissue from the surgery gets all screwed up, and nerves and fascial tissue get all constricted. My issues on that side didn't start until after rads, as well. I think my PT also explained it that way. Guess it's our bodies' way of saying, "WTF?"

Mets to liver and multiple bones. Dx 11/19/2008, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 12/9/2008 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 1/7/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/26/2009 Breast Hormonal Therapy 6/5/2009 Dx 11/3/2012, IDC, Stage IV, Grade 3, mets Chemotherapy 11/16/2012 Doxil (doxorubicin) Hormonal Therapy 3/13/2013 Faslodex (fulvestrant) Chemotherapy 9/8/2013 Xeloda (capecitabine)
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Mar 26, 2013 03:18PM alilou7497 wrote:

Thats when my pain began after RADS.  But sometimes I can't sleep and my chest muscle is tight.  If someone massages the shoulder blade area it hurts where my breast use to be and if I massage my chest it hurts in my back.  All I know is that something has to give.

alilou7497 Dx 7/27/2011, IDC, 6cm+, Stage IIB, Grade 3, 0/8 nodes, mets, ER+/PR-, HER2- Chemotherapy 8/8/2011 AC + T (Taxol) Surgery 12/8/2011 Lumpectomy: Right Surgery 1/31/2012 Mastectomy: Right Radiation Therapy 7/7/2012 3DCRT: Breast, Lymph nodes Dx 7/1/2013, 6cm+, Stage IV, Grade 3, 0/8 nodes, mets, ER-/PR-, HER2- Radiation Therapy 7/10/2013 3DCRT Chemotherapy 8/19/2013 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 8/30/2013 3DCRT: Brain
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Mar 26, 2013 03:32PM Lily55 wrote:

Sorry you are sharing this added bonus of little c........

WHY did they not tell us this could happen?  I have a tendency to over grow scar tissue in general and this was never ever mentioned.........and I can honestly say I am now NEVER without pain or discomfort....and it wakes me up and stops movement and all sorts. Very very frustrating...........and pain killers don´t help ..............

Even my ribs hurt a lot at times........due to tissue not moving properly over there.....

Dx 4/2012, ILC, 5cm, Stage IIIA, Grade 2, 7/14 nodes, ER+/PR+, HER2- Surgery 5/3/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 8/15/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2013 Aromasin (exemestane)
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Mar 27, 2013 10:13AM marymoir wrote:

Ladies, I can't believe I forgot to mention this, but in addition to the great Physical Therapist who helped me, I also had a truly amazing massage therapist who helped free up some of the post-rads/surgery mess. As I recall I went to her when I used up all the PT visits that my insurance would cover for last year. Although she wasn't able to get rid of all the shoulder pain (cuz we ultimately discovered some of it was due to a met I the socket part of that shoulder joint), she really helped free up the tightness and adhesions that seem to connect the pec muscle, intercostal rib tissue, and back and shoulder muscles.

Hope you ladies can get your docs to send you to a PT who specializes in breast cancer patients..Or, barring that, find a really good massage therapist. I think you'll be able to get a ton of relief. Good luck!

Mets to liver and multiple bones. Dx 11/19/2008, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 12/9/2008 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 1/7/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/26/2009 Breast Hormonal Therapy 6/5/2009 Dx 11/3/2012, IDC, Stage IV, Grade 3, mets Chemotherapy 11/16/2012 Doxil (doxorubicin) Hormonal Therapy 3/13/2013 Faslodex (fulvestrant) Chemotherapy 9/8/2013 Xeloda (capecitabine)
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Apr 4, 2013 11:38AM grover wrote:

Marymoir, I know you didn't share your story to alarm anyone, but that's MY nature...and I've learned from my experience w BC that thinking the worst is in my best interest in terms of getting things done! My shoulder on lymph node side hurts pretty bad & no rads yet. Have had PT 3 times, & she has slowed down bc of my pain after sessions. So my paranoid question: had you had a PET and/or CAT scan which finally showed the mets? Praying you're doing well with treatment and it all clears up:)

Surgery 1/17/2012 Lumpectomy: Right Dx 1/2013, IDC, Stage II, Grade 3, 1/14 nodes, ER-/PR-, HER2- Dx 2/2013, IDC, Stage I, Grade 3, 0/0 nodes, ER+/PR+, HER2+ Surgery 2/28/2013 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 2/28/2013 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 4/2/2013 AC + T (Taxol) Hormonal Therapy 6/7/2013 Aromasin (exemestane) Radiation Therapy 10/7/2013 Breast, Lymph nodes Surgery 12/19/2013 Prophylactic ovary removal Surgery 4/17/2014 Reconstruction (right): Tissue expander placement Surgery Reconstruction (left): DIEP flap, Nipple reconstruction; Reconstruction (right): DIEP flap, Nipple reconstruction
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Apr 4, 2013 11:31PM marymoir wrote:

Grover, I'm so sorry that unare struggling with this pain, as well as the fear of what it could represent. I'm sorry my experience alarmed u...as a former "Stage 1-er," I know my story is the worst nightmare of Stage1 gals (which is why I debated whether to respond to Alilou's post).

To answer your ?, the mets were really diagnosed almost by accident. I started having extreme pain on my right lower ribcage area after I did some pretty extreme mountain biking. Pain was exacerbated by laughing, coughing, bending over. Onc's office said to call if it didn't get better. Had a sudden increase in pain while out of town a few days later...onc told me to get to an ER to rule out a blood clot in the lung. They did a chest CT at the ER which showed no blood clot, but did show mets to liver and bones (including the left shoulder...which I'd been complaining to an orthopedic surgeon about for months, and which had not shown up on an MRI of the shoulder just 4 months earlier). The shoulder lesion also showed up on a subsequent bone scan...don't know why the earlier MRI missed it.

Anyway, there's my long sad-sack story. Try not to let it freak u out...as I said to Alilou, at Stage1 the odds are overwhelmingly on your side tht you'll bea this beast! Unfortunately, cancer is a crapshoot, and I just happened to be one of the unlucky few who happen to fall on the "bad" side of those #s!

Good luck...hope you get some pain relief and answers soon!

Mets to liver and multiple bones. Dx 11/19/2008, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 12/9/2008 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 1/7/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/26/2009 Breast Hormonal Therapy 6/5/2009 Dx 11/3/2012, IDC, Stage IV, Grade 3, mets Chemotherapy 11/16/2012 Doxil (doxorubicin) Hormonal Therapy 3/13/2013 Faslodex (fulvestrant) Chemotherapy 9/8/2013 Xeloda (capecitabine)
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Apr 5, 2013 11:04AM alilou7497 wrote:

Actually I am very grateful to people that are honest because if gives me things to ask the doctor and things to demand.  I have been doing some physical therapy.  My friend is a therapist and showed me some exercises and they have reduced the pain tremendously but....it is not completely gone.   Although I know that once you go through this experience you will always have residual pain.  What pisses me off are people that don't have it, don't know what it is to have it and they google and read and then want to tell you things and/or diagnosis you.  My sister constantly tells me no no....there is suppose to be no pain.  I read that when they remove the sentinel node it reduces pain and no one feels any pain anymore.  I want to slap her sometimes.   Like the removal of one little node is going to prevent the pain from a radical mastectomy.  Ok....duh.

In any event I appreciate everything you ladies say.  And if anyone else is suffering from this pain and has been diagnosed with something else or has developed some kind of routine that can help others please POST POST POST. God Bless

alilou7497 Dx 7/27/2011, IDC, 6cm+, Stage IIB, Grade 3, 0/8 nodes, mets, ER+/PR-, HER2- Chemotherapy 8/8/2011 AC + T (Taxol) Surgery 12/8/2011 Lumpectomy: Right Surgery 1/31/2012 Mastectomy: Right Radiation Therapy 7/7/2012 3DCRT: Breast, Lymph nodes Dx 7/1/2013, 6cm+, Stage IV, Grade 3, 0/8 nodes, mets, ER-/PR-, HER2- Radiation Therapy 7/10/2013 3DCRT Chemotherapy 8/19/2013 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 8/30/2013 3DCRT: Brain
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Apr 5, 2013 04:52PM Lily55 wrote:

I am using ricin oil and massaging in for three minutes and every day.....swelling has reduced a lot....shoulder still hurts.....

Dx 4/2012, ILC, 5cm, Stage IIIA, Grade 2, 7/14 nodes, ER+/PR+, HER2- Surgery 5/3/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 8/15/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2013 Aromasin (exemestane)
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Apr 22, 2013 03:39PM alilou7497 wrote:

After doing stretching exercises, having a massage and taking 20 million advils I have convinced my oncologist that I need a scan.  The shoulder blade still hurts.  It is an annoying dull pain that feels good when found and rubbed but doesn't go away.

I am scared and tired.  This road is draining.  But here we go again, the tests and waiting.

alilou7497 Dx 7/27/2011, IDC, 6cm+, Stage IIB, Grade 3, 0/8 nodes, mets, ER+/PR-, HER2- Chemotherapy 8/8/2011 AC + T (Taxol) Surgery 12/8/2011 Lumpectomy: Right Surgery 1/31/2012 Mastectomy: Right Radiation Therapy 7/7/2012 3DCRT: Breast, Lymph nodes Dx 7/1/2013, 6cm+, Stage IV, Grade 3, 0/8 nodes, mets, ER-/PR-, HER2- Radiation Therapy 7/10/2013 3DCRT Chemotherapy 8/19/2013 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 8/30/2013 3DCRT: Brain
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Apr 26, 2013 07:43AM - edited Apr 26, 2013 10:08PM by Fluffy9

I had the same problems with my shoulder blade and arm. Do u spend a lot of time at a computer station using a mouse? The reason I ask is because I had the same type of pain. It was horrible. Sure, the thought of it being bc related was my first concern. But instead of going to my oncologist first, I went to my ortho doc. He told me he had the same problem and he remedied it by lowering the mouse pad at his computer. Instead of it being on the desktop with his keyboard he rigged up something that he used the mouse on below the desktop height. I tried it and it worked! It was great. Just thought I would tell u this. Maybe it will help u. Now if it acts up I do the same thing and it stops it from getting bad.

Dx 1/23/2006, IDC, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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May 14, 2013 08:45AM alilou7497 wrote:

As an update.  Turned out that because of all my years at a computer, flicking the mouse and bad posture I have bursitis.  Therefore a shot to the bursa sac actually relieved much of my pain.  But Lord everything now causes fear, doubt and everything else you could possibly feel.  Thanks guys for all the support.

alilou7497 Dx 7/27/2011, IDC, 6cm+, Stage IIB, Grade 3, 0/8 nodes, mets, ER+/PR-, HER2- Chemotherapy 8/8/2011 AC + T (Taxol) Surgery 12/8/2011 Lumpectomy: Right Surgery 1/31/2012 Mastectomy: Right Radiation Therapy 7/7/2012 3DCRT: Breast, Lymph nodes Dx 7/1/2013, 6cm+, Stage IV, Grade 3, 0/8 nodes, mets, ER-/PR-, HER2- Radiation Therapy 7/10/2013 3DCRT Chemotherapy 8/19/2013 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 8/30/2013 3DCRT: Brain
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May 18, 2013 06:01PM Fluffy9 wrote:

Happy you got some answers. I was diagnosed back in 2006. Honestly, the fear factor does lessen a bit with time. Be patient. Take care.

Dx 1/23/2006, IDC, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2-
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May 18, 2013 07:39PM marymoir wrote:

Sooooo glad to hear this!! Well, sorry u have bursitis, but glad it's not mets!!! Crazy living in cancer-world when we're happy to find out we have almost any other ailment on the planet!!

Mets to liver and multiple bones. Dx 11/19/2008, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 12/9/2008 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 1/7/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/26/2009 Breast Hormonal Therapy 6/5/2009 Dx 11/3/2012, IDC, Stage IV, Grade 3, mets Chemotherapy 11/16/2012 Doxil (doxorubicin) Hormonal Therapy 3/13/2013 Faslodex (fulvestrant) Chemotherapy 9/8/2013 Xeloda (capecitabine)
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Jul 1, 2013 01:31AM jkwsmama wrote:

I have achy pain in my right shoulder ( my cancer side ) so it's freaking me out.. I had a double mastectomy in sept 2012 chemo finished end of march 2012.. But have had pain achy should neck pain for at least a month now.. I'm scared but oncologist said I'm coming in 2 weeks for bone blood test no PET scan before but I'm so scared.. Every little pain.. Left hip as hurt on and off but the shoulder is just different.. Can
Anyone explain what it feels like to have mets? I'm 42 and have a little one and want to see grandchildren!!

Dx 8/29/2012, IDC, <1cm, ER+/PR+, HER2- Surgery 9/20/2012 Mastectomy: Right; Prophylactic mastectomy: Left Dx 9/26/2012, IDC, 1cm, Stage I, Grade 2, 0/14 nodes, ER+/PR+, HER2- Chemotherapy 11/29/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Aug 7, 2013 02:32PM nana-1-miki wrote:

I feel like I complain about the pain I have too much. Though no one has said as much. Had bilateral mast. had 3 lymph removed, that included sentinel, in May. Began letrozole Jun, Had 1st round of Zometa, just a week ago. My pain is in shoulder blade on involved side as well as the same general area where my mine began before diagnosis. Which was treated as inflammation, Motrin, warm packs on same. Now I'm having diff. pain, sharp ,along with the constant. It will wake me out of sleep. I know I'm not alone, or the first to be scared about pain, if ur out there with like symptoms, would appreciate hearing.




Dx 4/10/2013, ILC, 4cm, Stage IIB, Grade 2, 3/20 nodes, ER+/PR+, HER2+ Hormonal Therapy 6/13/2013 Femara (letrozole)
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Oct 9, 2013 11:15PM vaper wrote:

I just had mastectomy and lymph nodes a week ago. The shoulder pain on that side is real bad. I think the worst. And I still have a lot of pain. I to started having shoulder pain on the other side months ago.

Dx 6/2013, IDC, 1cm, Stage II, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/2/2013 Lymph node removal: Left, Sentinel; Mastectomy: Left
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Jul 13, 2015 04:36PM comingtoterms wrote:

I'm pretty much in the same boat as you gals. I posted on the Lympheda thread because I've had that at the same time. X-ray showed mild arthritis. Just had an EMG which showed no abnormalities in nerve/muscle. I'm so frustrated that I can't do yoga, Pilates, etc. I see my MO on Thursday and am ready to beg for more testing. The shoulder, arm, ear, jaw, neck pain are ruining my ability to work out and stay healthy.

Of, course, as everyone else on this site, my thoughts go straight to bone mets.

Tammy


Dx 1/9/2009, DCIS/IDC/IDC: Tubular/IDC: Mucinous/IDC: Cribriform, Left, 2cm, Stage IIA, Grade 2, 1/27 nodes, ER+/PR+, HER2-
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Sep 23, 2015 11:36AM rolynla17 wrote:

Okay, so I was diagnosed with two types of breast cancer (one in each breast) in April 2013. I had a bilateral lumpectomy, chemo and rads. I am now of 20mg Tamoxifen once daily. I have had sharp pain in my left shoulder blade and now a bruising feeling that is very tender to the touch on my right side just under my armpit towards the back. I had PT for "frozen shoulder" last year. Have had massages and seen a chiropractor for the pain in should blade. The bruised feeling in my right side is new just this morning. I am so tired of be tired and in pain. Any suggestions?


MICROSCOPIC DIAGNOSIS:
1. Left breast, wire localization lumpectomy: Invasive ductal carcinoma (1.1
cm), modified Bloom-Richardson grade 3, with angiolymphatic invasion and
associated high nuclear grade ductal carcinoma in situ with
microcalcifications. Biopsy site changes. Invasive carcinoma is close to
medial and lateral edges of specimen.

2. Right breast, wire localization lumpectomy: Invasive ductal carcinoma (0.8
cm), modified Bloom-Richardson grade 3 with extensive high nuclear grade
ductal carcinoma in situ adjacent to previous biopsy site. Invasive carcinoma
is close to medial and lateral edges. Please see TEMPLATE for details.

3 and 4. Right breast, additional medial and lateral margins, excision:
Negative for carcinoma. Fibrocystic changes with microcalcifications.

5-8. Left breast, additional margins, see above for sites, excision: Negative
for carcinoma. Skeletal muscle at deep margin.

9. Right axilla, sentinel lymph node #1, excision: One lymph node, negative
for carcinoma (0/1).

10. Right axilla, sentinel lymph node #2, excision: Two lymph nodes, negative
for carcinoma (0/2).

11. Left axilla, sentinel lymph node cluster #3, excision: Two lymph nodes,
negative for carcinoma (0/2).

12. Left axilla, sentinel lymph node #4, excision: One lymph node positive
for micrometastasis (0.1 cm) (1/1).

Dx 3/14/2013, IDC, 1cm, Grade 3, ER+/PR+, HER2-
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Sep 25, 2015 02:17AM - edited Sep 25, 2015 02:23AM by hugz4u

you may want to post on the lymphedema thread. What your describing might be truncal lymphedema but I am not sure. The experts there may be able to figure it out.

i have truncal and it sometimes pains a bit around shoulder blade also I get a boiled egg rubbery feeling at the back of my armpit. Give us more details on that thread and someone will sort it out or recommend further help. If u catch lymphedema early It can be reversed but one must be diligent. I see you have had nodes out so you will be at risk for this including your arm and hand. So dang unfair isn't it...Bah..phooey

I wear a tight Underarmour brand men's compression tee in a size smaller than I wear normally. It gets rid of the pain and keeps swell down but I also see a lymphedema therapist who works her magic to make me cope. Do post any question on that thread so we can help. I sure hope it's not Lymphedema but you are in good hands if it is on that thread.mtake care and don't be scared. Knowledge is power.

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Oct 27, 2015 07:39PM ceinwen wrote:

I had a left breast mastectomy in late 2013 with no problems (except mild lymphedema after having 37 nodes removed) including no pain, as a precaution I had the right one removed in 2015. When going through radiotherapy in 2014, halfway through I developed a pain in my right shoulder and arm that turned out to be bursitis and tendonitis. I had an injection into the bursar which relieved half of my pain but the tendonitis has 19mm of calcification and I'm trying to get something done about that as my right arm (the good one) is almost useless as I can't raise it without taking painkillers first. It might be worth seeing if it is bursitis which is relatively easy to get relief from. Good luck

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Jul 10, 2016 06:18AM Mypassw0rd wrote:

Hi, this is my first time ever replying to a blog. I had to go thru crap to create this account in order to deliver this mess to u , I hope u get it. My name is Carlene and I'm going to leave out "my story" in order to get to the important thing u need to know.

Bla bla bla(my story) .......

Then it meta to a single gland under my collarbone, while I was still on chemo for another meta my neck was held at bay but all of a sudden my neck (RT side) took off growing nearly overnite!!! My oncol didn't seem to worry about it, of course we were guna do some chemo but not alarmed. I started getting PAIN in my neck down to my shoulder blade SEVERE PAIN my oncol kept prescribing me muscle relaxers and nerve pills and telling me to take more GABAPETTIN (u may know it's a med for nerves like neuropathy in ur toes or fingers NOT the kind of pain I suffered they kept putting my neck, shoulder, and now ARM,ELBO,AND FINGERS on the back burner "oh it's nothing" then a went to my sisters dr. A radiology Specialist and soon as he saw my arm on a pillow and how enlarged my neck was he said "YOUR NECK IS FULL OF CANCER AND ITS iPINCHING ON THE NERVES COMMING FROM YOUR SPINE! AND IF WE DONT DO RADIATION RIGHT AWAY YOUR GOING TO HAVE PERMENATE NERVE DAMAGE AND BE IN THIS PAIN FOREVER!!!!my god all those other dr's dropped the ball!!!! They had no idea! So I don't know if they have gotten the cancer out but if they have then u have perm nerve damage or there's still cancer in there pushing on that nerve!!! I KNOW THE PAIN GIRL I HV MINE RIGHT NOW! Hopefully we'll. Start radi few days cuz I'm so scared its going to be perm. Pls write me bk let me know what happened.

Good luck

Carlene

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Jul 10, 2016 09:48AM Moderators wrote:

Welcome to both ceinwen and Mypassw0rd. Please do keep us posted, and thanks for sharing.

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Jul 11, 2016 04:47AM SleeplessinUtah wrote:

Hello everyone.  Guess my next CT scan will tell me what is going on.  I am on 500mg of Faslodex, and I after about four months, I have started getting radiating pain that moves.  Sometimes in my neck (scalenes), sometimes in my trapezius, sometimes in the top of my shoulder (deltoids), sometimes in shoulder blade, and between the shoulder blades (rhomboids), and tonight it is pretty painful just to the right of my seventh cervical vertebrae.  It makes it impossible to sleep. Have taken two Aleve, and it isn't touching it.  I have been told it is Faslodex, and if so, I am hating it.  It is also giving me horrible insomnia. 

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Jul 23, 2016 12:41PM - edited Jul 24, 2016 06:08PM by Moderators

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