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Topic: 2 wk post mx new pain like sunburn

Forum: Pain —

Share important questions and provide support to others experiencing breast cancer and treatment-related pain.

Posted on: Jul 1, 2013 10:02PM

Tinanicu wrote:

Just started having skin sensitivity over chest that is like a sunburn. Wondering if my cut nerves have woken from their slumber and are mad. Anyone else have this and does it go away?

BRCA2+ Dx 5/3/2013, DCIS, Stage 0, Grade 3, ER+/PR+ Dx 5/3/2013, LCIS, Stage 0, Grade 3, ER+/PR+ Surgery 6/16/2013 Lymph node removal: Left, Right, Sentinel Surgery 6/16/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 6/17/2013, ILC, <1cm, Stage I, Grade 2, 0/9 nodes, ER+/PR+ Hormonal Therapy 8/18/2013 Surgery 12/8/2013 Reconstruction (left); Reconstruction (right) Surgery 9/1/2014 Prophylactic ovary removal Hormonal Therapy 9/15/2014 Arimidex (anastrozole) Dx
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Jul 1, 2013 10:49PM GoWithTheFlow wrote:

I had problems where it felt weird, almost like novacaine wearing off after going to the dentist.  It was sensitive and burny when clothing touched it, but was numb when I touched it with my hand.  Think it's just nerves regenerating and it will take some time to go away.  It's not as bad for me now, I'm about 4 weeks ahead of you fo recovery.

How can we dance while our world is turning? How can we sleep while our breasts are burning? Dx 12/21/2012, IDC, 2cm, Stage IIB, Grade 3, ER-/PR-, HER2- Chemotherapy 1/9/2013 AC + T (Taxol) Surgery 5/21/2013 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right Radiation Therapy 6/16/2013 Breast
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Jul 1, 2013 11:28PM wildrumara wrote:

I felt that same burning-type feeling all throughout my chest and the underside of my right arm after my BMX and ALND!  It does go away....but it did take some time.  If I recall correctly, I slept with an ice pack in between my new foobs at night....that was the only thing that  that eased that burning pain.  I remember telling my PS about the ice pack and he recommended that I not do that, but it was the only thing that kept me comfortable.   ALl the best to you.  It does get better, but it takes several weeks...hang in there!

Aug 2011, dx wth IDC Stage 2, oncotype 25, neoadjuvant chemotTC X 6, BMX with reconstruction, Tamoxifen March 2012, April 2014, two small mets discovered on liver. Arimidex, May 2014 Liver wedge resection. June 2014 SBRT of second liver lesion. Dx 8/23/2011, IDC, 2cm, Stage IIA, Grade 2, 2/20 nodes, ER+/PR+, HER2- Chemotherapy 9/30/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 2/29/2012 Hormonal Therapy 3/27/2012 Hormonal Therapy 5/8/2014 Arimidex (anastrozole) Dx 2/8/2018, IDC, Stage IV, metastasized to other, mets, ER-/PR-, HER2-
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Jul 2, 2013 07:04AM Tinanicu wrote:

Thank you!

BRCA2+ Dx 5/3/2013, DCIS, Stage 0, Grade 3, ER+/PR+ Dx 5/3/2013, LCIS, Stage 0, Grade 3, ER+/PR+ Surgery 6/16/2013 Lymph node removal: Left, Right, Sentinel Surgery 6/16/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 6/17/2013, ILC, <1cm, Stage I, Grade 2, 0/9 nodes, ER+/PR+ Hormonal Therapy 8/18/2013 Surgery 12/8/2013 Reconstruction (left); Reconstruction (right) Surgery 9/1/2014 Prophylactic ovary removal Hormonal Therapy 9/15/2014 Arimidex (anastrozole) Dx
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Jul 2, 2013 11:35AM bluepearl wrote:

I had the burning sensation under my arm, to the elbow. It took two years, but it went away.

Dx 1/6/2011, IDC, 1cm, Stage I, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 2/11/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Dx 2/2013, IDC, <1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 3/9/2013 Lymph node removal: Right, Sentinel; Mastectomy: Right Hormonal Therapy 3/17/2013
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Jul 2, 2013 11:57AM Tinanicu wrote:

2 years? Ugh.

BRCA2+ Dx 5/3/2013, DCIS, Stage 0, Grade 3, ER+/PR+ Dx 5/3/2013, LCIS, Stage 0, Grade 3, ER+/PR+ Surgery 6/16/2013 Lymph node removal: Left, Right, Sentinel Surgery 6/16/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 6/17/2013, ILC, <1cm, Stage I, Grade 2, 0/9 nodes, ER+/PR+ Hormonal Therapy 8/18/2013 Surgery 12/8/2013 Reconstruction (left); Reconstruction (right) Surgery 9/1/2014 Prophylactic ovary removal Hormonal Therapy 9/15/2014 Arimidex (anastrozole) Dx
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Jul 2, 2013 05:58PM StacyJoan wrote:

I'm having same excruciating burning- so nervous it will last years! Anyone have the pain relieved sooner? And when? I'm going insane, I can't even put a shirt on

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Jul 2, 2013 07:43PM BayouBabe wrote:

I had something similar. My physical therapist had me take a textured towel and rub it over the part giving me trouble a few times a day. The thought was that it would kind of work to "deprogram" the nerves and get them used to every day sensations. Drove me nuts, but seemed to work over a period of time. Worth a try.

BRCA1+, IDC
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Jul 2, 2013 09:03PM Tinanicu wrote:

Maybe I'll try the towel thing on one side and see if there is a difference over time between the two. Or maybe massage one.

BRCA2+ Dx 5/3/2013, DCIS, Stage 0, Grade 3, ER+/PR+ Dx 5/3/2013, LCIS, Stage 0, Grade 3, ER+/PR+ Surgery 6/16/2013 Lymph node removal: Left, Right, Sentinel Surgery 6/16/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 6/17/2013, ILC, <1cm, Stage I, Grade 2, 0/9 nodes, ER+/PR+ Hormonal Therapy 8/18/2013 Surgery 12/8/2013 Reconstruction (left); Reconstruction (right) Surgery 9/1/2014 Prophylactic ovary removal Hormonal Therapy 9/15/2014 Arimidex (anastrozole) Dx
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Jul 2, 2013 09:41PM wildrumara wrote:

Mine definitely didnt last two years.  I think its safe to say that it lasted three months, but it wasn't excruciating that entire time.  By three months post-op, the burning was a minor discomfort......

Aug 2011, dx wth IDC Stage 2, oncotype 25, neoadjuvant chemotTC X 6, BMX with reconstruction, Tamoxifen March 2012, April 2014, two small mets discovered on liver. Arimidex, May 2014 Liver wedge resection. June 2014 SBRT of second liver lesion. Dx 8/23/2011, IDC, 2cm, Stage IIA, Grade 2, 2/20 nodes, ER+/PR+, HER2- Chemotherapy 9/30/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 2/29/2012 Hormonal Therapy 3/27/2012 Hormonal Therapy 5/8/2014 Arimidex (anastrozole) Dx 2/8/2018, IDC, Stage IV, metastasized to other, mets, ER-/PR-, HER2-
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Jul 11, 2013 09:02AM MaggiPgh wrote:

I've had some type of burning since 2008 after my bilateral mastectomy. It does get better with time. What we have is called allodynia. Google it. Yes it is caused by nerve damage of intercostal brachial nerves. I know all of this because I've spent years researching and going to different drs and pain clinics. I didn't get much help from my surgeon as he was one who caused it. Gabapentin (neurontin) is the only med that worked for me and also myofacial release done by PT. I do hope this info helps you. I don't want anyone else to suffer like I had to not knowing was awful. Maggi

Maggi Gioffre Dx 8/13/2008, DCIS, <1cm, Stage 0 Surgery 9/22/2008 Mastectomy: Left, Right
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Jul 11, 2013 11:40AM Tinanicu wrote:

Thanks ladies

BRCA2+ Dx 5/3/2013, DCIS, Stage 0, Grade 3, ER+/PR+ Dx 5/3/2013, LCIS, Stage 0, Grade 3, ER+/PR+ Surgery 6/16/2013 Lymph node removal: Left, Right, Sentinel Surgery 6/16/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 6/17/2013, ILC, <1cm, Stage I, Grade 2, 0/9 nodes, ER+/PR+ Hormonal Therapy 8/18/2013 Surgery 12/8/2013 Reconstruction (left); Reconstruction (right) Surgery 9/1/2014 Prophylactic ovary removal Hormonal Therapy 9/15/2014 Arimidex (anastrozole) Dx
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Mar 17, 2018 10:31PM aweate wrote:

16 days since bilateral and I have it....sucks!!!! Hope it goes away quickly. Any words of encouragement?

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Mar 17, 2018 11:33PM Lula73 wrote:

aweate- words of encouragement: one day at a time. Words to help: pick up some vagisil cream at the drugstore or Walmart. Apply to the affected areas as needed. Be sure to avoid any still healing incision lines. Vagisil active ingredient is benzocaine which will numb the pain. The other ingredients in it are skin soothers for irritated skin. Works like a charm! (Be sure to wash your hands well after application!)

-Lula Dx 1/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 2/14/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 3/3/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/2/2017 Prophylactic ovary removal Hormonal Therapy 1/3/2018 Femara (letrozole)

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