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Apr 19, 2019 12:10PM
I just flat out refused it! That said it isn't as if I am confident in my decision. I'm scared.....and angry that this is our choice, living in pain, with worse health, higher cholesterol, more risk of Alzheimer's, weight gain, etc for a hypothetical longer life!
We shouldn't have to choose! We need to start pressuring the research community to find a new drug that DOES NOT rely on diminishing estrogen to prevent recurrences!
The side effects have less to do with the AI used and more to do with the depleted estrogen. In other words, the drugs prevent estrogen formation which feeds estrogen positive breast cancer. But, our bodies, even after menopause, need estrogen to function well, which is why our bodies continue to make it in our fat and brain cells!
I'm choosing quality of life over quantity which totally sucks!
BTW, I already have two replaced shoulders and a family history of Alzheimer's. If I have bone pain I can't second guess if it's from Letrozole or not. I watched my mother die a slow death with time slowly robbing her mind. Being the youngest child in the family, she forgot who I was first. It was heartbreaking! I need all the estrogen I have in my brain!
6/6/2003, IDC, Left, 1cm, Stage IA, Grade 1, 0/24 nodes, ER+/PR+
12/4/2018, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH)