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Topic: Pain related to Letrozole

Forum: Pain —

Share important questions and provide support to others experiencing breast cancer and treatment-related pain.

Posted on: Apr 12, 2017 09:50PM

hlaoroo wrote:

I have been taking Letrozole for about 4 months now and am experiencing increasing pain in the joints. I am not sure if the pain is related to the medication or just because I am overweight and don't get as much physical exercise as I should. Can it take several months for the pain to kick in? I have had hot flashes, insomnia, and increased anxiety prior to this. The last week though I feel nearly crippled at times and have trouble walking due to pain in my knees and feet.


A thing can be true and still be desperate folly.
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Jan 24, 2020 01:53PM Artista928 wrote:

I had to stop it. Too debilitating. I went back on Tamoxifen even though I'm post menopausal. Not worth the possible 3% or whatever benefit, emphasis on possible.

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
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Jan 25, 2020 10:45PM JoE777 wrote:

SarasotaLady, I took letrozole for 2 years and got off of it because the SEs were debilitating. That was 2014. Near the end of 2017 I began to have hip and back pain. In January of 2018 I was diagnosed with MBC to the sacrum, spine and lungs. After treatment I'm back on letrozole since February of 2018. As of now I have no evidence of active disease.
Dx 2/2012, IDC, Left, 2cm, Stage IIA, metastasized to bone, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/4/2012 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy 1/8/2018 Femara (letrozole) Dx 2/2018, IDC, Stage IV, metastasized to bone/lungs, Grade 1, ER+/PR+, HER2- Targeted Therapy Kisqali Chemotherapy Other Radiation Therapy External: Bone Hormonal Therapy Aromasin (exemestane), Femara (letrozole) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Jan 25, 2020 11:23PM Artista928 wrote:

Is it still debilitating for you?

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
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Jan 26, 2020 08:04PM JoE777 wrote:

I have the same SEs but cymbalta helps. I have stiffness from nerve damage but dodged paralysis. I took kisqali for 6 months but now the letrozole suppresses the growth of the cancer so it seems a small thing now

Dx 2/2012, IDC, Left, 2cm, Stage IIA, metastasized to bone, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/4/2012 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy 1/8/2018 Femara (letrozole) Dx 2/2018, IDC, Stage IV, metastasized to bone/lungs, Grade 1, ER+/PR+, HER2- Targeted Therapy Kisqali Chemotherapy Other Radiation Therapy External: Bone Hormonal Therapy Aromasin (exemestane), Femara (letrozole) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Mar 25, 2020 07:41PM - edited Mar 25, 2020 08:11PM by walkingmydestiny

This Post was deleted by walkingmydestiny.
Dx 1/16/2020, IDC, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/10/2020 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy Radiation Therapy 6/8/2020 Whole-breast: Breast
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Mar 26, 2020 07:58AM GoldensRBest wrote:

I started letrozole in August 2019. By December I was having severe leg pain uncontrolled by OTC meds. Was switched to anastrozole in February, which has made a huge difference.

Dx 6/1990, IDC, Right, 2cm, Stage IIA, 1/20 nodes, ER+/PR+ Dx 7/1999, IDC, Right, <1cm Dx 7/26/2019, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- (IHC) Hormonal Therapy 9/1/2019 Femara (letrozole) Targeted Therapy 9/25/2019 Ibrance (palbociclib) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Mastectomy Radiation Therapy Whole-breast: Breast, Lymph nodes Chemotherapy CMF Surgery Lumpectomy; Lymph node removal

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