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Topic: Arm Pain

Forum: Pain —

Share important questions and provide support to others experiencing breast cancer and treatment-related pain.

Posted on: Jan 11, 2018 06:57PM

wintersocks wrote:

I have begun experiencing a very sharp pain and aching down my arm on the surgery side. It is not there all the time and can go for a while (a month or so) and then it's back. I saw the GP and she said it sounded like a nerve pain. She was sending me to see the oncologist with the possibility of an MRI being ordered she said. However she phoned me today and said firstly he wants me to have a whole load of blood tests first with no mention of an MRI. The pain extends from my shoulder and sometimes into my hand/fingers and has been of fairly recent onset. l am not sure what to think but of course a recurrence is on my mind.

Would be grateful if anyone has had similar or thoughts here .

Thanks as always.

Dx 2/20/2012, IDC, 6cm+, Stage IIIA, Grade 2, 4/11 nodes, ER+/PR-, HER2- Chemotherapy 3/22/2012 Doxil (doxorubicin), Taxotere (docetaxel) Surgery 8/28/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Hormonal Therapy 9/9/2012 Femara (letrozole) Radiation Therapy 9/15/2012 Breast, Lymph nodes
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Posts 31 - 41 (41 total)

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May 9, 2018 03:20AM SandyAust wrote:

Hi Wintersocks,

I hope you are doing ok, I am thinking of you.


Sandy

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May 10, 2018 01:38PM wintersocks wrote:

Hi Sandy

Thank you that's really kind. I got the result today of the MRI and firstly to say there is NO evidence of cancer. There is a bunch of other stuff to do with degenerative loss and impingement of nerves (my head is spinning!!) and something noted in the lung - changes to the posterior of the left lung apex??

will make an appointment with Dr Google to work out what this means.

Thank you to everyone who has supported me here.

Dx 2/20/2012, IDC, 6cm+, Stage IIIA, Grade 2, 4/11 nodes, ER+/PR-, HER2- Chemotherapy 3/22/2012 Doxil (doxorubicin), Taxotere (docetaxel) Surgery 8/28/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Hormonal Therapy 9/9/2012 Femara (letrozole) Radiation Therapy 9/15/2012 Breast, Lymph nodes
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May 11, 2018 04:36AM beauz wrote:

Glad you are finally cleared of recurrence after four months! Have you still got the bad arm pain? Hope you feel better as the weather warms up. Please keep us posted about your arm pain situation.

Dx 01/Dec/2017, invasive carcinoma of mixed type. Mixed no special type(60%) and micropapillary type(40%). High grade DCIS present within and beyond invasive carcinoma. Right, 5cm, Stage IIIB, Grade 2, 3/15 nodes, ER+/PR-,Her2- Dx 5/2017, IDC, Right, 5cm, Stage IIIB, Grade 2, ER+/PR-, HER2- Chemotherapy 6/27/2017 AC + T (Taxol) Surgery 11/28/2017 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Chemotherapy 1/10/2018 Xeloda (capecitabine) Radiation Therapy 4/17/2018 Whole-breast: Breast Hormonal Therapy 9/18/2018 Femara (letrozole)
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May 12, 2018 10:16AM wintersocks wrote:

Beauz

Thanks for your thoughts. It did take a while to get to the bottom of it didn't it!- the arm pain tends to come and go. the onc told me to go back to the GP to discuss it. I will do that soon; but I feel like I need a break from doctors at the moment .

The weather is a little cool here; bet it is better weather in Australia!

Dx 2/20/2012, IDC, 6cm+, Stage IIIA, Grade 2, 4/11 nodes, ER+/PR-, HER2- Chemotherapy 3/22/2012 Doxil (doxorubicin), Taxotere (docetaxel) Surgery 8/28/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Hormonal Therapy 9/9/2012 Femara (letrozole) Radiation Therapy 9/15/2012 Breast, Lymph nodes
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Oct 22, 2018 04:03PM ondeck wrote:

Are you on chemo meds.? Some of them can produce debilitating pain in muscles and bones. You have to research them. Most dr.s either don't know or won't admit it.

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Mar 8, 2019 09:02PM momkidsgrandkids38 wrote:

I had lumpectomy and lymph node dissection in 2017 and lymph node dissection again in early part of 2018. In 2017 I experienced mild sensations in my hands and feet. Out of nowhere I started experiencing pains on the LT side in my arm, hand, and upper shoulder blade. Within weeks I noticed my arm was getting weak. I had restricted movements. I had a MRI to check mets to brain and spin. Both were clear thx God. PET scan done and also showed nothing.

It's strange that all of a sudden I am feeling all of these symptoms. It's like there is a disconnect somewhere. I can't spread my fingers apart or extend my arm out when in a incline position. The pain is unbearable they have me on Morphine, Gapapenentin, and Oxycodone heavy hitters, but they dont work!!!!!! Very scary, if it wasn't for the pain I WOULDN'T believe the diagnosis of stage IV TNBC.


If anyone can offer suggestions or advice regarding my symptoms it would be greatly appreciated.

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Mar 9, 2019 07:55AM santabarbarian wrote:

Have they investigated the brachial plexus? "Brachial plexopathy" can cause a lot of those symptoms. There is a thread about it on here somewhere.

I hope you get relief soon.

pCR after neoadjuvant chemo Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/12/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/10/2019 Whole-breast: Breast, Lymph nodes
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Mar 10, 2019 07:19PM - edited Mar 10, 2019 07:23PM by miss302

I am getting breast cancer arm side issues now too, 11 years later. I go to OT Thursday.


diagnosed after clear pet-ct and mri, radiation induced brachial plexopathy.

Dx 4/10/2007, IDC, Left, 5cm, Stage IIIB, Grade 3, 2/12 nodes, ER-/PR-, HER2- (FISH) Chemotherapy 4/20/2007 AC Surgery 6/28/2007 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Surgery 2/25/2008 Reconstruction (left): SGAP flap/hip flap Surgery 2/28/2008 Mastectomy: Right; Reconstruction (right): SGAP flap/hip flap Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy Taxol (paclitaxel) Chemotherapy Taxotere (docetaxel)
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Mar 14, 2019 12:38AM momkidsgrandkids38 wrote:

Thanks miss302, Wow how did they figure it out. Are you still experiencing the symptoms?

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Mar 21, 2019 12:39AM - edited Mar 21, 2019 12:40AM by miss302

emg of the nerves and no trace of any cancer recurrence. I hate RIBP. 

I have arm symptoms everyday. pain, burning, tingling, feels weird, don't always move like I try to. 

Dx 4/10/2007, IDC, Left, 5cm, Stage IIIB, Grade 3, 2/12 nodes, ER-/PR-, HER2- (FISH) Chemotherapy 4/20/2007 AC Surgery 6/28/2007 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Surgery 2/25/2008 Reconstruction (left): SGAP flap/hip flap Surgery 2/28/2008 Mastectomy: Right; Reconstruction (right): SGAP flap/hip flap Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy Taxol (paclitaxel) Chemotherapy Taxotere (docetaxel)
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Mar 21, 2019 08:07AM wallan wrote:

Hi there:

I had a mastectomy on my left side 2 years ago with a sentinel node dissection and then reconstruction with implants. My left shoulder (top of it), and my left arm aches and feels heavy from time to time. Sometimes it goes to my fingers and hands, other times it doesn't. I had an ultrasound of the underarm nodes and there was no evidence of blood clots or tumors. My GP and my MO both say its lymphedema. Sometimes my wrist looks a bit puffy. I have never had my arm measured for differences or anything. I got a compression sleeve, and I wear it when my arm is achy. But I don't know if it helps really and I hate wearing it. The achyness and sometimes tingly in my hands comes and goes. I think its damage to nerves from surgery to tell you the truth.

Reading your story gives me a stronger sense that my issues are nerve related too.

Let us know how it turns out for you.

God bless

wallan

Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 5/31/2004 AC + T (Taxol) Radiation Therapy 11/30/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/7/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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