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Topic: 10 yrs post DIEP horrible pain in armpit and upper breast

Forum: Pain —

Share important questions and provide support to others experiencing breast cancer and treatment-related pain.

Posted on: Mar 18, 2018 04:26PM

AndreaM4567 wrote:

I am not sure what is going on and I don't even know where to look for info since I am not immediate post-op.

I am having these horrible sharp-ish dull-ish, intermittent pains about 1-3 times a day in my right armpit and upper breast area. I try to grab my upper breast and not call attention to what's happening. When they happen in my sleep, they are waking me up.

I've also been exhausted. Like, I can't even explain it. I sleep fine at night, as far as I know. Even after these pains, I am able to go back to sleep. But I am up for an hour and ready to go back to sleep. I am not sure if it is related but the tiredness has been getting increasingly worse and then these pains started.

BRCA2 + Dx 2/13/2008, DCIS/IDC, Left, 1cm, Stage IIB, Grade 3, 0/6 nodes, ER+/PR+, HER2-
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Mar 18, 2018 10:10PM mustlovepoodles wrote:

I think I'd call the breast surgeon tomorrow. This isn't normal.

Oncotype 23. Positive for PALB2 & Chek2 gene mutations. My breasts are trying to kill me! Dx 7/20/2015, DCIS/IDC, Right, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 8/20/2015 Lumpectomy Surgery 9/2/2015 Lumpectomy: Right Chemotherapy 10/19/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 2/4/2016 Prophylactic mastectomy: Left, Right Surgery 10/18/2016 Hormonal Therapy Femara (letrozole) Surgery
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Mar 18, 2018 10:49PM Lula73 wrote:

Don't know how old you are, but menopause can cause these exact symptoms... I'd call your primary care doc or OB/GYN and get evaluated.

-Lula Dx 1/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 2/13/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 3/2/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/1/2017 Prophylactic ovary removal Hormonal Therapy 1/2/2018 Femara (letrozole)
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Jun 25, 2018 08:49PM sandyincalifornia wrote:

Hi Andrea. I had surgery for DCIS 10 years ago, mammos have always been fine.  Lately I've been getting a discomfort/pain in my armpit and at the sight where the lymphnode was checked, which has always been painful to the touch.  It was quite noticeable lying on my side in bed last night. Called my oncologist who is totally booked until my scheduled appointment in 3 weeks. Her nurse was in touch with her and she suggests I see my surgeon or primary. I will not go back to that surgeon so have an appointment with primary in a couple days for evaluation. It concerns me. I too have been very tired but I also have fibromyalgia, arthritis and a host of other ailments. I didn't know if it is normal. I'm in my mid 60's. 

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