Join Us

We are 219,564 members in 84 forums discussing 161,573 topics.

Help with Abbreviations

Topic: Cough, chest pain, hard time breathing.....

Forum: Pain —

Share important questions and provide support to others experiencing breast cancer and treatment-related pain.

↓ Jump to Bottom

Posted on: Apr 28, 2018 01:38PM - edited Apr 28, 2018 02:28PM by vampeyes

vampeyes wrote:

Should I be worried? I have had shortness of breath walking upstairs. I am also cold 90% of the time, only a hot bath will warm me up. Now I have a cough, chest pain and having a hard time getting a full breath of air. Anyone else have this issue? Not a cold, not allergies.

Cheryl

Diagnosed at 41. Oncotype 21 Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Page 2 of 2 (41 results)

Posts 31 - 41 (41 total)

Log in to post a reply

May 9, 2018 06:02PM vampeyes wrote:

Cpeachymom,

Thank you. Thankfully my oncologist will be away next week so I will see the palliative oncologist. I also see my Radiology Oncologist on the 31st.

My oncologist needs a new CT so they can change what the contract oncologist stated. If it's not a clot what did he see then? So frustrating.

Diagnosed at 41. Oncotype 21 Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

May 12, 2018 08:18AM Leydi wrote:

Vampeyes - Did you have your follow-up CT scan? I'm still not sure what the original scan couldn't be read by another radiologist if your MO had doubts about the results. I'm hoping you will have solid answers to your issues soon and a plan for treatment.

Dx 6/2016, ILC, Both breasts, 2cm, Grade 2, ER+/PR+, HER2- Dx 2/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Targeted Therapy Kisqali Hormonal Therapy Faslodex (fulvestrant)
Log in to post a reply

May 12, 2018 09:50AM vampeyes wrote:

Hi Leydi, I had the scan on Thursday, won't know the results till Wednesday. My guess on why he ordered another is because the hospitals radiologist couldn't change the diagnosis of the contract radiologist. Now they will have a scan they can put there diagnosis on, seeing as the two of them didn't think it was a clot that will likely be what they tell me on Wednesday. So frustrating to deal with this MO.

Happy Mothers Day tomorrow!!!

Diagnosed at 41. Oncotype 21 Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

May 17, 2018 06:09AM vampeyes wrote:

Update - My MO said it's not a clot, stop the blood thinners. Spots on spine are arthritis. So I am left confused and still frustrated with this. They couldn't answer why the first was according to them a "false positive". My plan is to go to the hospital tomorrow and get a copy of all my medical records, take them to my appointment with my RO.

Diagnosed at 41. Oncotype 21 Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

May 17, 2018 06:48AM NotVeryBrave wrote:

Wow! What a rollercoaster ride for you! It's hard to know what to think, right?

So did the repeat imaging show no clot? Arthritis in your spine would be welcome news over possible mets. Does that require other imaging?

I sometimes wonder who to trust on reading all of these tests. My default is always to get more opinions - from outside if possible.


TCHP x 6 with pCR. One year of Herceptin. DTI pre-pec surgery. Quit Tamoxifen after 3 months. Dx 11/21/2016, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 12/18/2016 Perjeta (pertuzumab) Targeted Therapy 12/19/2016 Herceptin (trastuzumab) Chemotherapy 12/19/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 5/8/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 9/8/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/25/2020 Evista (raloxifene)
Log in to post a reply

May 17, 2018 07:06AM vampeyes wrote:

I am so with you NotveryBrave, I just don't know if I trust them. Did they say it's arthritis because they say my cancer was not aggressive or can you actually tell it's arthritis. From what I have read on the Canadian Cancer site it's difficult to tell the difference between spinal mets and arthritis. No more tests and no follow up appointment with MO - although I had not planned on returning to him anyway.

They didn't give me a copy of the Radiology report on the second CT, so hopefully I will have that tomorrow. The doctor filling in was just relaying what my MO had told him. He couldn't answer any of my questions.

Diagnosed at 41. Oncotype 21 Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

May 17, 2018 10:03AM ksusan wrote:

Craziness, but I hope it was the generalist who misinterpreted!

Mutant uprising quashed. Dx 1/2015, IDC, Right, Stage IIA, 1/1 nodes, ER+/PR+, HER2- Dx 1/2015, DCIS, Left, Stage 0, Grade 3, 0/2 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Log in to post a reply

May 17, 2018 12:12PM NotVeryBrave wrote:

Yeah - I'm not planning to go back to my MO, either. Just too many times with a lack of communication and my concerns about follow up. I also always feel like I'm kind of an inconvenience for him.

Which reminds me that I need to get going on finding a new one!


TCHP x 6 with pCR. One year of Herceptin. DTI pre-pec surgery. Quit Tamoxifen after 3 months. Dx 11/21/2016, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 12/18/2016 Perjeta (pertuzumab) Targeted Therapy 12/19/2016 Herceptin (trastuzumab) Chemotherapy 12/19/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 5/8/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 9/8/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/25/2020 Evista (raloxifene)
Log in to post a reply

Jun 26, 2018 11:20AM vampeyes wrote:

Soooo I think I finally know what caused my breathing issue......ASPARTAME! I have been changing my diet, eliminating diet pop was one thing I removed. No breathing issues, then yesterday I heard a piece of gum and within 10 minutes those breathing problems returned. Sure enough one of the ingredients aspartame. A friend stunt me this kink:

https://www.livestrong.com/article/421125-side-effects-of-allergies-from-aspartame/

Diagnosed at 41. Oncotype 21 Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jun 26, 2018 11:36AM mustlovepoodles wrote:

Wow. Never even thought of that! Come to think of it, my sister is allergic to aspartame. It gives her heart palpitations and chest pain.

Oncotype 23. Positive for PALB2 & Chek2 gene mutations. My breasts are trying to kill me! Dx 7/20/2015, DCIS/IDC, Right, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 8/20/2015 Lumpectomy Surgery 9/3/2015 Lumpectomy: Right Chemotherapy 10/19/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 2/4/2016 Prophylactic mastectomy: Left, Right Surgery 10/19/2016 Hormonal Therapy Femara (letrozole) Surgery
Log in to post a reply

Aug 24, 2018 11:21AM Johned9 wrote:

IAM not giving medical advice your medical teams does that report this to your Dr now I went through that and it was fluid buildup in lungs because of the tumor was still there I had to have it drained off then they placed a portal catheal tube in lung to drained fluid it was better than going to hospital every WK to have it done and now IAM on oxgen hope this helps you

Page 2 of 2 (41 results)

↑ Back to top