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Topic: Myofascial Release

Forum: Pain —

Share important questions and provide support to others experiencing breast cancer and treatment-related pain.

Posted on: Nov 28, 2018 10:30PM

SPDGirl wrote:

I am curious on everyone's experience with myofascial release.

I am 6 months post BMX (no reconstruction) and have had severe chest tightness since surgery with very little relief. Although professionals have meant well, I have been hard pressed to find anyone local that understands what is going on (including myself 😀). I have done regular PT, acupuncture, traditional massage, and chiropractics without any noticeable relief.

Through reading through these forums, myofascial release sounds promising, but I am trying to manage my expectations. I went to one facility and have had about 15 hours worth of treatment (over the course of a month and a half) and have not noticed any improvement. They did not work directly on my chest, but did a lot with my legs, abdomen, back, neck, etc, explaining to me that all fascia was connected and this slow working from the outside fringes was the best way and that it will be successful, but take a long time. The treatment doesn't feel like much and it is more tedious than anything else.

I recently went for a second opinion and this therapist could not be more different (although both places say they practice the John Barnes protocol). He works only on my incision and chest area and works a lot with my scar and the surrounding area. He also uses heat and ultrasound. The sessions seem so intense that I feel convinced I will walk out after each session with noticeable improvement, yet I don't. I have had about 5 hours with him so far and overall any improvement is too slight for me to really categorize.

What is everyone else's experience?

Dx 3/2018, IDC, Right, <1cm, Stage IB, Grade 2, 0/5 nodes, ER+/PR+, HER2- (IHC) Dx 5/2018, DCIS, Left, Stage 0, Grade 1 Surgery 5/13/2018 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Nov 28, 2018 10:47PM SummerRain wrote:

I have had success with fascial stretching. Although the area directly impacted by surgery is focused on, the whole body gets worked on. This was first done by my lymphedema specialist (covered by insurance). Now I see a sports massage specialist (not covered by insurance). Between weekly appointments, I try to stretch using yoga positions.

I feel it is worth every penny.

Strength from within! Dx 9/20/2016, IDC, Right, 5cm, Stage IIIA, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 10/19/2016 Lymph node removal: Sentinel; Mastectomy: Right Chemotherapy 12/11/2016 AC + T (Taxol) Radiation Therapy 6/11/2017 Breast, Lymph nodes
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Nov 28, 2018 10:51PM SummerRain wrote:

I see that you are in Ohio. This practice in Columbus looks similar to mine.

https://amyleskamassage.com/fascial-stretch-therapy.html

Strength from within! Dx 9/20/2016, IDC, Right, 5cm, Stage IIIA, Grade 3, 1/4 nodes, ER-/PR-, HER2- Surgery 10/19/2016 Lymph node removal: Sentinel; Mastectomy: Right Chemotherapy 12/11/2016 AC + T (Taxol) Radiation Therapy 6/11/2017 Breast, Lymph nodes
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Nov 29, 2018 08:09PM SPDGirl wrote:

SummerRain: Thank you for the response and link. How long did it take you to start noticing improvement. Do you also have lymphedema? I have been surprised how many people on the boards speak highly of their lymphedema specialists guiding them with all sorts of therapies (whether they have lymphedema or not), yet in my area nobody was recommended or even suggested. I have just found someone this week that can give me an evaluation if I get a referral.

Dx 3/2018, IDC, Right, <1cm, Stage IB, Grade 2, 0/5 nodes, ER+/PR+, HER2- (IHC) Dx 5/2018, DCIS, Left, Stage 0, Grade 1 Surgery 5/13/2018 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right

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