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Jan 8, 2019 11:12AM
If the pain persists for months or gets markedly worse, ask for a bone scan. If nothing else, it will put your mind at ease.
As far as the worrying goes, I know it's hard not to. But take it from me, try to not worry, b/c things are just going to go the way they are going to go. You don't want to waste good years with fear in your head constantly.
I had my first primary in 2007, a local recurrence in 2015, a new primary in 2018, then brain mets in 2018.
I spent several years after the first primary in 2007 worrying. A lot. Then after awhile, things faded into the background and I had a nice stretch of several years where cancer was not on my mind. Then the local recurrence hit in 2015, and things have been a constant nightmare ever since. So I'm grateful for the years I had where I just lived my life as normally as possible, and the only things I had to do were to pop my Tamoxifen and get my yearly breast MRI. Now, with the brain mets, I have more worry than I know what to do with.
Stage IV Pleomorphic ILC, initially diagnosed at age 38
6/7/2007, ILC, Left, 2cm, Stage IV, metastasized to bone, Grade 2, 0/4 nodes, ER+/PR+, HER2- (FISH)
7/19/2007 Lumpectomy: Left; Lymph node removal: Sentinel
12/27/2007 Whole-breast: Breast, Chest wall
3/1/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
4/24/2015, ILC, Left, 1cm, Stage IV, metastasized to other, Grade 2, 0/10 nodes, ER+/PR+
5/15/2015 Mastectomy; Reconstruction (left): Latissimus dorsi flap
2/1/2018, ILC, Right, 6cm+, Stage IV, metastasized to other, Grade 3, ER+/PR+
2/15/2018 Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel)
6/20/2018, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 3, ER+/PR+
7/1/2018 Ibrance (palbociclib)
7/17/2020, ILC, Both breasts, 6cm+, Stage IV, metastasized to brain/bone, Grade 2, ER+/PR+, HER2- (FISH)
7/17/2020 Xeloda (capecitabine)
Faslodex (fulvestrant), Zoladex (goserelin)