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Topic: Neulasta pain

Forum: Pain —

Share important questions and provide support to others experiencing breast cancer and treatment-related pain.

Posted on: Feb 19, 2019 10:52AM

mnsotamom74 wrote:

Wondering what others oncologist’s let them take for the severe joint pain caused by Neaulasta. My oncologist only wants me to use Tylenol, well Tylenol is a joke for me, I cannot even tell I’ve taken anything and I’m so incredibly miserable. Any thoughts on what could help? Thank you and sorry if this has been asked before

Dx 10/25/2018, DCIS/IDC/IDC: Cribriform, Right, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- (IHC) Surgery 11/4/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Chemotherapy 1/6/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Feb 19, 2019 11:12AM sbelizabeth wrote:

Mnsotamom74, the secret to preventing the bone pain from Neulasta is an over-the-counter antihistamine called CLARITIN. The generic name is loratadine and you can buy it cheap at any drugstore. I bought mine at Costco. You start taking it a day or two before your Neulasta shot and continue taking it for about 10 days.

My onc told me about this and it really works. I was skeptical that such a simple thing would do the trick so I skipped it for one chemo round to see what would happen. Let me just say...ouch...

I hope it works for you too! SB

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Feb 19, 2019 11:13AM claireinaz wrote:

Try taking a Claritin 24 hour tab a few hours before you get your injection. It seems the joint pain comes from some kind of allergy (others can explain it), not dangerous, but causes joint pain. Claritin before injections helps a lot to alleviate joint pain.

Why does your oncologist want you to only take Tylenol? Why not Aleve or Advil or some other NSAID? Tylenol doesn't work well for pain relief for me either. But my oncologist never limited me to a particular pain reliever.

I know hospitals push Tylenol over NSAIDs, but not sure why.

9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus
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Feb 19, 2019 11:14AM claireinaz wrote:

I see sbelizabeth beat me to the punch about Claritin! :) We posted at about the same time.

9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus
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Feb 19, 2019 11:44AM sbelizabeth wrote:

Claireinaz, two votes for the Claritin cure is better than just one!

Mnsotamom74, let us know how you're doing. SB

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Feb 19, 2019 12:14PM Tpralph wrote:

i didnt find the claritin helpful for my neulasta pain; however it did do wonders for the taxol pain. My oncologist gave me a script for tylenol 3s which really helped

Dx 3/10/2017, IDC, Right, 2cm, Stage IIB, Grade 2, 1/21 nodes, ER+/PR+, HER2- (IHC) Dx 4/10/2017, IDC, Right, <1cm, Grade 1, ER+/PR+, HER2- Surgery 5/18/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 6/28/2017 AC + T (Taxol) Surgery 11/29/2017 Lymph node removal: Underarm/Axillary Radiation Therapy 1/15/2018 Whole-breast: Lymph nodes, Chest wall
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Feb 19, 2019 12:19PM Jenkins00 wrote:

My MO told me if the Claritin, Tylenol or Ibuprofen wasn't giving me the relief I need that I could use a pain med. Of course, I haven't needed it because I start the Claritin two days before chemo and then alternate with Tylenol and Ibuprofen. I hope you find relief. Let us know.

Dx 8/2/2018, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/27/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Chemotherapy 1/14/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 19, 2019 04:52PM mnsotamom74 wrote:

thanks everyone. Yes I do the Claritin as well but this time it’s just not helping as much as it did the first couple of times. I’m going to use some ibuprofen and not tell my oncologist, I just can’t handle the joint pain and the Tylenol doesn’t even begin to touch the pain

Dx 10/25/2018, DCIS/IDC/IDC: Cribriform, Right, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- (IHC) Surgery 11/4/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Chemotherapy 1/6/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Feb 19, 2019 05:04PM SpecialK wrote:

Claritin works on the edema that forms in the bone marrow from the burden of artificially producing excess white cells prompted by the Neulasta injection. For some not as yet understood reason the antihistamine loratidine is effective at keeping the edema at bay. Most people have pain in the larger bones of the body, as that is where there is the most marro - hips, legs, shoulders - but some have pain in other spots as well. 10mg of loratidine was enough for me but when a friend went through chemo her oncologist said she could take 20mg if she felt the need. There was a trial of 10mg loratidine combined with an NSAID, so as long adventure you’re oncologist is ok with that it is worth a try.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Feb 19, 2019 08:38PM - edited Feb 19, 2019 08:38PM by Castigame

This Post was deleted by Castigame.
Mimi Dx 1/11/2017, IDC, Left, <1cm, Stage IA, 0/2 nodes Dx 1/11/2017, IDC: Papillary/IDC: Cribriform, Right, 3cm, Stage IIIA, Grade 2, 4/17 nodes, ER+/PR+, HER2- (IHC) Surgery 2/14/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal Chemotherapy 3/20/2017 Radiation Therapy 7/30/2017 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 10/29/2017
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Feb 20, 2019 11:14AM mnsotamom74 wrote:

thank you everyone, I broke down and used ibuprofen yesterday and finally had some relief. It’s always surprising to me how different each oncologist is, when my mom went through chemo 8 years ago, her oncologist said ibuprofen and even pain meds, so I was really surprised and bummed out my oncologist said just Tylenol, it felt like ( easy for you to say doc, you’re not dealing with this excruciating pain). I’m day 6 since my last chemo and hopefully I’ll finally start coming around. Thank you everyone for the replies and great advice

Dx 10/25/2018, DCIS/IDC/IDC: Cribriform, Right, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- (IHC) Surgery 11/4/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Chemotherapy 1/6/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Feb 20, 2019 11:29AM santabarbarian wrote:

My MO's advice was to begin Claritin (the one pill per 24/hour kind) 2 days prior to chemo day, and to take it daily for 7 days. I did this and never had any bone pain.

pCR after neoadjuvant chemo w/ integrative practices Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/13/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/11/2019 Whole-breast: Breast, Lymph nodes
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Feb 20, 2019 03:02PM - edited Mar 20, 2019 09:07AM by sbelizabeth

This Post was deleted by sbelizabeth.
pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Feb 20, 2019 03:02PM sbelizabeth wrote:

When I did chemo in 2011 and 2012, my onc gave me a prescription for a few oxycodone in case I needed it for the bone pain, and there were a few times when I did. With the "war on drugs," though, many physicians have been bullied into holding back on treating legitimate pain. I'm all for prevention of opioid addiction but we've thrown the baby out with the bathwater. I have so many anecdotes of people with cancer pain, joint replacement surgical pain, chronic pain, being denied appropriate pain management because of the hoopla. What a shame we can't arrive at a sensible balance.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Feb 22, 2019 01:02PM - edited Feb 22, 2019 02:16PM by Kkmay

Hi guys,

Does Claritin work if a person use it after she gets the pain and the aches?

My mother is suffering now from excruciating pains after three days of getting the Neulasta shot. The MO just recommended some Panadol which is not doing anything

Dx 1/22/2019, IDC, Left, 6cm+, Stage IIIB, Grade 2, ER-/PR-, HER2- (FISH) Chemotherapy 2/16/2019 AC + T (Taxol)
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Feb 22, 2019 01:13PM santabarbarian wrote:

Best to start claritin 2 days before chemo but give it a try...!

pCR after neoadjuvant chemo w/ integrative practices Dx 7/13/2018, IDC, Left, 3cm, Stage IIB, Grade 3, ER-/PR-, HER2- (FISH) Chemotherapy 8/13/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/27/2018 Lumpectomy: Left Radiation Therapy 2/11/2019 Whole-breast: Breast, Lymph nodes
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Feb 22, 2019 04:40PM - edited Feb 22, 2019 06:47PM by SpecialK

I had six rounds of chemo and six Neulasta injections, forgot the Claritin on the 3rd round and took it 30 mins after the injection. It was the only round I had bone pain. Not saying it won't help to take it afterward, it just didn't for me. I have read that Aleve is what seems to work well for bone pain, but I personally can't tolerate it due to a previous GI surgery, it might be worth a try for you though.

BMX w/ TE 11/1/10, ALND 12/6/10. 15 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 6/18/13-present. Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC) Dx 9/27/2010, DCIS, Stage 0, Grade 3
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Mar 19, 2019 12:16PM PiperKay wrote:

I think the Claritin has worked pretty well for me, but for when it didn't, my MO prescribed oxycodone rather than anything with an NSAID (ibuprofen, naproxen) because I am an easy bleeder. She was worried that the NSAIDs may cause bleeding issues. (Tylenol can be bad for your liver, and as some of you have said, it doesn't work on really bad pain.) So there may be a good reason why an MO may not want someone taking a particular pain reliever. Best to ask because, you know, safety first!

Dx 11/2018, IDC, Right, <1cm, Stage IB, Grade 3, 0/7 nodes, ER-/PR-, HER2- (FISH) Surgery 12/8/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 1/16/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/23/2019 Whole-breast: Breast
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Jul 11, 2019 12:11PM - edited Jul 11, 2019 12:12PM by Fairydragonfly

My oncologist never mentioned Claritin. When I talked to the nurse giving me the chemo, she only said Tylenol. I'm on 7 days of Grastofil (filgrastim) and will be taking my 6th dose tonight. The bone pain is extremely uncomfortable. I called patient support and they reiterated taking Tylenol, walking, and using a hot or cold compresses. Tylenol did NOTHING. I called my pharmacist and asked about Claritin. He hadn't heard of it, but said it wouldn't do any harm. So I took one and have my fingers and toes crossed.

I found two articles, but they reference pegfilgrastim:

Severe pegfilgrastim-induced bone pain completely alleviated with loratadine: A case report

NOLAN: a randomized, phase 2 study to estimate the effect of prophylactic naproxen or loratadine vs no prophylactic treatment on bone pain in patients with early-stage breast cancer receiving chemotherapy and pegfilgrastim

Is anyone aware of articles regarding the use of Claritin with filgrastim that I can share with my oncologist and perhaps ensure this bone pain doesn't intensify during my next cycle?


DX at age 43. Weak staining ER, Oncotype score 50, BRCA1 mutation. Lost both parents to cancer in 2018 Dx 4/17/2019, IDC, Right, 1cm, Stage IA, Grade 3, 0/4 nodes, ER+/PR-, HER2- (IHC) Surgery 5/1/2019 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 7/5/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jul 12, 2019 11:17PM 2019whatayear wrote:

There are a couple articles on this site and also if you google Neulasta bone pain claritin. It's also part of this pdf : https://moffitt.org/media/6207/side-effects-of-chemotherapy.pdf


BTW, you can get a 365 count of generic claritin 10 mg for under $10 on amazon. :-)

I found myself reading others signatures & comparing my dx to others. I decided to delete my info off my sig, b/c I felt like I was viewing people as their dx vrs. as individuals

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