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Topic: Zingers..???

Forum: Pain —

Share important questions and provide support to others experiencing breast cancer and treatment-related pain.

Posted on: Apr 10, 2019 09:32PM - edited Apr 10, 2019 09:33PM by Rrobin0200

Rrobin0200 wrote:

I'm two years out this past March. Occasionally, I will get zaps throughout the breast. Is this still normal? I know everyone said that in the beginning this would happen bc of the nerves regenerating, but still? Had a bmx with reconstruction on 3/31/17 for DCIS, grade 3. Had my two year follow up last week with an U/s, and everything looked fine. Except.. a suture granuloma? WTH is that? Radiologist and breast surgeon said nothing to worry about. Birads 2.

Dx 3/6/2017, DCIS, Left, 1cm, Stage 0, Grade 3, 0/4 nodes, ER-/PR- Surgery 3/31/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Apr 10, 2019 11:31PM illimae wrote:

I’m almost 2 years post surgery and still get them sometimes, not in the breast but my underarm and shoulder area where lymph nodes were removed. I am scanned often, just nerves.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, Stage IV, metastasized to brain Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 11, 2019 06:04AM gb2115 wrote:

I don't know. I used to get zingers but it doesn't seem to happen anymore. I do get a whole lot of aching in the area though. I figure that will be with me forever at this point.

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen. Age 38 at diagnosis.
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Apr 11, 2019 09:01AM ruthbru wrote:

I had 'zings' for years. Less & less as time went on though.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Apr 11, 2019 04:39PM Sassa wrote:

I had zings and itching for several years as nerves regenerated. The frequency and intensity gradually decreased and stopped.

LOL - be prepared for the "sprung" that will occur when scar tissue releases.

Dx 11/6/2006, IDC, 1cm, Stage IA, Grade 3, 0/9 nodes, ER-/PR-, HER2+
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Apr 11, 2019 09:32PM Rrobin0200 wrote:

sassa.. the sprung?!?! That doesn’t sound good! What the heck is that?!!

Thanks everyone for their responses!

Dx 3/6/2017, DCIS, Left, 1cm, Stage 0, Grade 3, 0/4 nodes, ER-/PR- Surgery 3/31/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Apr 12, 2019 06:46AM Rah2464 wrote:

Sassa hahaha great way to describe when the scar tissue suddenly releases!

Rrobin0200 I think she is referring to when various scar tissue like cording or adhesions suddenly "let go" inside wherever (arm, armpit, foob, chest wall you name it) you kind of feel and hear it. Doesn't hurt but certainly can startle you. I remember one large cord "popped" when hubs and I were eating breakfast. He heard it as well!

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/27/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/27/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 12, 2019 10:38PM Rrobin0200 wrote:

ah, yes. The infamous cording. I did experience that. No fun. The sound is disgusting!

Dx 3/6/2017, DCIS, Left, 1cm, Stage 0, Grade 3, 0/4 nodes, ER-/PR- Surgery 3/31/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Apr 14, 2019 11:15AM amarantha wrote:

Oh my, Rah, I would love to hear more about the scar tissue suddenly releasing. How do you get it to do that ?

IBC w skin/ bone mets, ER+. Tx: Xeloda 3000 mg/day 14 d on, 7 off : past Tx: Halaven, Cisplatin, Afinitor/Aromasine, Ibrance/Faslodex, Tamoxifen, mastectomy x 2, chemo-radiation with Cisplatin x 2, CEF, Taxotere, Carboplatin, + the kitchen sink
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Apr 14, 2019 04:12PM Rah2464 wrote:

Amarantha this happened after I was in physical therapy for the cording and lack of range of motion on my cancer side. I had been at therapy for roughly 3 weeks when the event happened at home. Physical therapy and oncological massage if you can access are key to working the scar tissue and adhesions loose. I did not begin therapy until about 3 months out from my surgery however. Wish I had been able to go sooner.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/27/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/27/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 15, 2019 07:45AM amarantha wrote:

Thanks for the details, Rah. It seems based on your info that it would be a good idea for me to get some physical therapy and oncological massage. I hope such a thing exists in my country, LOL. Well, well, well.

IBC w skin/ bone mets, ER+. Tx: Xeloda 3000 mg/day 14 d on, 7 off : past Tx: Halaven, Cisplatin, Afinitor/Aromasine, Ibrance/Faslodex, Tamoxifen, mastectomy x 2, chemo-radiation with Cisplatin x 2, CEF, Taxotere, Carboplatin, + the kitchen sink
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Apr 15, 2019 02:49PM Rah2464 wrote:

Amarantha, I truly hope you can find the therapists you need. It is very helpful to have someone that is knowledgeable about the specific issues related to breast cancer surgery - namely the cording and adhesions that are unique, as well as the need for correct lymphatic massage. Hmm my oncological massage therapist is headed to Finland in August to train therapists there perhaps she needs to make a stopover in France. And she is a BC survivor herself so she really gets it. I am blessed to know her.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/27/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/27/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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