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Topic: Pain Months after Lumpectomy/Radiation

Forum: Pain —

Share important questions and provide support to others experiencing breast cancer and treatment-related pain.

Posted on: Nov 13, 2019 11:51AM

kec1972 wrote:

Is it normal to have pain on the side of the lumpectomy/radiation? On and underneath the breast, and in the ribs? I just feel like the entire side of my chest hurts.

Dx 12/17/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 1/7/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/20/2019 Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 13, 2019 03:19PM DorothyB wrote:

I have not had that. I would get it checked out so that you can have peace about it.

Diag. 4/19/2019 ER+ PR+ HER2 neg Lumpectomy 5/29/2019 IDC w/ DICS 2.0 cm Grade 3
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Nov 13, 2019 04:15PM Euphoriaa wrote:

I have finished rads a month ago. I have pain and tight muscles, also a burning pain that runs through my arm to my fingers. My SO said it can take up to 2 or 3 years to heal rads damage ­čś¬

Dx 9/24/2018, IDC, Left, 3cm, Stage IIA, Grade 1, 1/8 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol)
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Nov 14, 2019 12:46AM Prahan wrote:

Yes me too experiencing the same

Dx 3/18/2019, IDC, Left, 1cm, Stage IB, Grade 1, 1/1 nodes, ER+/PR+, HER2- (IHC) Surgery 3/27/2019 Lumpectomy: Left Radiation Therapy 5/7/2019 Whole-breast: Breast, Lymph nodes Hormonal Therapy 5/8/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
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Nov 14, 2019 10:00AM MinusTwo wrote:

I'm 5 years our from rads after ALND. My RO told me I would have to exercise & stretch every single day for the rest of my life or the nerves & muscles would pull back like a rubber band. I would make a doc appointment about the pain running down to your fingers

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 14, 2019 10:12AM S3K5 wrote:

kec1972, yes it is normal to have some pain after the treatments are over. I remember taking Ibuprofen/tylenol which helped with the pain. As others have suggested, stretching exercises do help.

Did you have the lymph nodes removed on the side of your lumpectomy? I had slight lymphedema after radiation, so I had to wear a compression sleeve.

S3K5 Chemotherapy 4/15/2008 AC + T (Taxol) Dx 4/19/2013, IDC, Right, 3cm, Stage IV, metastasized to bone/liver, Grade 2, 5/10 nodes, mets, ER+/PR+, HER2- (FISH) Chemotherapy 9/1/2016 Xeloda (capecitabine) Hormonal Therapy Faslodex (fulvestrant)
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Nov 14, 2019 02:08PM letsgogolf wrote:

I hope it is normal because I have pain nearly 3 years after lumpectomy and radiation. It's a tight, uncomfortable feeling and I can't wait to take my bra off at the end of the day. I probably should be doing more stretching.

Oncotype DX = 3. IDC with Lobular Features. Sentinel Node had Micrometastases - Estrogen 100%, Progesterone 99.89%, Ki67= 3.3% Dx 2/14/2017, IDC, Left, 1cm, Stage IB, Grade 1, 0/8 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left Radiation Therapy 4/6/2017 Whole-breast: Lymph nodes Hormonal Therapy 6/1/2017 Arimidex (anastrozole) Targeted Therapy
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Nov 14, 2019 07:24PM kksmom3 wrote:

I am within 2 weeks of my one year anniversary from radiation. My breast is still achey and sore. They even sent me to PT last March, she said I do not have lymphedema, which of course is good, and gave me stretching exercises to do. I did them religiously at first, but really, it doesn't seem to help. I should try to make it a priority again tho. I do also always massage my radiated areas with coconut oil twice a day. I don't know if the pain is from rads or the lumpectomy or both, in which the surgical area was a centimeter under my nipple, an extra sensitive spot. I have tried OTC meds and nothing really helps. Aleve and Advil take the edge off it a little. I find I am more comfortable with a bra on, but I'm still dying to take it off after work! I really hope it gets better. It's' slightly better than last Feb and March. Funny, because it did not hurt until 2 months post lumpectomy.

Dx 8/8/2018, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 10/1/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Nov 15, 2019 05:15AM letsgogolf wrote:

When I mentioned the pain to my doctor in the year after my procedures she explained it as a train wreck in there. I had 2 different types of biopsies prior to my lumpectomy and several samples taken. I was black and blue even up to my surgery which was a month after the samplings. Add that to the stuff they did on surgery day and then for 2 months after. I can feel scar tissue in both the node area and lumpectomy area and it is always mentioned in my mammogram reports. Guess I should not be shocked that after all that trauma the area has been damaged and continues to hurt.

Oncotype DX = 3. IDC with Lobular Features. Sentinel Node had Micrometastases - Estrogen 100%, Progesterone 99.89%, Ki67= 3.3% Dx 2/14/2017, IDC, Left, 1cm, Stage IB, Grade 1, 0/8 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left Radiation Therapy 4/6/2017 Whole-breast: Lymph nodes Hormonal Therapy 6/1/2017 Arimidex (anastrozole) Targeted Therapy
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Nov 16, 2019 12:28AM MinusTwo wrote:

kk - my RO told me I would have to stretch EVERY DAY for the rest of my life to counter the radiation damage. Apparently those muscles, nerves, skin, etc. are like a rubber band once they have been radiated. If you don't keep stretching, they will pull back.

I had to stop my regular exercise for two weeks due to cataract surgery. I can already feel the difference and it's not comfortable.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Dec 27, 2019 06:02PM jessie123 wrote:

My radiation ended in July and I'm just now starting to get tinges of pain. My breast has long cord like lumps which I think is causing the pain. It's not bad pain, but it's a little concerning because it just started. Also, my breast just shrunk about a month ago which I guess was the end of the swelling. I have my yearly MRI next month so I'll learn if there is a problem then. I'm really getting tired of this cancer problem - they say the first year after treatment is hard and that is the truth.

Dx 11/2018, LCIS/ILC, Left, 2cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/21/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/15/2019 Whole-breast: Breast
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Dec 27, 2019 10:20PM mjane68 wrote:

I feel exactly what you describe! finished radiation in May. PT helped a lot with the radiated tissue. but in past few weeks my breast has shrunk notably and become harder and more pain again. i have so much pain in my rib on one side right at base of breast. i cannot wear a bra past few days. im so disheartened.

Dx 12/18/2018, ILC, Right, 3cm, Grade 2, ER+/PR+, HER2- Surgery 2/10/2019 Lumpectomy: Right; Lymph node removal: Sentinel
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Dec 28, 2019 02:34AM edj3 wrote:

MinusTwo I'm having the same realization you mentioned. I must stretch (aka basically rip) that tissue daily or I will lose range of motion. My RO said some scar worse with radiation than others, and here I am.

And the radiated breast is still swollen although that's probably a combination of scarring from radiation and scarring internally from the actual surgery (I've always made a lot of scar tissue). My BS said wherever I am a year out from surgery will be where I stay. I hope this breast shrinks because I'm pretty lopsided and I detest the artificial perkiness from all the scarring.

Dx 4/9/2019, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Surgery 5/6/2019 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 6/3/2019 Whole-breast: Breast Hormonal Therapy 9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 28, 2019 07:39AM gb2115 wrote:

It's been three years and my treated breast still hurts. I guess it's the new normal. It's ok if I don't poke at it, so I try to leave the entire area alone.

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen. Age 38 at diagnosis.
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Dec 28, 2019 10:00AM anamaeted wrote:

My right MX was in Sept of 2018 and I finished my rads in March, 2019. I still have pain in my chest wall and Lymph Node removal area. I have Lymphedema and nerve pain. The pain in my rib cage is nerve pain. The doctor put me on a low dose of Gabapentin. They increased the dosage yesterday to try to help control the pain. You should definitely mention any pain to your doctor. It may be normal, or it may be something that they are able to help you control.

Dx 7/5/2018, DCIS/IDC, Right, 2cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/11/2018 Lymph node removal: Sentinel; Mastectomy: Right
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Dec 28, 2019 12:53PM DorothyB wrote:

My treated breast doesn't hurt and is now close to the same size (but perkier) than the other one.

However, I also have found that I must stretch frequently or it hurts when I raise that arm high above my head and / or move my elbow up and behind me.

Diag. 4/19/2019 ER+ PR+ HER2 neg Lumpectomy 5/29/2019 IDC w/ DICS 2.0 cm Grade 3

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