Apr 23, 2009 07:53PM Mykidsmom wrote:

Peggy - A very close friend of mine was about your age and pre-menopausal two years ago when she was also dx'd w/ the same type of bc. She is doing fine today. She tells me that it is a very slow growing and generally relatively stable type of bc. She felt fortunate that she had that type. She also did not lose her breast, she had a lumpectomy. I hope this helps a little. I know all this is quite hard to deal w/ at first. Gentle hugs going your way my dear. - Jean

May 1, 2009 11:10AM Sphynx wrote:

For being so rare, I just ran into two posts.  I'll repeat what I put on the other.

I had invasive mucinous carcinoma. It is rare and this board doesn't even have an option to input it as one of the types. I'm a six year survivor and I've been around bc.org for most of those 6 years. There are actually many of us that have that diagnosis. I quit keeping track of the names many years ago. You read and hear that it has the best prognosis. Mine was invasive and grade 3 so I had surgeries, chemo and radiation.

PA - I was also pre-menopausal, diagnosed at 49. 

Jul 11, 2009 02:26PM saraand45 wrote:

I was 45 last July when I was diagnosed with Mucinous Carcinoma.  I am always trolling to find more info on this type. Maybe there should be a forum for rare types of a BC,  because there are a few types and I am sure alot of women like me are looking for more info and to connect with others with our same type of BC.

Tina

Jul 18, 2009 05:33PM rjwax wrote:

I was Dx with mucinous type IDC on June 8th 2009, I am 36. Clinical staging is Stage 2, 2.2cm, had lumpectomy, SNB and axillary dissection on July 13 (five days ago).  Wating for final path report, so do not know yet if pure mucinous type or mixed.

 Indeed there is not much info specific to this type of tumor, but from what I have found, it is a form of IDC but with some more favorable characteristics. If I can recall where I saw the info, I will post. 

At diagnosis, surgeon presented favorable aspects of this type first, so it is certainly something that stuck in my mind. When I met with a med onc pre-op, I really had to push him about the options with this possibly more favorable tumor type. He was all about how agressive Rx usually is for women <40, because tumors are often more agressive. Asked about role of Oncotype DX if node negative, necessity of chemo, etc. I am interested in preserving my fertility as well. Doc did mention that if tumor is mixed type, the favorbale aspects of mucinous type are more or less out of the running.  Of course all this remains to be determined and I am trying not to be too anxious about it! Although I have to think the the pre-surg and pre-path period is absolutely the worst. Each step that has given me more information and a plan of action has been so incredibly helpful to my mental health. 

Despite the lower chances of node involvement with mucinous type, ended up with SNB and axillary dissection because I had some "prominent" nodes on bilateral MRI. Was then sent for a fine needle aspiration of lymph nodes that was inconclusive (argh!). During surgery one of two SNB nodes "grumpy" (my term) so they did proceed to dissection, and a few of those nodes looked grumpy too. Still holding out hope that they were just grumpy and doing their job and do not have tumor cells in there. 

Hang in there, 

Rachel

Aug 28, 2009 11:04PM rjwax wrote:

I ended up with lymph node involvement, so although the tumor retained its mucinous characteristics throughout as far as I can tell, I still have to have chemo.  it is still invasive ductal canrcinoma with lymph node involvement- 3 of 22. Final size from lumpectomy was 3cm. bummer for me.I will also get rads after chemo since I had a lumpectomy.

A sample of my tumor was sent for a test that is like oncotype dx that they are currently trying to validate for early stage BC with lymph node involvement. I have not gotten the results yet, but it will not change my treatment. But will give me an additional sense about risk of recurrence, I guess.