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All TopicsForum: Less Common Types of Breast Cancer → Topic: Mucinous Carcinoma of the breast

Topic: Mucinous Carcinoma of the breast

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Apr 23, 2009 07:43PM

peggym wrote:

On April 21st I had a core biopsy and today I was told that I have mucinous carcinoma of the breast.  When I investigated on this website, the information given was that this is a rare type of cancer, about 2-3% of all breast cancers and usually occurs in post-menopausal women over the age of 60.  I am neither.  I am 51 years old, but still menstruate.  I have an appointment with a surgeon, but feel as though I am in the state of shock.  This "nodule" was found on routine mammogram and I convinced myself that it was nothing.

This may sound odd at my age, but I just recently started to enjoy and like 'these babies'.  The thought of losing my breast scares me tremendously, and I have not even considered the thought of this cancer metastasizing.  I won't think of that!

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Dec 16, 2016 05:36PM voraciousreader wrote:

aga....💕💕💕💕💕💕💕👍👍👍👍👍




Thank you for sharing such great news!



Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Dec 17, 2016 09:39AM agapornis wrote:

Thanks VR.

Dx 12/16/1996, 1cm, Stage IA, 0/15 nodes
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Dec 25, 2016 09:47AM WeAreConnected wrote:

Congratulations Agapornis! Many thanks to our resident VR for her timely information and resources. Happy 😊 holidays!

IDC: MixedMucinous; SolidPapillary; DCIS; Grade-II; ER+PR+HER2-
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Dec 26, 2016 03:52PM agapornis wrote:

Thank you WeAreConnected. Happy Holidays and a better 2017 than 2016!

Dx 12/16/1996, 1cm, Stage IA, 0/15 nodes
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Jan 22, 2017 08:28PM tsp4406 wrote:

Hi aida71! I've been searching for someone who shares the same diagnoses. I'm 45 and was just diagnosed with mucinous carcinoma. I'm struggling with with plan of treatment to move forward with. It would be great to connect with you

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Feb 16, 2017 02:46AM miraloma wrote:

I am recently diagnosed at age 45 and I've been reading this thread. Thank you all for the wealth of information and encouragement.

I'm still not sure exactly what I have. The initial biopsy pathology report says mucinous carcinoma. The follow up lumpectomy path report downgrades (or upgrades depending on perspective) to invasive mammary carcinoma with mucinous features. My 2nd opinion on the lump slides says IDC with mucinous and micropapillary features. It also says the positive node has predominant micropapillary features. It's clear to me that the cancer is definitely mixed. What I don't know is the % of mucinous vs micropapillary. My OncoType results are not back yet.

I have some questions and hope for some feedback.

1. Should I ask for a 3rd opinion on the pathology or proceed with the treatment plan for the most aggressive component which is the micropapillary?

2. The lump path doesn't retest ER/PR/HER2. It merely references the # from the biopsy path. Is it necessary to request a retest based on the lumpectomy? If so, should I ask them to retest the tumor (more mucinous) or the node (more micropapillary), or both?

3. The tissues/slides sent for the OncoType only contain the tumors, not the node. Again, with the node have the more aggressive subtype, should I ask for an OncoType on the node itself?

My concern is being under diagnosed. Since the biopsy path labels it mucinous carcinoma, I've been hanging on to the good prognosis of a pure MC. I worry about making decisions on chemo/rad/hormone based on incomplete info or being too optimistic.

I have a real hard time finding information on BC with both mucinous and micropapillary features. Both subtypes are rare in its pure form. One has really great prognosis while the other has an unreasonably high mortality rate. It's really difficult to reconcile them in my head.

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Feb 16, 2017 06:46AM Moderators wrote:

Welcome Miraloma to the Community Forums,

We're glad that you found us!

Others should be along soon to offer their words of wisdom and experiences.

In the meantime, feel free to contact us anytime with any questions you may have, we're always here!

The Mods.

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Feb 16, 2017 08:18AM WeAreConnected wrote:

Miraloma, a warm Welcome to you, even though you'd probably rather be somewhere else. Yes, we're some oddball mixed dx's with mixed variants, just to keep it diverse for our medical teams.
Yes, you appear to be following our diversity. I'm another mixed bag with mixed mucinous and invasive solid papillary carcinoma, a sister diagnosis to some of what you've described. Researchers previously associated papillary variants as precursors to colloid carcinoma, aka mucinous carcinoma.

Yes, yes! You will thank yourself later to obtain 2nd, 3rd & 4th opinions on the surgical pathology. ( I did & each was different.). NCI Cancer Centers with dedicated breast pathologists are best. Smaller institutions don't see enough of us to know enough, and everyone is trained differently.

Oncotype DX (GenomicHealth.com) is an assay you might wish to check with your insurance about regarding pre-authorization so you'll be ready following surgery.

If you read through this thread, I promise you won't be bored, with the wealth of info and informative links and references. It's a steep learning curve for most.

I'll check my old files, and I'll private message you some links which might include your interesting diagnoses.

IDC: MixedMucinous; SolidPapillary; DCIS; Grade-II; ER+PR+HER2-
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Feb 16, 2017 09:39AM - edited Feb 16, 2017 09:39AM by voraciousreader

http://drholmesmd.com/wp-content/uploads/2011/10/r...


Great questions...


Above is a most recent link to micropapillary bc.


Regarding additional pathology testing...I wholeheartedly agree that you should get another pathology opinion. You might wish to contact the rare breast cancer lab at Sloan Kettering.


https://www.mskcc.org/cancer-care/doctors/jorge-re...



That said, the standard of care requires that you treat the most aggressive component of the tumor. So, once the pathology is conclusively evaluated, your treatment plan will be confirmed.


Keep us posted! We are here for you!



Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Feb 16, 2017 02:30PM miraloma wrote:

WeAreConnected and VoraciousReader, thank you for your feedback.

My 2nd opinion pathology comes from an NCI designated center. There's another NCI center near me, which where I am considering sending my slides for a 3rd opinion. What's stopping me though is timing. My surgeon's putting my case in front of the tumor board next week. I can't send my slides out till that's done. By then, I'll be 7 weeks out from surgery. Having a 3rd/4th opinion may give me more info, but it will also delay the start of my treatment. If I were pure mucinous, I'd feel ok to wait. This micropapillary business really scares me.

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Feb 16, 2017 03:53PM voraciousreader wrote:

sounds like your team is on the ball. Glad the tumor board will be issuing an opinion. There will probably be another pathologist at the meeting...


Focus on doing well! I think the link that I posted above should be very reassuring!

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Feb 17, 2017 08:11PM miraloma wrote:

Big sigh of relief! My OncoType score is 12 and the oncologist does not recommend chemo. On to radiation I go! Can one really be excited about getting radiation?!

Thank you all for your encouragement and support. I could not have gone through the last few months without y'all. Stay strong, sisters!

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Feb 18, 2017 01:01AM tricianneAust wrote:

First welcome to us MC sisters I am so glad that those like Voracious reader can answer your complicated questions. Yes you can be excited about getting radiation if as the research indicates that it deals with you not getting a recurrence of the breast cancer. I made my treatment as exciting as possible. I booked in the earliest appointments in the day that I could get into so it was over & done with before it ate up a chunk of my day, also you get less system or patient holdups then. Of course early appts are not always possible. I drank heaps of water daily used all of the creams they gave me & got no radiation burn even with my English sensitive skin. I treated myself to a special coffee each day after the session, so reward yourself somehow each day. A friend of mine bought a pile of scatchie tickets (the win a prize type) for the radiation treatment series and used one each day for her reward & won a prize! My oncologist was quite strict about me walking after the session for an hour each day, in the fresh air, for my body to recover from the "radiation blast". I managed the radiation really well and if I had to do it again tomorrow I would happily participate.I am really fit & well 6yrs 4mths after diagnosis. Lots of prayers & blessings

TricianneAust Dx: 10/20/2010, DCIS Pure Mucinous Cancer , 2cm, Stage I, Grade 1, 0/3 nodes, ER+75% /PR+ 75%, HER2-. Lumpectomy,Tamoxifen,25 x radiation, Vit D deficiency being treated. Nov 2015 Mgram all ok, back to GP.Nov16 Mgram all ok.

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