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All TopicsForum: Less Common Types of Breast Cancer → Topic: Mucinous Carcinoma of the breast

Topic: Mucinous Carcinoma of the breast

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Apr 23, 2009 07:43PM

peggym wrote:

On April 21st I had a core biopsy and today I was told that I have mucinous carcinoma of the breast.  When I investigated on this website, the information given was that this is a rare type of cancer, about 2-3% of all breast cancers and usually occurs in post-menopausal women over the age of 60.  I am neither.  I am 51 years old, but still menstruate.  I have an appointment with a surgeon, but feel as though I am in the state of shock.  This "nodule" was found on routine mammogram and I convinced myself that it was nothing.

This may sound odd at my age, but I just recently started to enjoy and like 'these babies'.  The thought of losing my breast scares me tremendously, and I have not even considered the thought of this cancer metastasizing.  I won't think of that!

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Apr 10, 2017 11:18AM Unbreakable01 wrote:

Hi Bubbles,

I'm sorry you have to join the group. Since MC is more of the less common breast cancer's I use that a positive and say that I'm and we are unique. :)

I have some similarities, but not all like you. I was diagnosed at 34 in 2015. Two years prior my mammogram saw a lump, but for the two years they said it wasn't suspicious. On year 3 what I thought was just a bigger lump turned out to be the MC.

I can't remember all the numbers, but I had a hi proliferation rate. I can check the paperwork at home. I had a low oncotype score at 14% so I didn't have chemo. I had a unilateral mastectomy, and then have been on Tamoxifen. It was ER/PR+, and HER 2 -

My surgeon when my pathology report came back suggested radiation because the tumor was close to my chest wall. My oncologist said it wasn't necessary so I didn't do it. A year later I found a lump, and after all was said and done they couldn't out rule it being the same cancer only because they found mucin. Most likely it was a left over cell that didn't get taken out so a year later I ended up having radiation and finished that this past December.

I'm out running again and lifting weights, got a new job during the process. Take it one day at a time, it's a lot to take in and try to figure out. Know that we are here for you.

Dx 5/11/2015, IDC: Mucinous, Right, 2cm, Stage IIA, 0/2 nodes, ER+/PR+, HER2- Surgery 7/29/2015 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 1/11/2016 Reconstruction (right): Silicone implant Surgery 8/15/2016 Lumpectomy: Right Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 12, 2017 08:47PM obsolete wrote:

UnBreakable, I like your screen name. My goodness, another young lady! Sorry, but to me you and Bubbles are merely youngsters just a little older than my daughters. No offence, but once you pass 50, gals in their 20's-30's seem too young to get MC. You've been thru a lot with those sneaky mucin cells, but you youngsters deserve much better. I send you young gals hugs for better years ahead. Remembering you special young ladies in prayer. May God bless.

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Apr 12, 2017 10:02PM Unbreakable01 wrote:

Obsolete,

Thank you!  Cancer may try to break me, but I won't allow it to.  When I imagined my 30s, cancer was definitely not in the picture.  The good thing about being young is it's a little easier for the body to recover.  The bad thing about being young is there are more years for it to possibly come back.

I had my ultrasound today and the tech couldn't pick up my lump on the ultrasound.  The dr. saw the images and said things look ok, but my surgeon could order an MRI, which she did.  The tech felt the lump and also said without the breast tissue, and having so much scar tissue it's harder to see things.  Next week the referral should go through and hopefully the results will be 100% good.  Right now I'm at about 80% feeling ok with the outcome, but I need 100% that this is just a lump

Dx 5/11/2015, IDC: Mucinous, Right, 2cm, Stage IIA, 0/2 nodes, ER+/PR+, HER2- Surgery 7/29/2015 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 1/11/2016 Reconstruction (right): Silicone implant Surgery 8/15/2016 Lumpectomy: Right Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 13, 2017 07:30AM obsolete wrote:

Hi Unbreakable, I'm sorry to hear that you're dealing with another possibility. The anxiety from the wondering & worrying is soooooo stressful. While waiting, you deserve to pamper yourself and please try to get extra rest.

Here's a good article link on Mucocele-Like Lesions (MLL), benign lesions of the breast. One of the pathologists had stated that some patients produce too many mucinous secretions, which causes these. Why or "if" ever there were ever epithelial cells floating inside the mucin, it seems to be a mystery. Anyway, benign MLL is much better than the alternative, and I am holding your hand in hope & prayer. Please keep us posted or feel free to send me a PM. Big bear hugs!

http://www.pathologyoutlines/topic/breastmucocele.html


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Apr 13, 2017 10:40PM voraciousreader wrote:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC50708...!po=38.0000



Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Apr 13, 2017 11:48PM Unbreakable01 wrote:

obsolete thanks, I'm going to go out in nature with my dog. This is the 3rd year in a row having to go through all these tests and waiting. It gets taxing.

Dx 5/11/2015, IDC: Mucinous, Right, 2cm, Stage IIA, 0/2 nodes, ER+/PR+, HER2- Surgery 7/29/2015 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 1/11/2016 Reconstruction (right): Silicone implant Surgery 8/15/2016 Lumpectomy: Right Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 17, 2017 04:35PM glowgene wrote:

I just wanted to say hello as a fellow MC patient.

I felt secure in my choice to not get a mastectomy due to one of my physicians calling MC "barely a cancer"...but after being on these forums for some time...I'm starting to wonder if I shouldn't give the idea more thought.

At any rate: helloooo everyone!

Dx at 27. Just lucky I guess. Surgery 11/21/2016 Lumpectomy: Right Dx 12/5/2016, IDC: Mucinous, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/20/2016 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 1/25/2017 Arimidex (anastrozole), Zoladex (goserelin) Radiation Therapy 2/24/2017 3DCRT: Breast
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Apr 17, 2017 06:24PM agapornis wrote:

Hi Glowgene, welcome to the club! At the time of diagnosis, mastectomy was the only treatment I was offered and I wish I knew more about other treatments. But anyway it has been 20 years since diagnosis. I wish you many many happy years ahead.

Dx 12/16/1996, 1cm, Stage IA, 0/15 nodes
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Apr 17, 2017 07:23PM obsolete wrote:

GlowGene, ... I'm beginning to feel ancient here among these very young ladies with MC lately... they're getting younger and younger! It saddens me to see such young kids getting BC, but please accept my warm welcome to the MC club!

Agapornis, CONGRATULATIONS on an amazing 20 years!!! Had you ever taken Tamoxifen?

Even though VR has probably already kindly posted these, I'm re-posting these interesting links with statistics, which may be of interest and very encouraging to you gals. Keep in mind the dates of the studies.

.........................................................

Mucinous Carcinoma... Japan ... Prognostic Analysis Based on Morphologic Features (1988)

http://onlinelibrary.wiley.com/doi/10.1002/1097-01...(19880301)61:5%3C989::AID-CNCR2820610522%3E3.0.CO;2-E/pdf

click "continue reading full article"

http://onlinelibrary.wiley.com/doi/10.1002/1097-01...(19880301)61:5%3C989::AID-CNCR2820610522%3E3.0.CO;2-E/abstract

.........................................................

Pure mucinous carcinoma of the breast: clinicopathologic characteristics and long-term outcome among Taiwanese women (2013)

https://wjso.biomedcentral.com/articles/10.1186/14...

http://download.springer.com/static/pdf/277/art%25...=1492470883~acl=%2Fstatic%2Fpdf%2F277%2Fart%25253A10.1186%25252F1477-7819-11-139.pdf*~hmac=06e56f8c0d86144deb527199df9eb232c02f440c01d523eec13374e53f09cad9

.......................................................


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Apr 17, 2017 07:37PM obsolete wrote:

Mucinous lesions of the breast: A pathological continuum

Mucocele-like tumor and invasive mucinous carcinoma of the breast may represent the two ends of the pathological spectrum of mucinous lesions of the breast, respectively. Little data exists on mucinous lesions that may be considered intermediate between mucocelelike tumor and invasive mucinous carcinoma.

We studied 23 consecutive cases of invasive mucinous carcinoma of the breast and observed the following associated intermediate mucinous lesions: mucin-filled ducts (MFD) with unremarkable epithelium in 15 cases (65%), MFD with typical ductal hyperplasia in 9 cases (39%), MFD with atypical ductal hyperplasia in 5 cases (22%), and MFD with intraductal carcinoma in 13 cases (57%; micropapillary or cribriform types). Eighteen cases (78%) contained MFD with one of these four lesions and five cases (22%) contained all four lesions. Twenty-three consecutive cases of infiltrating ductal carcinoma-not otherwise specified (IDC-NOS), 21 cases of intraductal carcinoma, and 50 consecutive cases of surgically-excised breast tissue with fibrocystic change(FC), were similarly reviewed. Only one case (4%) of IDC-NOS, 1 case of intraductal carcinoma, and two cases (4%) of FC, contained small foci of MFD with intraductal carcinoma, intraductal carcinoma, and unremarkable epithelium, respectively.

Our findings suggest the presence of a spectrum of mucinous lesions of the breast which represents a pathological continuum.

http://www.sciencedirect.com/science/article/pii/S...


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Apr 17, 2017 07:39PM glowgene wrote:

So...I don't know if anyone else will find this of interest, but...

I'm in a genetics PhD program and I had a really, really hard time with my diagnosis at first. Partly I have a lifelong phobia of foreign bodies under my skin (splinters, parasites etc.) so cancer is...my worst nightmare...quite literally. I also know too much and had way too much access to worst-case-scenario case reports. I was unable to do the research I needed to make treatment decisions (specifically partial, whole or no radiation).

My friend in the Molecular/Cell bio program took pity on me and wrote me a literature review about Pure Mucinous Carcinoma to a) make me feel better and b) help me get the info I needed to make a decision. In order to make it less stressful to read, he auto-replaced the word "breast" with " Wurgablurghablurgagagle" (looooong story short: a friend blushed every time I said the word "breast" so we started using a sound-effect instead. Some scientists live up to the nerdy stereotype). The friend who wrote it also has an interesting and lively sense of humour. I thought I would share his 3 page lit review in hopes that it might make someone smile and/or provide information to someone who needs it:

https://drive.google.com/file/d/0B5tnaInfcpG4cFlNd...

PS My favourite part is reading the citations at the end, with all the paper names that used to have the word "breast" in them ^_^.

Dx at 27. Just lucky I guess. Surgery 11/21/2016 Lumpectomy: Right Dx 12/5/2016, IDC: Mucinous, Right, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/20/2016 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 1/25/2017 Arimidex (anastrozole), Zoladex (goserelin) Radiation Therapy 2/24/2017 3DCRT: Breast
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Apr 17, 2017 08:02PM - edited Apr 19, 2017 05:21AM by obsolete

This Post was deleted by obsolete.
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Apr 17, 2017 08:10PM obsolete wrote:

Mucinous carcinoma of the breast in Japan. A prognostic analysis based on morphologic features

My apologies, link above appears not to be working now. Full title given above.

  • First published: 1 March 1988Full publication history
  • DOI: 10.1002/1097-0142(19880301)61:5<989::AID-CNCR2820610522>3.0.CO;2-E
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    Apr 18, 2017 04:23PM agapornis wrote:

    Obsolete, thank you.

    No, I did not take Tamoxifen or any other drugs; did not have radiation, just had modified radical mastectomy, which was the treatment protocol at the time I guess. Or it is likely that my surgeon was rather taking a conservative approach.


    Dx 12/16/1996, 1cm, Stage IA, 0/15 nodes

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