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All TopicsForum: Less Common Types of Breast Cancer → Topic: Mucinous Carcinoma of the breast

Topic: Mucinous Carcinoma of the breast

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Apr 23, 2009 04:43PM

peggym wrote:

On April 21st I had a core biopsy and today I was told that I have mucinous carcinoma of the breast.  When I investigated on this website, the information given was that this is a rare type of cancer, about 2-3% of all breast cancers and usually occurs in post-menopausal women over the age of 60.  I am neither.  I am 51 years old, but still menstruate.  I have an appointment with a surgeon, but feel as though I am in the state of shock.  This "nodule" was found on routine mammogram and I convinced myself that it was nothing.

This may sound odd at my age, but I just recently started to enjoy and like 'these babies'.  The thought of losing my breast scares me tremendously, and I have not even considered the thought of this cancer metastasizing.  I won't think of that!

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Posts 1981 - 1992 (1,992 total)

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Sep 1, 2017 06:54PM Bosombuddy101 wrote:

Obsolete, I felt your warm hugs this evening. (((())))) What a whirlwind 24 hour period! The bilateral mastectomy went incredibly well. I have complete range of motion of my arms and I'm not in any pain whatsoever and what's even more remarkable I'm not on any pain medication. This speaks volumes for my breast surgeon. He is a highly skilled surgeon. I have enormous respect for him and you know what, he is so incredibly sweet and humble. I really lucked out. ;0)

Blessings and gentle hugs to all my B.C sisters.

“Trouble that can’t be named, tigers waiting to be tamed” ----Coldplay Dx 7/4/2017, IDC: Mucinous, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 7/20/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 8/31/2017 Mastectomy: Right; Prophylactic mastectomy: Left
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Sep 1, 2017 06:55PM - edited Sep 2, 2017 06:19AM by Bosombuddy101

This Post was deleted by Bosombuddy101.
“Trouble that can’t be named, tigers waiting to be tamed” ----Coldplay Dx 7/4/2017, IDC: Mucinous, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 7/20/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 8/31/2017 Mastectomy: Right; Prophylactic mastectomy: Left
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Sep 2, 2017 06:17AM Ktweasel wrote:

wahoojen-

I asked my nurse navigator if there were and MC specialists and she spoke to a doc in one of the St Louis hospitals. That doc told her she didn't think she there was one that specialized in that.

But from what I have learned, she may not need a specialist in MC. There are many things that cut across all breast cancer types that are important for treatment--node status, hormone receptor status, tumor grade; etc. It's frustrating to be part of this tiny club but for the most part, we tend to be a group with favorable prognosis.

I came on here when I was first diagnosed and became obsessed and overwhelmed. I returned after my surgery when I learned a lot more and had answers. How long ago did she find out?

DX 5/10/17 Mucinous Carcinoma (10 cm long strip of multiple small tumors in left breast). ER+ (87%) PR-, HER2 -
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Sep 6, 2017 12:51PM Roxyd wrote:

Hi to all,

I have not posted in a while. I had a MC of the left breast in 2014. Took Tamoxifen for 2 years then had to have 2 polyps removed. Blood work showed that I was in menopause, so oncologist changed to a new estrogen inhibitor. I have had 2 more periods since I went off the Tamoxifen, but no polyps. However after this last period they did blood work, and I am no longer in menopause! Has any one had this happen to them? I was told this is odd, but they have seen it. So I am off the newest drug until they tell me what is next. confused..

Take care,

Know you are not alone!

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Sep 7, 2017 04:28PM obsolete wrote:

Roxyd, so sorry about your problems. Perhaps these threads can help you ..... good luck.

https://community.breastcancer.org/forum/78/topics...

https://community.breastcancer.org/forum/78/topics...

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Sep 8, 2017 03:05PM Dark13 wrote:

Hello everyone, Thank you for all the info and encouraging words. I am 50yrs old and live in the Caribbean. I got the results from my biopsy below. I am not sure what "mucinous adenocarcinoma" is I am hoping someone here has had this and can relate. Have not had the IHC done as yet.

My doctor recommended a lumpectomy (removal of the mass and some nodes).

Thank you in advance looking forward to your responses.

ULTRASOUND GUIDED TRUCUT BIOPSY OF 1.7 X1.8CM LEFT BREAST 11O'CLOCK POSITION LOCATED 5CM FROM NIPPLE 2CM DEEP TO SKIN

I did a needle biopsy and got the result: The biopsy has been embedded toto and examined at multiple deeper levels showing cores of a moderately differentiated mucinous adenocarcinoma demonstrating cyto-arcbitectural features consisten with a Nottingham Histologic Score of 7 (Tubule formation=3, Nuclear Pleomorphism=2 Mitotic Index=2)

The lesion is disposed predominantly as nests and cords of malignant epithelial cells with areas of mucinous differentation evident. There is no evidence lymph- vascular permeation and no micro-calcification are seen.

Conclusion: Truecut biopsy at 11oclock left breast. - Mucinous adenocarcinoma, moderately differentiated.

Immunohistochemistry (IHC) for homone receptor status and Her2/Neu over-expression is recomended. Pls advise.

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Sep 8, 2017 11:30PM obsolete wrote:

Warm welcome to the Caribbean lady, ( Caribe has long been near & dear to my heart. Thankfully Irma's path missed T&T.) This weekend many of us up here are under emergency hurricane warning, unfortunately.

Your needle biopsy report indicates Mucinous Carcinoma (same as "adeno...")

On your other BCO thread from the other day, a diagnostic radiological M.D. already briefed you via PM (private message). Please also read thru this thread on the importance of 2nd opinions. Best wishes to you.

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Sep 18, 2017 10:58AM Bosombuddy101 wrote:

Hey guys,

I just got back from my followup and something very interesting...on the prophylactic breast they found atypical lobular hyperplasia, which apparently is a precursor to cancer. Phew!!!! Man or man, if I had kept that left breast, there would have been intense diagnostic imaging/biopsies. I dodged a bullet on that one. Happy

Otherwise, nothing found on the cancerous side and all the tissue was clean. So hopefully I'm free of cancer and it was caught early and I live happily ever after--- is this possible?

“Trouble that can’t be named, tigers waiting to be tamed” ----Coldplay Dx 7/4/2017, IDC: Mucinous, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 7/20/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 8/31/2017 Mastectomy: Right; Prophylactic mastectomy: Left
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Sep 18, 2017 07:23PM Dark13 wrote:

CT results

Findings

chest- dense breast parenchyma is seen. There are 2 closely located lobulated masses in the upper inner aspect of the left breast measuring 1.2 x 2.5cm in diameter. These are separate from the undelying pectoral muscle and do not involve the overlyingskin. Several sub centimeter morphologically - normal right and left auxillary lymph nodes are seen. The right breast is unreamarkable. The nipple areolar complexes are normal. The hilar and mediastinal structures are normal on this non-contrast stydy

No mediastinal masses or adenopathy

The lungs and pleural spaces are normal with no lung nodules or pleural effusions.

Impression:

1. there are 2 suspicious inner left breast masses which do not involve the overlying skin wall or underlying pectoralis major muscle. These measure 1.2cm and 2.5cm in max.diameter. there are bilateral auxillary lymph nodes in a level 1 and level 11 distribution but these appear morphologically normal on CT.

2. there is no metastases in the scan plane

3. The liver lesions appear benign

4. Incidental notebis made of bulky uterus and focal myometrial mass for which pelvic ultrasound is advised.

What does #4 mean and could this mass be as a result of me tying my tubes?


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Sep 19, 2017 05:43AM Bosombuddy101 wrote:

Dark13,

Was this a whole body CT scan? What are the plans for the 2 tumors on the left breast? As for the bulky uterus, that is something that should be followed up. I intend to make an appointment to have a trans-vaginal ultrasound done and at some point a colonoscopy. Being diagnosed with breast cancer has been a rude wake-up call to take a more proactive approach with my health. I was at the hospital for a clinic visit yesterday and there were other women in the waiting room and one of these ladies was wiping away tears every so often. I felt like going over and just comforting her.

“Trouble that can’t be named, tigers waiting to be tamed” ----Coldplay Dx 7/4/2017, IDC: Mucinous, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 7/20/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 8/31/2017 Mastectomy: Right; Prophylactic mastectomy: Left
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21 hours ago Bosombuddy101 wrote:

I was looking through the NCCN Breast Cancer Treatment Guidelines 2006 for mucinous or colloid breast cancers because I couldn't find the diagrams in the most recent editions, and hormone therapy is "recommended" for these favorable cancers under 3 centimeters. When I eventually meet with the oncologist, I know that he or she may recommend that I take hormone pills for the next 5-10 years. My concern is that if I experience side effects, which many women report, my chances of breast cancer recurrence go through the roof --- I read on Breastcancer.org that women who stop taking hormones part way through treatment experience 50 -60 % recurrence of breast cancer? This is very scary to me and I'm not really sure why this is so? There are studies of women who underwent lumpectomies with no hormone treatment and they fared well over 20 years and hormone therapy didn't seem to increase survival rates in these women.

“Trouble that can’t be named, tigers waiting to be tamed” ----Coldplay Dx 7/4/2017, IDC: Mucinous, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 7/20/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 8/31/2017 Mastectomy: Right; Prophylactic mastectomy: Left
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18 hours ago Bosombuddy101 wrote:

The survival rate for mucinous carcinoma is very good to begin with ~ 90% survival rate over 10 years, so the recurrence risk is 10% and hormone therapy could potentially reduce this recurrence risk by 50% (best case scenario) to 5% meaning 95% survival over 10 years. Given that most women with mucinous carcinoma won't have a recurrence, is it really worth the risk of taking a drug that can potentially cause other life threatening conditions? As you can see, I'm trying to think this through and is something I'll bring up with the oncologist.

“Trouble that can’t be named, tigers waiting to be tamed” ----Coldplay Dx 7/4/2017, IDC: Mucinous, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 7/20/2017 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 8/31/2017 Mastectomy: Right; Prophylactic mastectomy: Left

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