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Topic: Mucinous Carcinoma of the breast

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Apr 23, 2009 07:43PM

peggym wrote:

On April 21st I had a core biopsy and today I was told that I have mucinous carcinoma of the breast.  When I investigated on this website, the information given was that this is a rare type of cancer, about 2-3% of all breast cancers and usually occurs in post-menopausal women over the age of 60.  I am neither.  I am 51 years old, but still menstruate.  I have an appointment with a surgeon, but feel as though I am in the state of shock.  This "nodule" was found on routine mammogram and I convinced myself that it was nothing.

This may sound odd at my age, but I just recently started to enjoy and like 'these babies'.  The thought of losing my breast scares me tremendously, and I have not even considered the thought of this cancer metastasizing.  I won't think of that!

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Apr 14, 2020 09:04PM Rain88 wrote:

Wow, bbbddd, it speaks to how important it is to trust our instincts! What an incredible experience!

Dx 7/2019, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/10 nodes, ER+/PR+, HER2- Radiation Therapy 11/27/2019 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Right
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Apr 14, 2020 09:09PM - edited Apr 14, 2020 09:09PM by Rain88

This Post was deleted by Rain88.
Dx 7/2019, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/10 nodes, ER+/PR+, HER2- Radiation Therapy 11/27/2019 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Right
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Apr 25, 2020 05:48PM Pink4meAgain wrote:

Thank you Rain! Although I had a decent surgery I ended up having an allergic reaction to something they cleaned the site for surgery or the skin glue they used. Had to be on 6 days of Steriods. Thankfully I did as it helped both the itching/burning and the rash both on the breast and in the SN area under my armpit. After that healing went well. The only real remaining concern is a large hard hematoma in the area that the tumor was removed. The surgeon isn't concerned as he said the body will reabsorb it...this is via phone. Both the Oncologist and the Radiation Oncologist have seen it via video Dr Appt. Hopefully it doesn't become a huge issue. Anyone else have a hematoma about 2 weeks after surgery?

Found out on Friday I will only need Radiation and Hormone Therapy (Letrozole) after Radiation. My oncotype score was a 5 so Chemo isn't something that would make a difference.

Dx 2/2020, IDC: Mucinous, Right, 3cm, Stage IB, Grade 2, ER+/PR+, HER2- Surgery 3/26/2020 Lumpectomy: Right; Lymph node removal: Right, Sentinel Hormonal Therapy Femara (letrozole) Radiation Therapy 5/27/2020 Whole-breast: Breast, Lymph nodes
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Apr 26, 2020 02:16PM - edited Apr 26, 2020 11:19PM by Rain88

Hi Pink. An allergic reation, hmm... that's something I have never thought of in conjuction with surgery. I am sure it was very unpleasant to deal with. Good thing you got it sorted out. I had a bad hematoma after lumpectomy. My BS said I should massage the area to help it heal. It surely had me worried, as you know we are on such high alert once diagnosed with BC. I still have a hard spot in the area of the surgery (six months later) and I'm assuming it is scar tissue. I will ask about it at my next follow up. I am happy for you that you have a low Oncotype score!!! Now off to the next step of the journey. Best of luck with rads! Hugs and love!

Dx 7/2019, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/10 nodes, ER+/PR+, HER2- Radiation Therapy 11/27/2019 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Right
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May 11, 2020 12:30AM voraciousreader wrote:

https://www.ncbi.nlm.nih.gov/pubmed/32341588


Mucinous Carcinoma of the Breast: Clinicopathological Features and Long-term Prognosis in Comparison with Invasive Ductal Cancer; A Single Hospital's 30+-Year Experience.
Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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May 11, 2020 12:33AM voraciousreader wrote:

https://www.ncbi.nlm.nih.gov/pubmed/32358590



Mucinous carcinoma with micropapillary features is morphologically, clinically and genetically distinct from pure mucinous carcinoma of breast.


Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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May 11, 2020 12:37AM voraciousreader wrote:

https://www.ncbi.nlm.nih.gov/pubmed/32211189



Aggressive behavior of Her-2 positive colloid breast carcinoma: A case report in a metastatic breast cancer.
Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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May 11, 2020 12:44AM voraciousreader wrote:

https://www.ncbi.nlm.nih.gov/pubmed/32019280



Comparison of the Distribution Pattern of 21-Gene Recurrence Score between MucinousBreast Cancer and Infiltrating Ductal Carcinoma in Chinese Population: A Retrospective Single-Center Study.
Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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May 11, 2020 12:45AM voraciousreader wrote:

https://www.ncbi.nlm.nih.gov/pubmed/31933985





Clinicopathologic characteristics of HER2-positive pure mucinous breast carcinoma: a systematic investigation into an unusual tumor.
Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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May 11, 2020 06:35PM Rain88 wrote:

Thank you, voraciousreader. It's mind boggling the variations within this already rare type! As well, I find it scary how easily they might be undertreated just because of the mucinous feature.

Dx 7/2019, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/10 nodes, ER+/PR+, HER2- Radiation Therapy 11/27/2019 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Right
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May 11, 2020 07:02PM voraciousreader wrote:

Rain...i think medicine is beginning to recognize, thanks to genetics...that most illness is on a spectrum...


as you can easily see with covid 19, the virus presents differently with each person it infects. some people are symptomless, while others become critically ill and others die. And...as it mutates, there is research that says it is becoming more virulent, while other studies suggest it is losing its potency.

Mucinous breast cancer, like all “rare” types of breast cancer share clinical characteristics with garden variety types of Breast tumors. Moreover, what recent studies suggest, is, site cancers, breast, kidney, colon...etc...are no longer looked at in singularity. For example, mucinous cancers are found in other parts of the body. Some kidney cancer cells may genetically look like lung cancer cells. Clinicians are now recognizing that certain cancer drugs developed for one type of cancer can be used for a cancer in another organ.

The more you read about cancer, the more questions....

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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May 11, 2020 08:47PM - edited May 11, 2020 08:49PM by tricianneAust

I am so sorry fontalucy that I missed answering your question about Vit D. Too much going on in a very hectic fairly healthy life is my only excuse plus I had to look up my results. Had Mucinous Bowel cancer in 2001 (whoopee thats 19 yrs ago, & just caught in time b4 it spread). I have osteporosis & Vit D was first checked with that in 2011 it initially was 45 so GP gave me Vit D supplements next test was 70 then in 2013 it was 65. Now with our Medicare where GPs get told too many Vit D tests! testing an be too often .As am vigilant about taking Vit D & try to supplement via regular un-screened time in sunshine & diet GP is not concerned I think my next update for testing Vit D is 2021

TricianneAust Dx: 10/20/2010, DCIS Pure Mucinous Cancer , 2cm, Stage I, Grade 1, 0/3 nodes, ER+75% /PR+ 75%, HER2-. Lumpectomy,Tamoxifen,25 x radiation, Vit D deficiency being treated. Dec 19 Mgram all ok.
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May 11, 2020 09:02PM tricianneAust wrote:

Hi Voraciousreader I jumped on here to reply to your comment about getting Mucinous Cancer in other organs too. As you may remember the first MC I had was Bowel in 2001 and quite a virulent MC that one was, it was caught very early and was still contained in the polyp & had not then spread to the nodes so did not metastasize. I still shake when I read the pathology on how cancerous the polyp was. Then 9 years later I had MC in the left breast. I haven't seen others on here who had had MC in more than 1 area so am interested if others have experienced this. According to the Oncologist at the time they investigated how the two were related and they determined it had no direct relation to the bowel cancer & was my genetic predisposition to MC. Not sure how correct that assumption is. Continued prayers for all my MC sisters as I sit at my computer you come to mind.

TricianneAust Dx: 10/20/2010, DCIS Pure Mucinous Cancer , 2cm, Stage I, Grade 1, 0/3 nodes, ER+75% /PR+ 75%, HER2-. Lumpectomy,Tamoxifen,25 x radiation, Vit D deficiency being treated. Dec 19 Mgram all ok.
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May 11, 2020 09:23PM voraciousreader wrote:

tric..let me begin by saying....mucinous cancers strike different parts of the body. Some are More virulent than others depending on the location. That is what the folks at sloan kettering are trying to understand. Why? With that said, for all intents and purposes they are distinct cancers, within the family of mucinous cancers. What I was referring to is that researchers and clinicians are now discovering that genetically, some cancers in different parts of the body are similar in as much as they respond to the same medicationS. So, a breast cancer medication might work on a kidney cancer....So...there is a shift in how cancers are now being perceived and ultimately treated...

On a side bar....i will give you an example in a completely different area of medicine. The DH has a genetic metabolic disorder. Back in the day, he was treated by physicians in the specialty of “Inborn Errors of Metabolism.” It was a sidebar of Pediatric Endocrinology. Today, IEoM no longer exists. Today the specialty is called Medical Genetics.

As we understand illnesses, medicine evolves....

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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May 11, 2020 09:26PM Pinkywave wrote:

Hi everyone. I posted the same post in the other thread but someone told me to join this thread because of my type. I’m hoping to get some inputs. Thank you in advance


I have stage 2 breast cancer (T2, N0, Mx), grade 1, Ki-67: 0-5%. ER/PRpositive, HER2 negative. Diagnosed on 03/17/20, had lumpectomy on 04/21/20, negative lymph node but got positive margin. I was initially told that my tumor was 1.2cm but it turned out to be 4.3cm and besides my primary tumor (mucinous carcinoma, micropapillary : grade 1), they also found extensive DCIS (grade 1-2). So now I'm considering having mastectomy, hopefully skin-sparing mastectomy, but my surgeon says he only performs total mastectomy and if I want skin-sparing, he needs to refer me to someone else.......If I'm ok with total mastectomy, I can have it done in 10 days. I'd like to explore my options, but I certainly don't want my remaining cancer to spread. So my question is, how long is too long to wait to have re-excision after lumpectomy with positive margin?

Also, I know Mucinous carcinoma usually has good prognosis but how about when it's mixed with micropapillary? Does anyone have same condition as me? I'd like to know!! Thank you so much❤️

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May 11, 2020 09:36PM voraciousreader wrote:

pinky...scroll up around 10 comments. Last night I posted a study on micropapillary mucinous bc. Regarding your situation and how aggressive it might be, you are a candidate for the OncoypeDX test. That should give you more info. Based on hour path report, you have excellent prognostics. Regarding how long to wait, you should discuss that with your team. That said, you should get another consultation to discuss the option that is best for you. If you want to consider skin sparing, you should be accommodated.

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)

Page 79 of 79 (2,356 results)