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Topic: Mucinous Carcinoma of the breast

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Apr 23, 2009 04:43PM

peggym wrote:

On April 21st I had a core biopsy and today I was told that I have mucinous carcinoma of the breast.  When I investigated on this website, the information given was that this is a rare type of cancer, about 2-3% of all breast cancers and usually occurs in post-menopausal women over the age of 60.  I am neither.  I am 51 years old, but still menstruate.  I have an appointment with a surgeon, but feel as though I am in the state of shock.  This "nodule" was found on routine mammogram and I convinced myself that it was nothing.

This may sound odd at my age, but I just recently started to enjoy and like 'these babies'.  The thought of losing my breast scares me tremendously, and I have not even considered the thought of this cancer metastasizing.  I won't think of that!

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Mar 22, 2021 01:50PM voraciousreader wrote:

bubbles. Congrats on doing well. While there are other threads here that discuss young women and successful pregnancy following a breast cancer diagnosis, I am sorry to say that none mention mucinous. I often read the literature, but again, there isn't anything to my knowledge that discusses mucinous and pregnancy.


That said, from the bottom of my heart, I do wish you well. Keep us posted. Perhaps your insights will help future young women diagnosed with mucinous.

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Mar 23, 2021 05:27PM pinger2474 wrote:

historygeek - I hope you found the path you're comfortable with after meeting with the surgeon. You have a very similar diagnosis - I was also diagnosed with invasive mucinous carcinoma last July, also grade 2. I had hoped for a lumpectomy but due to the small size of my breast and the position of the tumor, the recommendation was to have a mastectomy. I opted for no reconstruction; this is really a personal choice, but definitely read up on this before deciding. When the surgeon performs the mastectomy, they usually remove a few lymph nodes. I had 2 removed and both were clear. Because of this, I did not have to go through radiation (usually this is needed with a lumpectomy) or chemotherapy (I also had an Oncotype test and it came back with low risk). I immediately went on Tamoxifen because I am still premenopausal. I had terrible side effects from the Tamoxifen and currently only taking 5mg a day. It's been exactly 8 months to the day today since my surgery and I am doing very well. I hope this site provides you the support you need.

Dx 7/1/2020, IDC: Mucinous, Left, 2cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 7/23/2020 Lymph node removal: Sentinel; Mastectomy Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 2, 2021 12:33AM gelatosun wrote:

Hello! I was recently diagnosed with Triple positive Mucinous Carcinoma in my left breast and I have an appointment set up in about 11 days. They did a fine needle biopsy and IHC to diagnose me. I've been reading that 3x positive mucinous cancer is pretty rare because most Mucinous cancer of the breast is HER2-. I am seeking people who were in a similar position. I'd like to hear about your experiences and what treatment was like for you. Thank you so much.

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May 2, 2021 06:14AM historygeek wrote:

Geltosun, I'm sorry you find yourself here. I found a lot of knowledge here after my diagnosis. One thing my surgeon said is that mucinous will be treated in most cases just like any IDC.

Dx 2/2021, IDC: Mucinous, Left, 3cm, Grade 2, ER+/PR+, HER2- Surgery 4/29/2021 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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May 2, 2021 06:30AM voraciousreader wrote:

gelatosun...


Feelingthemagic was also diagnosed as triple positive Mucinous. It has been a number of years and she is doing well.



Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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May 3, 2021 03:11PM Rain88 wrote:

Hi gelatosun. I am sorry to hear about your dx. Learning you have breast cancer is never easy and the days leading up to tx are particularly trying. Triple positive Mucinous breast cancer is an even more rare subtype of the already rare Mucinous breast cancer type. I hope you will hear from someone else with a similar dx. Meanwhile, you might want to check out the Triple positive thread on the forum. The one question I would make sure I ask my medical team is to find out what is the most agressive characteristic of my cancer, as this is what will most likely drive the tx. We are here to support you if you have any questions or if you want to update. Good luck going forward! Sending your way lots of positive vibes!

Voraciousreader, feelingthemagic posts have been deleted. I'm not sure if she checks back here anymore.




Dx 7/2019, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/10 nodes, ER+/PR+, HER2- Radiation Therapy 11/27/2019 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Right
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May 3, 2021 03:55PM voraciousreader wrote:

rain...feelingthemagic posts pop up every now and then...I can understand why she and others want to delete their online footprint especially when it comes to this very personal situation that we share. Both online and in my personal life, I have been extremely careful about who I have shared this deeply personal experience.


That said, this thread was there for me when I needed it most and I am so glad that you and others continue keeping it going. Thank you!!!!!



Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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May 3, 2021 06:08PM Rain88 wrote:

Hi voraciousreader. For many of us this thread has ben a godsent! For me, personally, the only way I could find solace for a while was to read through the many posts, often more than once. It was the combination of support, camaradery and knowledge, the feeling that I wasn't alone that I would often seek and was able to find in the messages exchanged on this thread. So for that I thank you and all the others who have come back and offered support and knowledge! I also think that many of us closed this chapter of their lives and moved on. I am trully thrilled for them and I sincerely hope they all are doing well thriving. I thought that was the case for feelingthemagic and wanted to let you know. All my best wishes to you and lots of positive vibes sent your way!Heart

Dx 7/2019, IDC: Mucinous, Right, 1cm, Stage IA, Grade 1, 0/10 nodes, ER+/PR+, HER2- Radiation Therapy 11/27/2019 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy: Right
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May 7, 2021 08:10AM - edited May 7, 2021 08:13AM by FeelingtheMagic

Hello Gelatosun,
My apologies for not seeing the notifications until now. Sorry you are needing to be here, but this was my best place for support and info during my treatments. Good you found it. I was also diagnosed with triple positive mucinous cancer - ten years ago. I am doing very well. I think my treatment info will pop up in my signature. I did do chemo, herceptin, and 5 years of hormonal therapies. I suppose my key thing to mention up front is that the original recommendation for the chemo protocol was extreme. I asked for the top specialist in Canada to review because of the rarity of the diagnosis. She came back with a less extreme chemo protocol and I am relieved I pushed for her involvement. I will try to get my notifications to show up in the right place in my emails and am happy to answer any questions. Good wishes with a hug.

DCIS and Pure mucinous and Her2+ WTF? (oops did I say that?) Dx 3/2/2012, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ (FISH) Surgery 4/4/2012 Lumpectomy: Left Surgery 5/2/2012 Mastectomy: Left Targeted Therapy 6/25/2012 Herceptin (trastuzumab) Chemotherapy 6/25/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 12/3/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/5/2013 Reconstruction (left) Hormonal Therapy 10/5/2014 Femara (letrozole) Hormonal Therapy 1/8/2015 Aromasin (exemestane)
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May 7, 2021 08:37AM voraciousreader wrote:

feeling! Glad to hear from you and congrats on the 10 year mark!


Heart

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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May 7, 2021 09:25AM FeelingtheMagic wrote:

Why thank you! Oh, but wait, let me recalculate. It's actually 9 years. And that's awesome, too! Lovely to see you, too, Voracious. Ever grateful how much support you've provided for all of us.

DCIS and Pure mucinous and Her2+ WTF? (oops did I say that?) Dx 3/2/2012, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ (FISH) Surgery 4/4/2012 Lumpectomy: Left Surgery 5/2/2012 Mastectomy: Left Targeted Therapy 6/25/2012 Herceptin (trastuzumab) Chemotherapy 6/25/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 12/3/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/5/2013 Reconstruction (left) Hormonal Therapy 10/5/2014 Femara (letrozole) Hormonal Therapy 1/8/2015 Aromasin (exemestane)

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