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Topic: Mucinous Carcinoma of the breast

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

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Posted on: Apr 23, 2009 04:43PM

Posted on: Apr 23, 2009 04:43PM

peggym wrote:

On April 21st I had a core biopsy and today I was told that I have mucinous carcinoma of the breast.  When I investigated on this website, the information given was that this is a rare type of cancer, about 2-3% of all breast cancers and usually occurs in post-menopausal women over the age of 60.  I am neither.  I am 51 years old, but still menstruate.  I have an appointment with a surgeon, but feel as though I am in the state of shock.  This "nodule" was found on routine mammogram and I convinced myself that it was nothing.

This may sound odd at my age, but I just recently started to enjoy and like 'these babies'.  The thought of losing my breast scares me tremendously, and I have not even considered the thought of this cancer metastasizing.  I won't think of that!

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Oct 26, 2012 05:02AM voraciousreader wrote:

TaunTaun... I wish you well with the next stage of your active treatment! Sounds like you are receiving excellent care! You mention that you have pain under your arm. If it continues, mention it to your breast surgeon. Following my SNB, I developed cording, also know as axillary web syndrome. After that, I developed a frozen shoulder. If it becomes very painful, physical therapy can help.

Thoughts and prayers to you!

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Oct 26, 2012 06:21AM cider8 wrote:

TaunTaun, I'm adding prayers for you! I came out of my BMX with surprises as well. The chemo is rough but it is doable. My daughters were 7 and 10 when I went through chemo. They adapt very well and I let them know what was going on at their level.

I also needed physical therapy for my range of motion on my ALND side. I ended up going to PT throughout chemo which was so nice. She really loosened up my muscles.

~Paula~ [R] Pure Mucinous, DCIS, & IDC. BMX w/DIEP in NOLA 5/11; 12/11; 9/12. DD AC/T end 9/11. Tamox. 2mm IDC found 9/12 = 33 rads end 01/13, Oncotype 34. [L] IBC = TCx6 end 7/13, MX (remove flap), 44 rads (2x/day) end 10/13. Zoladex & Arimidex. Dx 2/25/2011, IDC, 1cm, Stage IIA, Grade 2, 1/21 nodes, ER+/PR-, HER2- Dx 4/5/2013, IBC, Stage IIIB, ER+/PR+, HER2- Dx 8/22/2013, IBC, Stage IIIC, Grade 3, 10/28 nodes, ER+/PR+, HER2-
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Oct 27, 2012 04:56AM Ginia wrote:

Another quick update.

After a visit to GP to obtain new script for Blood pressure Tablets and the Gp having a quick look at the right infected breast, I'm back in hospital on IV antibotics again. Only 4 days at home. Dr's Plan to increase antibotics and asparate the breast every second day. 

However, I actually got the registar to share some information. As I told you before, all my appointments to the outpatients clinics have been cancelled by the hospital. So untill today was in the dark with regard to the Path results from the surgery, what the plans are for my treatment.

Well here it is. According to the registar and the medical file he was reading. Tumor was 35x23x18 in size, pure mucinous. they took out 36 nodes 6 compromised. ER+, PR+ and Her2-. Will be having radiatiion, chemo and hormone theropy.  All once this infection is under control.

I hate hospitals but this time I brought the laptop with me.

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Oct 27, 2012 05:57AM voraciousreader wrote:

Ginia... Sounds like a good plan to eradicate that lousy infection once and for all! Readmissions stink... But are very common. The DH had cardiac surgery in June and was rehospitalized a week later! No fun! But I was smart like you! Brought laptops and smartphones to pass the time!

Your treatment plan follows the NCCN breast cancer treatment guidelines. Despite affecting your nodes, the good thing from your path report is that you have pure mucinous BC.

Hope you are feeling better soon!

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Oct 28, 2012 11:00PM Ginia wrote:

Ladies,

As this will be my final post as i am cured, firstly, thank you all for your support and kind thoughts over the past few months.

I was told today that i needed a phyc evaluation as I have some unresolved issues surrounding my BC and this infection. Dr (Registar) says that all this in in my head. I have checked out of hospital and will not be returning under any circumstansces. If indeed this is all in my head as this doctor suggests then i don't have and never have had Breast cancer and therefore will not require any treatment. As for the infection again this will resolve itself when i tell my brain that i don't have one.

Thanks again, all the best and goodbye.

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Oct 29, 2012 12:08AM FeelingtheMagic wrote:

Taun Taun,  I've just finished my 6 rounds of chemo, (continue with herceptin, and tamoxifen to be added once body has healed a bit)  My protocol entirely different from yours, partly likely due to the herceptin and what it doesn't 'mix well' with, so it may not help you to know, but I wanted to tell you anyway, it was do-able!

And my little granddaughters have helped me immensely.. You'll appreciate the blog post I wrote today about what the five year old said about my hair growing back!  http://musingalong.wordpress.com/2012/10/28/best-compliment-ever-on-anything-on-the-top-of-my-head/

I'm so empathetic to moms with young children going through this. So glad you have family and friends to support you. My biggest learning in this has been to accept, and even ask for, help, and it's been truly amazing how many people have helped me. Quite a change from the 'strong independant never ask for help' woman I was, and it feels very good.

Sending you hugs and healing thoughts as you go through this next part of the treatments.  

Ginia, if you stop by here...I hope one doctor's comments doesn't stop you from pursuing the best options for you to be healthy. It's very normal to get second opinions in this process, and not unusual to change doctors because a person isn't comfortable with one.  I'm sure many of us have.  Wishing you wellness.



DCIS and Pure mucinous and Her2+ WTF? (oops did I say that?) Dx 3/2/2012, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2+, Surgery 4/3/2012 Lumpectomy: Left Surgery 5/1/2012 Mastectomy: Left Targeted Therapy 6/24/2012 Herceptin (trastuzumab) Chemotherapy 6/24/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Hormonal Therapy 12/2/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/4/2013 Reconstruction (left) Hormonal Therapy 10/4/2014 Femara (letrozole) Hormonal Therapy 1/7/2015 Aromasin (exemestane)
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Oct 29, 2012 04:12AM voraciousreader wrote:

Ginia...I want to add to Feelingthemagic's sage advise. Whether strong or weak...delegate! Get someone on board to help you through this maze! If you don't have a family member or friend to advocate for you, please contact your local cancer society and ask them to have a volunteer assist you. I truly wish you well.

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Oct 30, 2012 03:18PM - edited Oct 30, 2012 10:56PM by tricianneAust

Hi Ginia, A Registrar may have his own opinion but do remember they are not the Specialist! Second opinions are essential so my prayer for you is that you have the energy and courage to find out exactly what you are dealing with and if it is emotional and psychological issues we can all have some of those and the sooner you find out how to work it through the better it will be for you.

Feelingthe magic I love the way you capture your grand-daughters understanding of your bald hair. I am rejoicing with you that the fuzz is reappearing owning a fuzzie is a definite comfort.

My friends 6 year old daughter had loads of questions when I had bowel cancer and her comment "Well I shall just have to become a tummy doctor then" still touches me, how thoughtful for a young girl.

Lots of thoughts and prayers whether you are at the struggling stage or are coping and healing. Tricianne

TricianneAust Dx: 10/20/2010 , DCIS Pure Mucinous Cancer , 2cm, Stage I, Grade 1, 0/3 nodes, ER+75% /PR+ 75%, HER2-. Lumpectomy,Tamoxifen,25 x radiation, Vit D deficiency being treated. Dec 2021 Mgram 11yrs ok.
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Nov 8, 2012 12:02PM TaunTaun8 wrote:

I had my first chemo treatment today. I'm on an AC regimen, once every 3 weeks for 12 weeks. Then, I'll have 12 rounds of Taxol. The treatment today went well; I didn't have any trouble during the treatment. I'm still feeling well so far, though it's only been a few hours. My birthday is on Saturday :-). I'm hoping I won't feel horrible by then, but we'll see.

I had a port put in place yesterday, which I'm grateful for. My forearm and hand are still bruised from the multiple IVs and blood draws I've had over the past week. I had a PET/CT scan which was clear, so that was a relief to hear. My arm doesn't hurt like it did in the weeks following my axillary node dissection. It's still a little sensitive, but the pain is nearly non-existent. I hardly think about it now! 

It's been a good day for me; I hope you all have found something good in your day, also.

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Nov 8, 2012 12:28PM voraciousreader wrote:

TaunTaun... Wishing you well with your active treatment. I wish you a very happy birthday.

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)

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