Posted on: Aug 27, 2010 01:15PM
Anyone out there also diagnosed with tubular carcinoma? I know it is a rare kind, rarely spreads, is highly estrogen positive and has a good prognosis. If you have tubular carcinoma, I am wondering about your treatment. I had lumpectomy, radiation, and tamoxifen. I am curious to know if all of this treatment is necessary for this kind of breast cancer- tubular, stage 1, grade 1, 0 lymph nodes.
Thanks, I look forward to learning more about tubular carcinoma related to treatment plan.
Posts 271 - 300 (424 total)
Jan 30, 2018 05:41AM grainne wrote:
Hi, CAM8 . Hope all went well with the surgery.
Isee, hope everything was grand for you too.
Thinking about you both. X
Jan 30, 2018 10:24AM CAM8 wrote:
Thank you for checking in on me. Just got back from my follow up with my surgeon. All is well. Three lymph nodes are clear and just a little bit of residual tumor in the sample. I meet with an oncologist next week to talk about radiation and tamoxifen. Anyone out there ever refuse radiation? Or tamoxifen? My tumor was so small and with no genetic markers, not sure it is necessary. Let me know what you guys think. Thanks again!!
Jan 30, 2018 05:37PM grainne wrote:
CAM8 that is really fantastic news. Your results really are as good as they get. I do think some women earlier on this thread did refuse rads and/or tamoxifen or aI s. I had both and I have no regrets. I feel I'm doing everything possible to prevent a recurrence . I don't know if you are aware that exercise plays a significant role in preventing recurrence whether or not you decide on further treatment. Good luck whatever you decide.
Isee: great news from you.
Jan 30, 2018 06:22PM isee wrote:
Excellent Cam8! That is great news. I decided to do the radiation as insurance. I did refuse Tamoxifen as it was only going to give me like a one percent reduction in future cancer.
Jan 30, 2018 06:26PM CAM8 wrote:
Thank you ladies for your responses. I have heard some bad things about tamoxifen but of course if it will reduce the chance of reoccurrence I will take it. I Geel thebenefits might not outweigh the risks. I’m leaning toward radiation therapy as insurance as well.
Jan 31, 2018 09:04AM isee wrote:
Ask the oncologist how much risk reduction there will be for you if you take Tamoxifen Cam8. There are risks associated with this drug. My sister ended up with blood clots and had a horrible time. I'm not sure if it was a result of the surgery...she had a double mastectomy due to a repeat of breast cancer...she had it at 37 years of age, and then got it again on both sides at 62 years...given our BRCA2+ status, and her current cancer, she opted to have both breasts removed...and took Tamoxifen until the blood clots happened a short time later, then she stopped taking it and had to inject herself for a long time to get rid of the blood clots. A very nasty business... :( She is doing better now :).
Jan 31, 2018 12:25PM grainne wrote:
I agree with isee re possible side effects and doing a personal analysis of benefit. I take a mini aspirin every day which might help avoid blood clots. Factor in also the reduction of risk of a new breast cancer in the same or other breast and also a reduction of risk of distant mets. Welcome to the new world where everything is a puzzle and a trade off and a best guess! You can never be sure of making the right decision: only the best decision with the information you have at any particular time.
Jan 31, 2018 08:10PM isee wrote:
I should add...I do think that this drug has probably saved or prolonged many people's lives....It just wasn't right for me or my sis :)
Not sure if my oncologist would have had a different statistic about recommending it or not if he had known my BRCA2 status. I didn't find this out for about 6 months after my treatment ended. I'm pretty sure if they had know, they would have done Chemo and would have recommended Tamoxifen. I did have my ovaries removed as a preventative measure :( That has meant a big weight gain for me...about 30 lbs. Everything seems to have its pros and cons. Reduce cancer but increase the risk of diabetes and heart disease.....go figure eh?
"They found that the drug's benefits outweighed the risks for 74 percent of the women included in the analysis, but not for 20 percent of the participants.
The study found that women who had hysterectomies before starting the drug were 11 times more likely to have a favorable risk-to-benefit profile, and younger women were also more likely to benefit.
However, African-American women were 65 percent less likely than white women to see their benefits exceed risks associated with taking the drug."
There is a thread discussing this Cam8...I'm sure you saw it....
Jan 31, 2018 08:59PM Brightsocks wrote:
I would say the word "puzzle" explains the correct answer for treatment. Since we are all different it is not easy to say which path to pick. I did rads and no drugs due to what works best for my body. I agree 100% with exercise to help physically and mentally. Another tip is wound management if possible adding a physio or an athletic therapist and massage to help.
Feb 1, 2018 01:04AM isee wrote:
I had cording...but no seroma. Let us know what the doc says. Best wishes for a speedy recovery Cam8! Sorry this has happened to you. :(
Feb 4, 2018 03:19PM CAM8 wrote:
Hi. Thanks for checking in. Not going to oncologist till Feb 28. My surgeon said most likely he will recommend radiation. I’m so relieved lymphnodes are clear and it was caught early!! The swelling by my lymphnodes is going away. They say a seroma can take up to a month to go away. Thanks again!!
Feb 9, 2018 11:59PM - edited Feb 9, 2018 11:59PM by Valentina7
I am so happy I found you! Actually I was diagnosed in November but it was only this week I learned from my doctor that I have a mixed cancer. I didn't know this was possible...it is ductal but has tubular elements...this is what my doctor told me even though it was classified as NST the report specifies that tubular elements predominate. And today I was checking and my diagnosis is very similar to the one that you all have. So I am sooooo happy to find you! My tumor was really tiny 0.3 cm. @brightsocks how big was yours?
Feb 11, 2018 03:40PM Brightsocks wrote:
I have to find my records sheet to give you the exact mm. It was under 1cm and was a bit larger when they removed the BC.
Feb 19, 2018 02:58PM Valentina7 wrote:
Hi grainne, I am feeling better...i still have 8 rads.
Feb 22, 2018 03:25PM Valentina7 wrote:
I still have 5 rads and i am feeling really exhausted, i am taking tamoxifen already and i think this was a mistake...it is too much for the body.
keep in contact,
Feb 22, 2018 04:56PM Brightsocks wrote:
Here is a study you might want to review.
Feb 22, 2018 05:04PM Brightsocks wrote:
Here is another one.
Feb 22, 2018 10:11PM Valentina7 wrote:
I was informed so: It could be that there are cancer cells in my breast and rads is to prevent another cancer in the same breast ( if I had a mastectomy, there was no need of rads)
tamoxifen is important to prevent cancer in the other breast...