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Topic: tubular carcinoma

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Aug 27, 2010 02:15PM

aner18 wrote:

Anyone out there also diagnosed with tubular carcinoma?  I know it is a rare kind, rarely spreads, is highly estrogen positive and has a good prognosis.  If you have tubular carcinoma, I am wondering about your treatment.  I had lumpectomy, radiation, and tamoxifen.  I am curious to know if all of this treatment is necessary for this kind of breast cancer- tubular, stage 1, grade 1, 0 lymph nodes.

 Thanks, I look forward to learning more about tubular carcinoma related to treatment plan. 

Dx 12/7/2006, <1cm, Stage IB, Grade 1, 0/4 nodes, ER+/PR+, HER2-
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Jan 20, 2018 11:10AM grainne wrote:

it's great to have the surgery so soon. I had very little post surgery pain..I think I took over the counter painkillers the next day. I was driving in 3 days and back at work in a week. The worst pain was the sentinel node scar nipping a bit but that didn't amount to much either. The nipple injection wasn't pleasant but it was surprisingly quick. The doctor kept me talking ( I'm always ready to talk) and it was done before I knew it. I wouldn't waste energy worrying about it.

You are lucky to know it's tubular and that your prognosis is excellent before surgery. All I knew was that it was dcis/idc and I had to wait for the pathology results a week after surgery in a state of crushing anxiety that I dread ever having to repeat. The surgeon was practically glowing when he told me it was tubular.

Isee good luck with your mammogram on Monday. I have an annual one and the second is booked for Feb 6th. Getting nervous already! You are over 6 years out: do you still worry?

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 20, 2018 03:25PM isee wrote:

Hi Grainne and Cam8,

Oh man yes, I forgot about that nipple injection...don't know how I could. I swore like a trooper...I think if I had known what was going to happen I would have handled it better. At least you know to brace yourself Cam8. It does hurt, I have to say :(. Hopefully you will find it not to bad...fingers crossed for you. I don't know why they don't freeze the area first?
Yes Grainne, I still worry. I'm very likely to have another breast, or other type of cancer due to the BRCA2 mutation. Although, I had a complete hysterectomy and ovary removal as a preventative measure, so that certainly limits the possible locations that a cancer could pop up. I have no ovaries, tubes, cervix, uterus....as well my gallbladder was removed about 15 years ago. I think my biggest fears are lung or bone. My mother, who also had the mutation, had several cancers...skin, breast, cervical, and died of lung cancer at 84 years....just this past November.

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Jan 20, 2018 05:46PM grainne wrote:

Isee I am so sorry about your mother. That is a great loss and I know the first Christmas is always hard. I will be thinking about you on monday: please post at let us know all went well and you can relax for a while.

I note with relief you swore like a trooper. I have a wide and varied vocabulary of profanity and have found many occasions to use it.

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 21, 2018 09:12AM CAM8 wrote:

I’m sure I will have some choice words during the injections. Lol. I’ve read they cannot numb up the area before that since the radioactive material would not absorb correctly. Bummer.

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Jan 30, 2018 06:41AM grainne wrote:

Hi, CAM8 . Hope all went well with the surgery.

Isee, hope everything was grand for you too.

Thinking about you both. X

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 30, 2018 10:14AM isee wrote:

Thanks, Grainne,

Had my mammo...all good with me thanks for thinking of me! Have a wonderful day!

:)

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Jan 30, 2018 11:24AM CAM8 wrote:

Thank you for checking in on me. Just got back from my follow up with my surgeon. All is well. Three lymph nodes are clear and just a little bit of residual tumor in the sample. I meet with an oncologist next week to talk about radiation and tamoxifen. Anyone out there ever refuse radiation? Or tamoxifen? My tumor was so small and with no genetic markers, not sure it is necessary. Let me know what you guys think. Thanks again!!

CA

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Jan 30, 2018 06:37PM grainne wrote:

CAM8 that is really fantastic news. Your results really are as good as they get. I do think some women earlier on this thread did refuse rads and/or tamoxifen or aI s. I had both and I have no regrets. I feel I'm doing everything possible to prevent a recurrence . I don't know if you are aware that exercise plays a significant role in preventing recurrence whether or not you decide on further treatment. Good luck whatever you decide.

Isee: great news from you.

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 30, 2018 07:22PM isee wrote:

Excellent Cam8! That is great news. I decided to do the radiation as insurance. I did refuse Tamoxifen as it was only going to give me like a one percent reduction in future cancer.

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Jan 30, 2018 07:26PM CAM8 wrote:

Thank you ladies for your responses. I have heard some bad things about tamoxifen but of course if it will reduce the chance of reoccurrence I will take it. I Geel thebenefits might not outweigh the risks. I’m leaning toward radiation therapy as insurance as well.

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Jan 31, 2018 10:04AM isee wrote:

Morning,

Ask the oncologist how much risk reduction there will be for you if you take Tamoxifen Cam8. There are risks associated with this drug. My sister ended up with blood clots and had a horrible time. I'm not sure if it was a result of the surgery...she had a double mastectomy due to a repeat of breast cancer...she had it at 37 years of age, and then got it again on both sides at 62 years...given our BRCA2+ status, and her current cancer, she opted to have both breasts removed...and took Tamoxifen until the blood clots happened a short time later, then she stopped taking it and had to inject herself for a long time to get rid of the blood clots. A very nasty business... :( She is doing better now :).

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Jan 31, 2018 10:09AM CAM8 wrote:

Wow. I’m glad your sister is doing well now. I will look at the stats regarding how much tamoxifen reduces my chances of reoccurrence. It will have to be be a substantial. Thanks again!!!

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Jan 31, 2018 01:25PM grainne wrote:

I agree with isee re possible side effects and doing a personal analysis of benefit. I take a mini aspirin every day which might help avoid blood clots. Factor in also the reduction of risk of a new breast cancer in the same or other breast and also a reduction of risk of distant mets. Welcome to the new world where everything is a puzzle and a trade off and a best guess! You can never be sure of making the right decision: only the best decision with the information you have at any particular time.

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 31, 2018 02:17PM CAM8 wrote:

Yes this all gets confusing! I’m thankful for this forum!

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Jan 31, 2018 09:10PM isee wrote:

I should add...I do think that this drug has probably saved or prolonged many people's lives....It just wasn't right for me or my sis :)

Not sure if my oncologist would have had a different statistic about recommending it or not if he had known my BRCA2 status. I didn't find this out for about 6 months after my treatment ended. I'm pretty sure if they had know, they would have done Chemo and would have recommended Tamoxifen. I did have my ovaries removed as a preventative measure :( That has meant a big weight gain for me...about 30 lbs. Everything seems to have its pros and cons. Reduce cancer but increase the risk of diabetes and heart disease.....go figure eh?

"They found that the drug's benefits outweighed the risks for 74 percent of the women included in the analysis, but not for 20 percent of the participants.

The study found that women who had hysterectomies before starting the drug were 11 times more likely to have a favorable risk-to-benefit profile, and younger women were also more likely to benefit.

However, African-American women were 65 percent less likely than white women to see their benefits exceed risks associated with taking the drug."

https://www.curetoday.com/articles/Cyramza-Improve...

There is a thread discussing this Cam8...I'm sure you saw it....

https://community.breastcancer.org/forum/78/topics/853410


What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Jan 31, 2018 09:59PM Brightsocks wrote:

I would say the word "puzzle" explains the correct answer for treatment. Since we are all different it is not easy to say which path to pick. I did rads and no drugs due to what works best for my body. I agree 100% with exercise to help physically and mentally. Another tip is wound management if possible adding a physio or an athletic therapist and massage to help.

Dx 11/24/2015, IDC: Tubular, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/4/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/17/2016 Whole-breast: Breast
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Jan 31, 2018 10:41PM CAM8 wrote:

Thanks for all of the advice. I have developed a seroma at the site where my lymphnodes were removed. I will call the doc in the morning. Anyone else ever have this after surgery?


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Feb 1, 2018 02:04AM isee wrote:

I had cording...but no seroma. Let us know what the doc says. Best wishes for a speedy recovery Cam8! Sorry this has happened to you. :(


What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Feb 4, 2018 04:01PM isee wrote:

How are you doing Cam8. What did the doctor say?

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Feb 4, 2018 04:19PM CAM8 wrote:

Hi. Thanks for checking in. Not going to oncologist till Feb 28. My surgeon said most likely he will recommend radiation. I’m so relieved lymphnodes are clear and it was caught early!! The swelling by my lymphnodes is going away. They say a seroma can take up to a month to go away. Thanks again!!


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Feb 4, 2018 04:23PM isee wrote:

Sounds like good news! Keep us posted :)

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Feb 5, 2018 03:40AM grainne wrote:

glad to hear that. X

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 10, 2018 12:59AM - edited Feb 10, 2018 12:59AM by Valentina7

Hi,

I am so happy I found you! Actually I was diagnosed in November but it was only this week I learned from my doctor that I have a mixed cancer. I didn't know this was possible...it is ductal but has tubular elements...this is what my doctor told me even though it was classified as NST the report specifies that tubular elements predominate. And today I was checking and my diagnosis is very similar to the one that you all have. So I am sooooo happy to find you! My tumor was really tiny 0.3 cm. @brightsocks how big was yours?


Dx 11/27/2017, IDC, Right, <1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2- Surgery 12/21/2017 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 1/13/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 1/23/2018 3DCRT: Breast
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Feb 11, 2018 04:40PM Brightsocks wrote:

Hi Valentina7,

I have to find my records sheet to give you the exact mm. It was under 1cm and was a bit larger when they removed the BC.


Dx 11/24/2015, IDC: Tubular, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/4/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/17/2016 Whole-breast: Breast
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Feb 11, 2018 07:03PM CAM8 wrote:

Hi. My Tubular Carcinoma was 4 mm. Very smaill. My lumpectomy was 3 weeks ago and my armpit is still numb. Anyone else with this problem? This site is wonderful. I’m so happy I found it too!


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Feb 19, 2018 03:52PM grainne wrote:

Val and CAM8, how are you both doing?

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 19, 2018 03:58PM Valentina7 wrote:

Hi grainne, I am feeling better...i still have 8 rads.


Dx 11/27/2017, IDC, Right, <1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2- Surgery 12/21/2017 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 1/13/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 1/23/2018 3DCRT: Breast
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Feb 19, 2018 11:07PM CAM8 wrote:

Hi. I’m healed up and have an appt with the oncologist on Feb 28 to discuss rads. How is the rad therapy going Valentia7? Did your Doc highly recommend rads andtamoxifen? Was that your decision?

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Feb 22, 2018 04:25PM Valentina7 wrote:

hi CAM8,

I still have 5 rads and i am feeling really exhausted, i am taking tamoxifen already and i think this was a mistake...it is too much for the body.

keep in contact,

val7

Dx 11/27/2017, IDC, Right, <1cm, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2- Surgery 12/21/2017 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 1/13/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 1/23/2018 3DCRT: Breast
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Feb 22, 2018 04:46PM CAM8 wrote:

Did your Doc give stats of chances of reoccurrence if you did not do tamoxifen or rads? Can’t find many studies done in Tubular Carcinoma.

CA

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