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Topic: tubular carcinoma

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Aug 27, 2010 02:15PM

aner18 wrote:

Anyone out there also diagnosed with tubular carcinoma?  I know it is a rare kind, rarely spreads, is highly estrogen positive and has a good prognosis.  If you have tubular carcinoma, I am wondering about your treatment.  I had lumpectomy, radiation, and tamoxifen.  I am curious to know if all of this treatment is necessary for this kind of breast cancer- tubular, stage 1, grade 1, 0 lymph nodes.

 Thanks, I look forward to learning more about tubular carcinoma related to treatment plan. 

Dx 12/7/2006, <1cm, Stage IB, Grade 1, 0/4 nodes, ER+/PR+, HER2-
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Jan 23, 2017 01:03AM Brightsocks wrote:

Hi 614,

Here is some info on what cupping is http://www.webmd.com/balance/guide/cupping-therapy...

I also have used cupping on a calf pull and it really helped. Where I go for treatment they use a plastic cup and a handheld suction pump.

Here is some info on graston. http://www.grastontechnique.com/patients-info

I just picked a page to show some pictures. This also seems to be working for me. I know there is an issue with massage treatments and bc so I talked to my nurse advisor first and for my case it seems to be fine. I can't recommend this for all.

Dx 11/24/2015, IDC: Tubular, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/4/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/16/2016 Whole-breast: Breast
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Mar 17, 2017 02:09PM 614 wrote:

Dear Brightsocks:

THANKS!!

I have been working so many hours and I have not had a chance to login to this website.  I really appreciate the information (even if I am thanking you months after you posted.)

I go for regular massages because my oncologist said that this is fine.

I hope that you are doing well.

Pleomorphic ILC. 2 primary bc's plus Bifocal Pleomorphic LCIS along w/ALH, PASH, and FEA. Oncotype 14, Ki67: 21%. Premenopausal DX. Dx 6/25/2014, ILC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 6/25/2014, LCIS, Left, 1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 7/22/2014, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Dx 7/22/2014, LCIS, Left, 4cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 7/22/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel; Prophylactic ovary removal Radiation Therapy 9/7/2014 Whole-breast: Breast Hormonal Therapy 10/5/2014 Arimidex (anastrozole), Zoladex (goserelin)
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Mar 20, 2017 03:32PM Brightsocks wrote:

614- Tomorrow will be must last meeting and goodbye to my surgeon. I am not sure if anyone else used vitamin E on their scars but it really helped me. My scar is fading into my skin and is now less noticeable as time rolls along. I am glad to have one less member on my health care team. I will now be under the care y doctor of my family doctor with trip in every 6 months for 2 years then once a year if I have an issue. I have yet to get the call for the removal of my tattoo spots which I really want removed. I should have asked for the tape spots that is my one regret.

Dx 11/24/2015, IDC: Tubular, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/4/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/16/2016 Whole-breast: Breast
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Mar 20, 2017 09:53PM 614 wrote:

Dear Brightsocks:

I only saw my breast surgeon for the surgery and for the post op visit. My medical oncologist is the doctor whom I see on a regular basis. However, I had my surgery in Texas and I live in Florida so I had to see a different doctor. I LOVE my M.O. and I am so thankful that I was lucky enough to become her patient. Thank G-d! My M.O. is the "guru" of BC in Florida, where I live. I had to be very persistent to be able to have an appt. with her. (I am proud of myself.)

I am glad that you only have one more meeting with your surgeon. You will be under competent care from your family doctor. Good luck. I am glad that your scar is fading and is less noticeable.

I did not even know that it was an option to have your tattoo spots removed. Who does that? Good luck. I hope that you will get the call to have the tattoo's removed. Be persistent so that you can have this procedure.

I am happy for you.

Pleomorphic ILC. 2 primary bc's plus Bifocal Pleomorphic LCIS along w/ALH, PASH, and FEA. Oncotype 14, Ki67: 21%. Premenopausal DX. Dx 6/25/2014, ILC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 6/25/2014, LCIS, Left, 1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 7/22/2014, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Dx 7/22/2014, LCIS, Left, 4cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 7/22/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel; Prophylactic ovary removal Radiation Therapy 9/7/2014 Whole-breast: Breast Hormonal Therapy 10/5/2014 Arimidex (anastrozole), Zoladex (goserelin)
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Mar 20, 2017 11:55PM Brightsocks wrote:

The tats will be removed with a laser and it will take more than one visits from what I understand. I think a few ladies on this community have had experience with this process. I have seen there are places across North America that due this as a free service. If anyone has had this done I would be interested to what it was like.

Dx 11/24/2015, IDC: Tubular, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/4/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/16/2016 Whole-breast: Breast
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Mar 21, 2017 12:00AM 614 wrote:

Free tattoo removal is awesome. I hope that people inform you about the procedure and how to get accepted so that you can have this done. Good luck.

Pleomorphic ILC. 2 primary bc's plus Bifocal Pleomorphic LCIS along w/ALH, PASH, and FEA. Oncotype 14, Ki67: 21%. Premenopausal DX. Dx 6/25/2014, ILC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 6/25/2014, LCIS, Left, 1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 7/22/2014, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Dx 7/22/2014, LCIS, Left, 4cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 7/22/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel; Prophylactic ovary removal Radiation Therapy 9/7/2014 Whole-breast: Breast Hormonal Therapy 10/5/2014 Arimidex (anastrozole), Zoladex (goserelin)
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Mar 23, 2017 12:09AM Brightsocks wrote:

614- My meeting went well today with my surgeon I thought this was the last time we will meet but she likes to follow people for 2 years every 6 months. So I am fine with that I enjoy our little talks. I have always had a pain under my right arm in my armpit which she explained it to be breast tissue. I could never pin point the exact spot thinking it must come from on source she explained it could be a larger section of breast tissue. I have had this check over and over from all member of my medical team.

Dx 11/24/2015, IDC: Tubular, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/4/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/16/2016 Whole-breast: Breast
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Mar 24, 2017 08:58PM 614 wrote:

Dear Brightsocks: I think that it is great that she will be following you for 2 years. That is reassuring. I am glad that she told you that you have breast tissue under your arm. That takes away your worry. Good luck.

Pleomorphic ILC. 2 primary bc's plus Bifocal Pleomorphic LCIS along w/ALH, PASH, and FEA. Oncotype 14, Ki67: 21%. Premenopausal DX. Dx 6/25/2014, ILC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 6/25/2014, LCIS, Left, 1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 7/22/2014, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Dx 7/22/2014, LCIS, Left, 4cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 7/22/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel; Prophylactic ovary removal Radiation Therapy 9/7/2014 Whole-breast: Breast Hormonal Therapy 10/5/2014 Arimidex (anastrozole), Zoladex (goserelin)
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May 29, 2017 11:03AM Brightsocks wrote:

Just thought I would check in. Today I am going for my first treatment to have my 3 marking dots removed. The treatment for removal takes seconds and several attempts.

Dx 11/24/2015, IDC: Tubular, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/4/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/16/2016 Whole-breast: Breast
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Jun 2, 2017 02:27PM Brightsocks wrote:

Just an update.

Nothing much is happening to the spots. They are a bit red with no colour change. Everything about my BC comes down to counting numbers for me from the start/end of treatment days, to the clicks of the radiation treatment and now the zaps of the removal of the tattoo marks. I never have been so into counting in all my life thank goodness for learning to count to 100 in Kindergarden :)

Dx 11/24/2015, IDC: Tubular, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/4/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/16/2016 Whole-breast: Breast
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Jun 16, 2017 02:41PM Brightsocks wrote:

Went for my second blast to remove my spots. Dr came in and asked "did we freeze you last time?" No but you can if you would like! He then said no that would take too much time. Yikes! Too much "time" to manage my pain.... Thanks a ton. Well I went on and he blasted away instead of the 17 clicks from the machine he went to 40. He wants them gone as much as I don't want to return. So now I will just wait to see what will happen to them as they heal.


Dx 11/24/2015, IDC: Tubular, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/4/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/16/2016 Whole-breast: Breast
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Jun 17, 2017 05:42PM peppopat wrote:

I must be the most unluckiest TC breast cancer patient on the planet. My TC migrated to one lymph node, as a micromet, even though they say that is extremely unlikely.

Abnormal MRI: Mar'09, Dx: Aug,'10 DCIS w,Grade 2, ER+99%/PR25%+ HER2+, then 4/20/2011, lumpec, w/SLND Pure Tubular confirmed, HER2 status NEGATIVE, 1/3 node+ for micromet, Oncotype score--28, no chemo, no rads--thank u very little Dx 8/6/2010, IDC: Tubular, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Dx 6/1/2017, IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 9/1/2017 Lymph node removal: Right
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Jun 19, 2017 06:11AM grainne wrote:

hi. I'm not very good at links but if you google pubmed and then search tubular breast cancer there is an article at no 18 about overdiagnosis by mammograms. Para 2.2 is very reassuring. It says 5% of tubular cases have axillary mets but even so, it will almost certainly not kill any of us unless we subsequently develop a more aggressive cancer. I'm very happy to read it myself because i had 2 tiny satellite tumours discovered on lumpectomy which I was very worried about but it seems there was a good chance they wouldn't have developed even if they had been left alone. I had whole breast rads and I'm now on tamoxifen for almost a year. I'm happy i had the optimum treatment for me. I see you had diagnosis of dcis recently : is this a recurrenceor a new cancer? How are you doing?

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 30, 2017 11:53PM peppopat wrote:

I spoke with my medical oncologist and asked him if this was a new primary or a recurrence. Since he's too cheap to order a DCIS" oncotype Dx, no doctor can tell me for sure. I spoke with three different doctors and all had a different opinion The way my MO is about ordering stuff, you'd think he had stock in Coventry !!!

Abnormal MRI: Mar'09, Dx: Aug,'10 DCIS w,Grade 2, ER+99%/PR25%+ HER2+, then 4/20/2011, lumpec, w/SLND Pure Tubular confirmed, HER2 status NEGATIVE, 1/3 node+ for micromet, Oncotype score--28, no chemo, no rads--thank u very little Dx 8/6/2010, IDC: Tubular, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR-, HER2- (IHC) Dx 6/1/2017, IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 9/1/2017 Lymph node removal: Right
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Jul 22, 2017 10:31AM - edited Jul 22, 2017 12:44PM by Moderators

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Jul 22, 2017 10:40AM - edited Jul 22, 2017 12:44PM by Moderators

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Jul 23, 2017 03:07AM India1 wrote:

Hi, I am diagnosed with tubulo lobular carcinoma on July 6th 2017, Had a sugery and it was found 1.5 cm Cancer lump was removed with margin of 2 cm each side. Post surgery Histopathology report confirmed that cut margins are free of cancer. It shows ER/PR + and HER negative , Ki-67 is 20% which is good news. No carcinoma in any Lymph node.

Oncologist suggests going for Radiation and Medicines. My question is that if Tubulor carcinoma is not going to come back from what I found from Internet, it is completely removed from my body, Histopathology report says Intraductal carcinoma is not seen , do I need radiation? Please send me your reply to this board. I appreciate for any suggestion regarding treatment. I don't want to take radiation or medicines. What are risks?

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Sep 14, 2017 05:05PM - edited Sep 14, 2017 05:07PM by 614

Dear India:

This reply is probably too late, but I would go for a second opinion. (In fact, I went to 3 radiation oncologists.)

Please be aware that you can only radiate an area once.

Good luck.

Sincerely,

614

Pleomorphic ILC. 2 primary bc's plus Bifocal Pleomorphic LCIS along w/ALH, PASH, and FEA. Oncotype 14, Ki67: 21%. Premenopausal DX. Dx 6/25/2014, ILC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 6/25/2014, LCIS, Left, 1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Dx 7/22/2014, IDC: Tubular, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Dx 7/22/2014, LCIS, Left, 4cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 7/22/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel; Prophylactic ovary removal Radiation Therapy 9/7/2014 Whole-breast: Breast Hormonal Therapy 10/5/2014 Arimidex (anastrozole), Zoladex (goserelin)
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Sep 15, 2017 09:29AM isee wrote:

614...are you BRCA+ with Tubular? Just wondering. I am, and also had prophylactic ovary (and everything else) removal...just in case. Wish I didn't though. I have gained about 30lbs. over the past 5 years since the surgery and muscle tone in abdomen is non existent. I have high risk surveillance due to my BRCA2 status twice a year.

What doesn't kill you makes you stronger! Invasive Tubular Carcinoma - BRCA2+ Dx 2/9/2011, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-

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