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Topic: Invasive Ductal Micropapillary Carcinoma

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Mucinous carcinoma (colloid carcinoma), Papillary carcinoma, Cribriform carcinoma, Tubular carcinoma, Metaplastic tumors, Paget's disease, Phyllodes tumor, Adenoid cystic carcinomas and Angiosarcoma.

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Posted on: Apr 23, 2011 07:04AM

Posted on: Apr 23, 2011 07:04AM

lifelover wrote:

I've recently been diagnosed with this rare form of IDC that is more aggressive.  It is a mixed form containing ductal and micropapillary components.  Although my tumour was (had BMX and reconstruction) only 1.4cm, it has been found in 3 of 7 lymph nodes sampled and is a Grade 3.  I've yet to be staged as I need scans to confirm no metastisis to organs or bones.

It seems that this is only a recently identified form of IDC and not to say that it has never existed before.  There are few statistics and little information available about it although it has been shown to be aggressive with a high rate of metastisis.

I'm starting FEC-T chemo, 3 sessions FEC and 3 sessions T, beginning 9 May.

Any information I can share, I will, so that future members diagnosed have some information when searching.  I'd be grateful for any information from those of you who know something about this. 

Micropapillary IDC, extensive lymphovascular invasion. Dx 2/9/2011, IDC, 1cm, Stage IIIA, Grade 3, 3/7 nodes, ER+/PR-, HER2- Surgery 4/4/2011 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Nipple reconstruction, TUG flap; Reconstruction (right): Nipple reconstruction, TUG flap Chemotherapy 5/21/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Hormonal Therapy 9/30/2011
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Apr 7, 2018 05:32AM Gohan1983 wrote:

https://www.ncbi.nlm.nih.gov/pubmed/29072365

That clears up many doubts...

Dx 12/15/2013, IDC, Left, 6cm+, Stage IIIB, Grade 3, 1/19 nodes, ER+/PR+, HER2- Hormonal Therapy 12/16/2013 Femara (letrozole) Surgery 7/27/2014 Lymph node removal: Left; Mastectomy: Left Chemotherapy 9/30/2014 Taxol (paclitaxel) Hormonal Therapy 1/28/2015 Femara (letrozole) Radiation Therapy 2/5/2015 Whole breast: Lymph nodes, Chest wall
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Apr 8, 2018 06:15PM Scaredb wrote:

Hi Gohan.

That report is a great read. Thank you for sharing

Scaredbunny

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Jul 21, 2019 01:59PM Sportymom wrote:

Did anyone receive information that they had micropapillary features in ONE of their lymph nodes?

I have what seems to be very aggressive disease as I am Stage IIIA, Grade 3, 4/4 sentinal lymph nodes positive; three macrometasteses (largest one being 10 mm) and one micrometasteses. One of them had micropapillary features in it. There was also LVI present but no extranodal extension identified.

The biopsy stated that there were micropapillary features in the original tumour which was <1 cm squared by US. After surgical resection, my tumour(s) were 11mm and 2mm in size but the pathologist labelled it as IDC-NOS.

I am in an absolute panic as I have my bone scan and CTscan coming up. I am not ready to die and want desperately to see my kids grow up.

According to the research the smaller tumours and higher LNM are poor prognostic factors.

I am at a loss of how to deal with this. How do I remain strong and hopeful?

Wendy diagnosed at 45 Dx 6/7/2019, IDC, Right, 1cm, Stage IIIA, Grade 3, 4/4 nodes, ER+/PR+, HER2-, Surgery 7/4/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 8/15/2019 Zoladex (goserelin) Chemotherapy 8/21/2019 CEF Dx 10/23/2019, IDC, Stage IV, metastasized to lungs
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Oct 10, 2019 11:14PM rlmessy wrote:

Hello,

Posting here as well as the "high-risk" page. Just received initial biopsy report that is showing "invasive micropapillary carcinoma/dcis." Got only a verbal report as we were trying to get an MRI of breast ordered and pre-auth'd with insurance. First team appointment next Thursday. Is anyone still active on the board with this dx?

My DX appears below but I am also a caregiver to my awesome Mom, a 13 year (2006) BC Survivor, IIIa IDC, ER/PR+, HER2+, R MX, Lymphedema R Arm ---- I am scheduled for a complete hysterectomy 12/2020 Dx 10/10/2019, IDC: Papillary, Right, 2cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+, Surgery 12/18/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy 2/21/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab)
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Dec 5, 2019 10:46PM brutersmom wrote:

RLMessy, I am not on this site much anymore. I was diagnosed in 7/29/15 with a 6mm IDC right Stage on grade 3 ER+/PR+, HER2- by Dual. I had surgery twice. I have no family history of breast cancer. I did radiation Therapy. I took Arimidex (anastrozole) for about 14 months and stopped due to un-manageable side effects. I was over weight so I started working and a eating healthy. The Dr's at the hospital wanted me to do Chemo Therapy as a precaution. I declined that treatment. I am 4 1/2 years out from my diagnosis. I do go to the gym regularly and work out with many younger women. I do me best to keep up with them. I am also still working. I wish you well with your treatment plan.


Surgery 7/8/2015 Lumpectomy (Right); Lymph node removal (Left): Sentinel; Lymph node removal (Right): Sentinel Dx 7/29/2015, IDC, Right, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2-, FISHISHCISH Radiation Therapy 9/27/2015 Whole breast: Breast Hormonal Therapy 10/24/2015 Arimidex (anastrozole) Hormonal Therapy 1/3/2023 Femara (letrozole) Targeted Therapy 1/3/2023 Ibrance (palbociclib)
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Dec 6, 2019 12:54PM yogatyme wrote:

Rlmessy, I am still on this board frequently. I had surgery in Aug, so not that far out. Let us know your treatment plan.

Yogatyme Surgery 3/2/2019 Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/12/2019 Mastectomy; Mastectomy (Left); Mastectomy (Right)
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Feb 12, 2023 06:18PM - edited Feb 12, 2023 06:23PM by brutersmom

I have returned to this site after being here of and on for 6 years. On January 3, 2022 l learned that my cancer had returned to the pleura of my lung. I was diagnoses in June of 2015. I started on Ibrance and letrozole on January 19th. I had 2 thoracentesis during that time with 1200 plus ml of fluid removed. After starting on Ibrance and letrozole I had a third thoracentesis and they remove 400 ml. At this point, they feel like the drugs are working. I feel that it was caught early. Tests show if has not spread. Right now I am moving forward one day at a time. I am 70 still working part time and how that I will continue that for many more years.

Surgery 7/8/2015 Lumpectomy (Right); Lymph node removal (Left): Sentinel; Lymph node removal (Right): Sentinel Dx 7/29/2015, IDC, Right, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2-, FISHISHCISH Radiation Therapy 9/27/2015 Whole breast: Breast Hormonal Therapy 10/24/2015 Arimidex (anastrozole) Hormonal Therapy 1/3/2023 Femara (letrozole) Targeted Therapy 1/3/2023 Ibrance (palbociclib)

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