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Topic: Paget's of the Breast

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Mar 11, 2013 12:48PM

Elisa51 wrote:

I have been recently diagnosed with Paget's of the breast. I first noticed a small red circle around my left nipple and decided to have it checked after realizing that it wasn't going away. My GP scheduled a mammogram which showed nothing then an ultrasound which indicated a extra layer of skin under my left nipple. My GP felt is was nothing to worry about but thought we best be prudent and have a breast specialist see me who also did not think it was Paget's but "just in case" performed a wedge biopsy. Since no other lumps appear in the breast it was suggested I have 2 options 1) removal of the nipple, areola and surrounding tissue or 2) mastectomy which would be a safer route to take to ensure no other cancer cells exist in the breast. Is there anyone else out there who has had to make this choice and if so, what did they choose? I'd also like to know the percentage of recurrence of cancer with Paget's of the nipple

Dx 2/21/2013, Paget's Surgery 4/2/2013 Mastectomy: Left; Reconstruction (left)
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Mar 11, 2013 01:37PM Blessings2011 wrote:

Hi, Elisa51 - and welcome to the forum!

Until some other members come along to post, I wanted to make a suggestion:

On the left hand side of this page, you will see a blue box, and a line that says "SEARCH."

If you click on that, and type in Paget's Disease in the box that comes up, you will come up with at least 19 pages of posts on this subject.

Hope you find the information you need... wishing you the best!!!

Dx 9/15/2011, IDC, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/4/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/21/2012 Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/4/2012 Arimidex (anastrozole) Hormonal Therapy 10/21/2013 Femara (letrozole)
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Mar 14, 2013 10:26AM Elisa51 wrote:

Thanks very much. Still a little freaked out by all of this. 


Dx 2/21/2013, Paget's Surgery 4/2/2013 Mastectomy: Left; Reconstruction (left)
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Mar 14, 2013 02:16PM ValL wrote:

Hi Ladies,

Can I have some advise of what to look for reference Pagets disease.  My ulta sound and mri is negative but developed an extra fold on my left nipple, severe itchiness and a series bumpy rash on my nipple.  I have a lump in back of my nipple that has went from pea size to dime size and my Dr is not concerned.

Any information would be great.

Hugs. Thanks


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May 27, 2015 04:30AM lou23 wrote:

Hi, most pagets only show up with a biopsy, I had mammograms ultra scan MRI scan, but it was the punch biopsy that showed it up. I had a wide excision but unfortunately not a clear margin so had a masectomy 3 weeks ago, just waiting for path lab report to see if I need more treatment. Mine was servere itchiness and red shiny nipple. Hope that helps.


Dx DCIS/translation missing: en.models.diagnosis.shorthand.type.paget''s, Left Surgery Lumpectomy: Left; Lymph node removal: Sentinel; Mastectomy: Left
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Jun 2, 2015 11:25PM NATSGSG wrote:

Hello fellow members:

I've re-pasting this link below contains 2269 scientific articles of Paget's disease of the breast that I hope you find useful and helpful to you. There are 3 other threads talking about it, and I thought copying and repasting it here makes it more convenient for you.

In the interim, please consider visiting the Society for Immunotherapy of Cancer (SITC) to see if there's anything in the works using immunotherapy to treat this disease, or consider having them include you in their distribution list to get the latest development? Here's their link:

Take care, and have a fantastic day, wherever you are @@!!!@@


This VIDEO link talks about the use of immunotherapy in cancer treatment (current hot cancer treatment topic) and fascinating to watch. 

NATSGSG Dx 3/16/2015, IDC, Right, 2cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Radiation Therapy 8/12/2015 Whole-breast: Breast Surgery Lumpectomy: Right; Lymph node removal: Right

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