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Topic: Spindle Cell Carcinoma - Sarcomatoid Carcinoma

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Mar 24, 2013 11:23AM

iragna wrote:

I was just diagnosed with Spindle Cell Carcinoma which is a Metaplastic Carcinoma.  I haven't been able to find much about this kind of cancer so I was wondering if there is anyone here that has had this diagnosis.

Dx 3/12/2013, 2cm, Stage IIB, Grade 3, mets, ER-/PR-, HER2- Chemotherapy 3/24/2013 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Mar 24, 2013 09:56PM Chocolaterocks wrote:


I dont know if this will help. But my Mom did almost 18 years ago (she is 80 now) and still kickin. Her breast cancer was ductal, ilc insitu and spindle cell.  A tumor board reviewed her case and it was sent out to the army lab at the time. I guess back then it was very unusual. She did surgery and chemo and remains on evista even today.  My cancer was different, but I thought this helps you some.  take care,


Dx 1/13/2011, ILC, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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Mar 29, 2013 08:46PM Shelley511 wrote:

my friend was also diagnosed with spindle cell ca. Had a double mastectomy, but another tumor appeared on her side, it was removed today. However, pet scan showed several tumors in her lung. What is a tumor board?  She just had appts at Fox Chase and U of Penna. They concur with her surgeon at Bryn Mawr Hospital. She is going to Sloan Kettering in the next week. Any advice?  Whom should she contact??

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Jun 3, 2015 01:46AM - edited Jun 3, 2015 01:47AM by NATSGSG

hello @ragna:

Hope this message finds you well and recovering....I know this may be a little late consider your thread was posted back in 2013. But I still wanted to stop by to share this link below that contains 39790 scientific articles of Spindle Cell Carcinoma of the breast that I hope those who visit your thread will find informative and useful to them too.

In the meantime, if you are interested to find out if there are immunotherapy treatment being used to treat  this disease, please consider visiting and/or write to the Society for Immunotherapy of Cancer(SITU) to find out if they have begun using immunotherapy to treat Spindle Cell Carcinoma, and perhaps even request to be put on their mailing list to keep you updated of any new developments?  Here's their link: 


Below is a VIDEO link discussing the use of immunotherapy in various cancer treatment (current hot cancer treatment topic). Fascinating to watch and good to know. 

Have a fantastic summer and sending you and everyone lots of wishes and enjoyment in your readings..@@!!@@


NATSGSG Dx 3/16/2015, IDC, Right, 2cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Radiation Therapy 8/12/2015 Whole-breast: Breast Surgery Lumpectomy: Right; Lymph node removal: Right

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