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Topic: Paget's disease

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Jun 29, 2013 08:39PM

sstarl1324 wrote:

My best friend's biopsy was just confirmed as Paget's disease this week and she is reading as much as possible forums and in medical journals.  She noticed that many women who were diagnosed opted for double masectomies and wondered why if it was only diagnosed in one breast. Thanks for any input. She is very afraid and rightly so.

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Jun 29, 2013 09:05PM Moderators wrote:

Hello sstar1, and welcome to

The section Surgery for Paget's Disease of the main site discusses surgical treatment options, and we hope you will hear from other members about their own experiences with choosing prophylactic mastectomy, and there's more info on the site in the section Prophylactic Mastectomy, and some of the reasons women choose it.

Best wishes to your friend.

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Jul 6, 2013 08:40AM flash wrote:

Went for the single mast and wished I had done the double just so I could be symmetrical. However, I am glad that I don't have LE risk in both arms because I did only the one breast. Do have your friend listen to the mods and look at the research.  Everyone must make a decision that is right for them and their particular situation.

multifocal multicentric IDC, DCIS, pagets et al. - er+,pr+ her2+++, mast,chemo, ooph, hyst Dx 10/10/2007, Paget's, Grade 3, ER+/PR+, HER2+

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