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Sep 19, 2013 11:52AM
Thanks for asking Bren
Went to see my old oncologist yesterday. I had seen him for 5.5 years for the 2007 DCIS dx. He never did much more than do a breast exam and give me a script for tamoxifen but I wanted to get his input on my current cancer dx so I agreed to have the pathology sent to him, although I will probably be treated by the oncologist at the NCI hospital where I got my surgery. I will see her next week and get my treatment/chemo plan.
I guess the type of cancer I have is rare, affecting around 5% of breast cancers. It is also "small cell" and very agressive. This type of cell is most often associated with lung cancer but can show up as a primary cancer in other sites. I asked him if this was breast cancer and not lung cancer that metastasized to the breast. He said it was breast cancer. He also said that because of the type of cancer cell I had, he thinks I should use a chemo that is more related to small cell cancers as opposed to the tradtional breast cancer chemo's. I will definately have to have chemo due to the one node they found in pathology (after 8 clear sentinel nodes!) and because of the positive LVI (drat!) and due to the fact that the cancer is rare and agressive.
I will also have to have scans. The scans they give you to see if the cancer has metastasized. This is something I had not really expected and it is very hard for me to think about. I'm still considered stage 2a which I thought was early enough to preclude having these tests. I'll see what the onc says next week and if they are scheduled, I'll go have them but I will be more frightened, worried and stressed than I have ever been about any test I have ever had. Also, due to the fact that I have already had whole breast radiation, I cannot get anymore radiation and may have to have motr of my lymph nodes removed. I don't know, I'll ask next week.
On a more positive note, Monday they removed the rest of my drains (4) -- I orignally had six of them and cleared me to drive. I'm beginning to feel a bit more "normal" again and that makes me happy. I'm dealing with as best as I can but I am truly dreading the next steps. So I am learning to take things one step at a time and not get ahead of myself. It is what it is and will be what it will be, and no amount of worrying on my part will make things any different -- just make me more miserable.
Thanks for asking
3/19/2007, DCIS, <1cm, Stage 0, Grade 1, ER+/PR+
7/2/2013, IDC, 1cm, Stage IIA, Grade 3, 1/9 nodes, ER+/PR+, HER2-
8/27/2013 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
10/23/2013 AC + T (Taxol)