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Topic: My Malignant poorly differentiated neuroendocrine carcinoma

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Jul 27, 2014 09:28PM

zjrosenthal wrote:

I was just diagnosed at Memorial Sloan Kettering with this cancer and can find almost no information on it's presenting in the breast.  I am confused and need help.

Dx 7/2014, IDC, Left, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2+ (FISH) Surgery 8/11/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 9/8/2014 AC Targeted Therapy 11/3/2014 Herceptin (trastuzumab) Targeted Therapy 11/3/2014 Perjeta (pertuzumab) Chemotherapy 11/3/2014 Taxol (paclitaxel) Hormonal Therapy 1/27/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/19/2015 Lymph node removal: Left, Underarm/Axillary Radiation Therapy 3/16/2015 Breast, Lymph nodes Dx IDC, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2+
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Jul 27, 2014 10:08PM wrenn wrote:

Is it considered a metastasizing cancer or is that the primary site where it showed up?

Hopefully someone will come along with knowledge but it is sometimes quiet later in the evening so tomorrow I am sure you will get responses. 

It is scary no matter the type so take care of yourself and be sure you have support to help you deal with it. This is a great site for support. Have a good evening. take care.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Jul 28, 2014 04:33AM zjrosenthal wrote:

I don't know yet if this is the primary site.  I am trying to remain hopeful but preparing for the possibility it may be terminal.  Mostly concerned for my spouse and children.

Dx 7/2014, IDC, Left, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2+ (FISH) Surgery 8/11/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 9/8/2014 AC Targeted Therapy 11/3/2014 Herceptin (trastuzumab) Targeted Therapy 11/3/2014 Perjeta (pertuzumab) Chemotherapy 11/3/2014 Taxol (paclitaxel) Hormonal Therapy 1/27/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/19/2015 Lymph node removal: Left, Underarm/Axillary Radiation Therapy 3/16/2015 Breast, Lymph nodes Dx IDC, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2+
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Jul 28, 2014 05:27AM kareenie wrote:

there are some ladies on other threads of this forum who have NE type. They may not have seen your post. Try badgerboo, graceB1, 2timer. You may want to send them a private message. Also do a search on the word neuroendocrine and you may find more.

ILC 1994 & 2009, Endometrial CA 2005, DES dau, Chemo, Rads, Femara, Prolia, MRM L, ALND, PNSMX R, LE, FG
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Jul 28, 2014 09:52AM zjrosenthal wrote:

Just got an update and some error occured.  It seems I only have invasive ductal carcinoma.  What a relief.

Dx 7/2014, IDC, Left, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2+ (FISH) Surgery 8/11/2014 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 9/8/2014 AC Targeted Therapy 11/3/2014 Herceptin (trastuzumab) Targeted Therapy 11/3/2014 Perjeta (pertuzumab) Chemotherapy 11/3/2014 Taxol (paclitaxel) Hormonal Therapy 1/27/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/19/2015 Lymph node removal: Left, Underarm/Axillary Radiation Therapy 3/16/2015 Breast, Lymph nodes Dx IDC, 3cm, Stage IIB, Grade 3, 3/3 nodes, ER+/PR-, HER2+
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Jul 28, 2014 04:04PM CarcinoidNETs wrote:

For anyone who would like more information about neuroendocrine carcinoma in the breast, go to Google Scholar and type that into the Search box.  There's lots of information.  Here are the results from my search,

scholar.google.com/scholar?hl=...

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Jun 2, 2015 11:24PM NATSGSG wrote:

hello @zjrosenthal and fellow members:

Hope this message finds everyone well and recovering....I've just posted info of this disease at another thread here, but decided to stop stop by and copy and pasted this link here again. The link has 1531 scientific  articles of  neuroendocrine carcinoma of the breast.  I hope you'll find them informative and useful. May need to sift through the titles to find the ones pertinent to you.

http://www.ncbi.nlm.nih.gov/pmc/?term=neuroendocrine+carcinoma+of+the+breast

In the meantime, please consider visiting and/or writing to the Society for Immunotherapy of Cancer (SITC) to find out if any institution or organization has started using immunotherapy to treat this disease? And perhaps having them add you to their mailing list to keep you informed of any new developments in this area? 

http://www.sitcancer.org/sitc-meetings/presentations?utm_source=Email&utm_medium=April%20IM&utm_campaign=IM%20PL%20edu%20Opps 

P.S.

Below VIDEO link talks about the use of immunotherapy in cancer treatment (current hot cancer treatment topic). Fascinating to watch. useful to know.

http://videocast.nih.gov/summary.asp?Live=15875&bhcp=1 

Have a fantastic summer and sending everyone lots of wishes daily, and enjoyment in your readings..@@!!@@

NATSGSG Dx 3/16/2015, IDC, Right, 2cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Radiation Therapy 8/12/2015 Whole-breast: Breast Surgery Lumpectomy: Right; Lymph node removal: Right

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