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Topic: Newly diagnosed with medullary carcinoma

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Sep 3, 2014 09:43PM - edited Sep 3, 2014 09:48PM by Bernie440

Bernie440 wrote:

Looks like I am a new member of this not so fun club. I am hoping to connect with others with invasive medullary carcinoma.  My tumor has all the characteristics of a true medullary, with the exception of her2 pos.  I had a lumpectomy two weeks ago on 8/20.  I met with the radiologist today.  Will need 3 weeks and 1 day of rads.  I meet with the onc next Friday.   

Stage 1 grade 3. 0/1 nodes Er- Pr- HER2 pos.  Lumpectomy 8/20/14

Invasive medullary carcinoma. Dx aug 2014 Dx 8/12/2014, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER-/PR-, HER2+ Surgery 8/20/2014 Lumpectomy: Left Radiation Therapy 1/22/2015 Breast Targeted Therapy 1/29/2015 Herceptin (trastuzumab)
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Sep 13, 2014 01:49PM - edited Sep 13, 2014 01:49PM by Bernie440

I was hoping to get at least 1 reply.  I met with the MO yesterday. We both agreed to go forward with radiation only.  I also got my mamma print result back. It showed high risk. But adding chemo didn't,t really make much difference in the stats. I am still curious if the mammo print results are skewed, they may not include anyone with medullary BC. Which always shows grade 3, but acts non aggressive.  

I did ask about he hercepton since I am her positive.  He told me that is used in conjunction with chemo in stage IV only. 

Anyhow, I start rads on 10/13 for 16 treatments

Invasive medullary carcinoma. Dx aug 2014 Dx 8/12/2014, IDC, 1cm, Stage I, Grade 3, 0/1 nodes, ER-/PR-, HER2+ Surgery 8/20/2014 Lumpectomy: Left Radiation Therapy 1/22/2015 Breast Targeted Therapy 1/29/2015 Herceptin (trastuzumab)
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Sep 15, 2014 12:12PM ml143333 wrote:

Bernie

I am sorry that you had to join our group and that no one has responded to your post.  I don't have any frame of reference for medullary carcinoma as mine was/is IDC.

With that being said, feel free to come here for support, venting, tears, laughter and more.  Feel free to PM me for moral support.

Mandy Dx 7/11/2014, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 8/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left); Reconstruction (right) Chemotherapy 10/17/2014 CMF
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Sep 15, 2014 04:03PM Penguin688 wrote:

I was diagnosed with medullary breast cancer nearly 2 years ago. Originally, I was misdiagnosed for 10 months as the lump was soft and mobile; it also barely grew in size. When I eventually had a lumpectomy, the cancer was 11mm, with no spread to the lymph nodes or blood vessels. I still insisted on having chemo ( 4 sessions, and against the views of my surgeon and oncologist), BRCA testing - this proved negative and, finally, a double mastectomy. My surgeon thought all this treatment was 'over the top', but he did misdiagnose me, and my mother also passed away from breast cancer; I, therefore, feel my decisions were justified. Hope your treatment plan goes well.

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Feb 15, 2015 10:15AM - edited Feb 15, 2015 11:25AM by rava

Hello Bernie. I just now saw your post. I was diagnosed with medullary carcinoma witch was her 2 positive in October 2011. You are the first I have seen with the same diagnose... Mine was very aggressive and had spread to7 nodes. I'm doing fine now 👍😊

Wish you all the best!

MX 11.8.11 no recon. Medullary carcinoma. Ki67 84% starting chemo 12.16.11 FEC 100 x 4 Taxotere x 4. 17 cycles of Herceptin. 25 rads. Diep reconstruction 09.15.13 Dx 10/26/2011, IDC, 2cm, Stage IIB, Grade 3, 7/13 nodes, ER-/PR-, HER2+
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Jan 23, 2017 11:29AM Eibra wrote:

bum

Dx 5/22/2016, IDC: Medullary, Left, 1cm, Stage IB, Grade 3, 0/0 nodes, ER-/PR-, HER2-
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Apr 29, 2017 10:09AM Eibra wrote:

hellow ladies how have you been ? I just start tamoxifen this month .. i have test my tumor block in three hospitals two of them they said i have triple negative but the last one said i have 10% Er positive which the doctor consider to start tamoxifen.. any body have same experience? This may i will complete a year sonce my diagnosi

Dx 5/22/2016, IDC: Medullary, Left, 1cm, Stage IB, Grade 3, 0/0 nodes, ER-/PR-, HER2-
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May 1, 2017 09:21AM Desirr77 wrote:

Dear Eibra,

same here but the other way round. My initial diagnosis was NST with medullary features, ER positive, PR negative and Her2neu negative, palb2 positive. I initiated two more tests on hormone receptors (one molecular DNA based) and both came back negative. I skipped

tamoxifen after 4 months then.

I completed a year since diagnosis in February :-)


Dx 2/4/2016, IDC: Medullary, Right, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 2/9/2016 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 3/1/2016 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxol (paclitaxel) Surgery 9/28/2016 Prophylactic mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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May 6, 2017 10:05AM Eibra wrote:

dear Desirr

That's interesting, i should ask for that, I don't know if it's available in my country, God always planning for our best ❤️🤗

Dx 5/22/2016, IDC: Medullary, Left, 1cm, Stage IB, Grade 3, 0/0 nodes, ER-/PR-, HER2-
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Nov 28, 2017 06:51AM - edited Apr 28, 2018 02:10AM by Eibra

This Post was deleted by Eibra.
Dx 5/22/2016, IDC: Medullary, Left, 1cm, Stage IB, Grade 3, 0/0 nodes, ER-/PR-, HER2-

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