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Topic: paget's breast cancer

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Apr 24, 2015 09:39PM

sharonrose wrote:

NO ONE IN OUR FAMILY EVER HAD CANCER.  ONE DAY I DISCOVERED A YELLOW COLORED CRUST/SCAB ON MY LEFT BREAST.  I HAD COMPANY FOR 3 WEEKS SO I WAS WAITING TO SEE THE DR.  IT STARTED TO BLEED.  I SAW THE DR. THAT DAY.  HE SUSPECTED PAGET'S AND I SAW A BREAST DR.  SHE DID A BIOPSY AND IT WAS PAGETS.  A SHOCK.  I HAD SOME FURTHER TESTING.  IT HAS NOT SPREAD BEYOND.  I AM HAVING A MASTECTOMY ON MAY 8TH.  I DECLINED THE PARTIAL MASTECTOMY, RADIATION, ETC.  WITH THAT, IT COULD RETURN SOMEDAY.  WITH THE MASTECTOMY IT SHOULD NOT RETURN AND NO TREATMENT, IF THE SENTINEL NODE IS OK.  I SUSPECT IT WILL BE.  I DECLINED RECONSTRUCTIVE SURGERY ALSO.  I AM AT AN AGE THAT I CAN MANAGE JUST FINE WITHOUT ALL THAT.  I HAD SO MANY QUESTIONS AND SOME FEARS.  I READ SO MUCH ABOUT IT ON THE COMPUTER, IT HELPED TREMENDOUSLY AND INFORMATIVE.  WHEN SHE GAVE ME THE GOOD NEWS YESTERDAY OF NO MORE SPREADING, I WAS BLESSED AND HAPPY.  NOW TO HAVE THE SURGERY AND CONTINUE ON.

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Apr 25, 2015 08:20PM Meadow wrote:

Sharonrose, I am glad you have recvd good news. And I am sorry you have been going thru this. This website has tons of information and support, I am so glad you are posting here. Good luck with your surgery, and my prayers for healing. Hugs to you.

Dx 8/15/2013, IBC, ER-/PR-, HER2- Chemotherapy 8/26/2013 AC + T (Taxol) Radiation Therapy 2/11/2014 Breast, Lymph nodes Surgery 1/15/2017 Reconstruction (left)
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Apr 28, 2015 11:02AM msphil wrote:


i too had no history of breast cancer in my family, i was in preparation for my marriage to second husband and only 42 yrs old, i found the lump in shower,blew my mind and i thought i would surely die, I  wanted to get a lumpectomy at the time for i didnt want to go into new marriage without my breast, my reconstruction didnt take, body rejeccted implant and had it removed, I decided on mastectomy, and so glad to say i am now a 21 yr Survivor(Praise GOD), i wear prothesis and u cant tell, so take care and comehere often we are here for you, i,m stll here to Inspire others. msphil(idc,stage2, 0/3 nodes, l mast, chemo and rads and 5 yrs on tamoxifen)

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Apr 28, 2015 11:05AM msphil wrote:

im glad kept a journal, and my husband suggested i write about my experience, "The Healings Of Breast Cancer" sub title: A Physical And Spiritual Healing Of my Body And Soul, on amazon.com and barnes and noble.com, if u like to read my experience then, and after. msphil(Mrs Phyllis Alexander)

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Apr 28, 2015 05:45PM Meadow wrote:

(Hitting the LIKE button)ThumbsUp

Dx 8/15/2013, IBC, ER-/PR-, HER2- Chemotherapy 8/26/2013 AC + T (Taxol) Radiation Therapy 2/11/2014 Breast, Lymph nodes Surgery 1/15/2017 Reconstruction (left)
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May 21, 2015 02:33PM LittleWolf wrote:

I'm sorry you were shocked SharonRose and had to go through that, but happy you got good news. That is always a "good" thing. Smile ...I was just told I have Pagets disease(it was very obvious with the whole nipple covered in hard dark scales in clusters) and I had a biopsy done yesterday to check for cancer in it. I will find out in a week or two if it's cancer but she said it's pretty obvious so to prepare for the news and she asked if I will be ok with whatever news I may receive. I told her yes as I've been doing research for knowledge and see it's fixable. I'm also going to have a diagnostic mammogram this coming Tuesday the 26th as well as ultrasound. After that my doctor wants to do an MRI. We have to take these smaller steps to reach the higher steps with my health insurance. I'm staying positive and want to make the best decisions as each step comes along. I hope this is caught early enough that just surgery will get it done with. I guess mastectomy is the way to go? I will wait and see what is actually all going on then make decisions, but I'm trying to prepare like she said. I'm thankful for this forum as it has been helpful to read through some of the things others have gone through and how it helped them. I wish everyone the best!

Melody

Melody
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May 26, 2015 02:31AM lou23 wrote:

Good luck today Melody, I hope all your tests have good results, I had a masectomy almost 3 weeks ago for pagets, they tried first a wide excision , but margin was involved with Dcis, the pagets appeared again by the scar on the skin Within 2 weeks, so they operated again.They also took sentinel lymph nodes so waiting for path lab results due next week. I'm so hoping I don't need any further treatment.Let us know how you get on. Wishing you all the best.

Lou.

Dx DCIS/translation missing: en.models.diagnosis.shorthand.type.paget''s, Left Surgery Lumpectomy: Left; Lymph node removal: Sentinel; Mastectomy: Left
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May 26, 2015 07:00AM FLmom34 wrote:

What were your signs of Paget's?

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May 27, 2015 02:40AM lou23 wrote:

hi, I had a very itchy nipple and it was quite red and shinney, after a while it bled a little crusted over then was ok again for a while, then the process started again.

Lou.

Dx DCIS/translation missing: en.models.diagnosis.shorthand.type.paget''s, Left Surgery Lumpectomy: Left; Lymph node removal: Sentinel; Mastectomy: Left
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Jun 2, 2015 09:15PM - edited Jun 2, 2015 09:29PM by NATSGSG

Hello fellow members:

I've listed this link below at three other threads but decided to copy and paste it to make it convenient for you. The contains 2269 scientific articles of Paget's disease of the breast that I hope you will find useful and informative.

http://www.ncbi.nlm.nih.gov/pmc/?term=paget+disease+of+the+breast

In the interim, you may wish to visit the Society for Immunotherapy of Cancer (SITC) to see if there's anything in the works using immunotherapy to treat this disease. It is current the hot cancer treatment topic. Or, you may wish to have them include you in their mailing list should there are any new development? Here's their link:

http://www.sitcancer.org/sitc-meetings/presentations?utm_source=Email&utm_medium=April%20IM&utm_campaign=IM%20PL%20edu%20Opps

Take care, and have a fantastic day, wherever you are @@!!!@@

P.S.

This VIDEO link talks about the use of immunotherapy in cancer treatment (current hot cancer treatment topic) and fascinating to watch.

http://videocast.nih.gov/summary.asp?Live=15875&bhcp=1 

NATSGSG Dx 3/16/2015, IDC, Right, 2cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC) Radiation Therapy 8/12/2015 Whole-breast: Breast Surgery Lumpectomy: Right; Lymph node removal: Right

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