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Topic: Phyllodes or Fibroadenoma

Forum: Less Common Types of Breast Cancer — Meet others with less common forms of breast cancer, such as Medullary carcinoma, Inflammatory breast cancers, Mucinous carcinoma (colloid carcinoma), Paget's disease, Papillary carcinoma, Phyllodes tumor, Tubular carcinomas, Metaplastic tumors, Adenoid cystic carcinomas and Angiosarcoma.

Posted on: Jul 27, 2015 01:47PM

rebeccaelizabe wrote:

Hello! I'm Rebecca, age 24, and I've just been diagnosed with a possible phyllodes tumor after a biopsy of the lump in my breast was labeled "inconclusive". My doctor told me that I had to have a WLE of the mass, because they can't be sure what it is unless they look at the whole mass. I have a huge problem with going under the knife because I might have a tumor which is benign anyway in most cases. Any one have experience with this type of diagnoses? What did you do? Particularly interested in cases where people decided to wait and see with frequent monitoring of the mass.

I cannot wrap my head around letting someone mutilate me, because of something that might be nothing.

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Jul 27, 2015 04:54PM Moderators wrote:

Hi rebeccaelizabe, We are sorry for what you are going through. Have you considered getting a second opinion? Perhaps that would help you to decide. Also, you may have read enough already, but here is our section on Phyllodes in case you haven't Phyllodes.

Please let us know what you decide, and we look forward to hearing what others have to say!

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